• mtnraindancer's Avatar

    mtnraindancer asked a questionColorectal (Colon) Cancer

    Chemo Dread..Mouth Soreness

    5 answers
    • myb's Avatar
      myb

      I tried the ice chips during oxali infusion with no luck. I had horrible mouth sores at 1st infusion, so that at my 2nd infusion, my Oncologist stopped the Leucovorin and bolis infusion. I then used to rinse with Biotene Dry Mouth wash like 5 times a day which helped to avoid mouth sores. To deal with the dread, I started taking Ativan the night before and morning of chemo. My husband used to drive me the 2 hours to chemo treatments in Philly as I could not do it.

      6 months ago
    • JaneA's Avatar
      JaneA

      I didn't have mouth sores - sorry that I can't help. But I have heard that ice chips during the infusion do help some people - also Magic Mouthwash. The best thing is to ask your oncologist or the chemo nurses for what they suggest. Best wishes - keep your faith - you're doing great.

      6 months ago
    • Jayne's Avatar
      Jayne

      I read somewhere (maybe this site?) that coconut oil swished and rinsed out helps, but I'd take the advice above since it sounds like Magic Mouthwash could help. Are you able to get any food down or is it just too painful? I know, who feels like eating, right?.....

      6 months ago
  • mtnraindancer's Avatar

    mtnraindancer asked a questionColorectal (Colon) Cancer

    Overcoming Fear

    11 answers
    • Jayne's Avatar
      Jayne

      I was very nervous leading up to my surgery for sure - the fear of the unknown. I ended up asking for meds to help calm me down, I think it was Xanax but it's been so long now. What can I say...I'm a wimp! But I still think it was the best thing for me - don't be afraid to ask for something if you need it!

      5 months ago
    • BoiseB's Avatar
      BoiseB

      It seems that I always have fear even to the point of panic attacks (I still have panic attacks from pre-cancer trauma). But my fears are more phobias than real fears. But cancer fear didn't raise its ugly head until after I had had clean scans for 4 years. I had a surgery site hernia my colon had pushed through the surgery site and was pushing against my lungs. My oncologist made an appointment with a lung specialist which I canceled because of a pending snowstorm. My oncologist called my PCP and both called me on a conference call and said that they had rescheduled the appointment and I was not to cancel period. The lung Dr. reviewed the CT-scan as said I had a hernia and scheduled me with a surgeon ASAP. Later that afternoon my PCP called to make sure I made the appointment. OK I should have been getting serious by now but that is not my style I did go to my appointment. The surgeon said he had reviewed my CT-scans and said he had scheduled surgery in 10 days. I thought hernia repair was no big deal just a little out-patient procedure. So I asked him can we put this off until next month. Well that changed this kindly reassuring Dr. into a Dr. Doom. He showed me the CT-scan pointed out my colon and my lung. He said my lung could collapse and my colon could twist and burst. He told me to move about as little as possible and he scheduled me for an EKG and X-rays. That put me into full panic mode. Now I am not one to take medication for anything but what is necessary to extend my life. But these panic attacks were like the symptoms of a collapsed lung or a twisted colon so I had to see my PCP. She was very helpful and showed me several anti-anxiety medications and we chose a very mild and old medication. It looks like your fear may be short term so I do suggest that you talk to your PCP about a short term medication for anxiety
      Will remember you in my prayers on the 19th

      5 months ago
    • Bug's Avatar
      Bug

      Jayne, you aren't a wimp! : ) It's okay to ask for help.

      5 months ago
  • mtnraindancer's Avatar

    mtnraindancer asked a questionColorectal (Colon) Cancer

    Still On The Fence With Mop-up Chemo

    9 answers
    • Kbaarch's Avatar
      Kbaarch

      Three months after my major colon and liver resection the ct scan showed unknown spots on the liver which worried oncologist and surgical team. Very disappointing. Three months later I had nonstop Xeloda with Avastin every two weeks for three months. It took a toll. Now two scans later I seem to be in remission with NED. Next scan in March. CEA was under 2. Blood tests good. Did the chemo help or hurt- who knows. Did the surgeon get it all? Time will tell. I trust my Oncologist who is always optimistic but focused on treatment with minimal disruption to quality of life.

      6 months ago
    • KB2013's Avatar
      KB2013

      GregP_WN, you are a marvel to behold, great strength, great personality, a genuine inspiration,

      grateful for you and the effort you put in to WhatNext, thank you and stay strong.

      5 months ago
    • KB2013's Avatar
      KB2013

      I don't like the phrase 'mop up chemo' because it is misleading.

      5 months ago
  • mtnraindancer's Avatar

    mtnraindancer asked a questionColorectal (Colon) Cancer

    Low Platelets

    5 answers
    • JaneA's Avatar
      JaneA (Best Answer!)

      lo15, Neulasta shots are to help with our neutrophil counts and don't help the platelet counts.

      6 months ago
    • lo15's Avatar
      lo15

      Nuelasta is used to build up your white blood cells. All I know is if I were she, I would ask about it. In SC we had the same issues as her, once in Massachusetts with Neuelasta, we have had great blood counts

      6 months ago
    • Jayne's Avatar
      Jayne

      I'll be thinking about you with the surgical app't tomorrow. It may sound scary but you can do it! One day at a time.....

      6 months ago