• Naturegirl's Avatar

    Naturegirl posted an update

    Thank you for all your input, it is helpful to hear how others have been coping with their treatments. I have been through a clinical trial and it did shrink the tumor by 25% and supposedly is keeping it localized. I have a lot of pain in my pelvic area radiating to my back only when I am walking due to the tumor that is pushing into the bone and nerves. Pain meeds, oxycocodine does not seem to help, I am looking into some other options for the pain. Between the pain and the inability to be active I find it hard to feel hopeful.

    1 Comment
    • Tendertrak's Avatar
      Tendertrak

      It's difficult to feel hopeful when you are in agony, wondering if it will ever stop. This is where faith comes in. You must believe that God will see you through this. He will give you the strength you need when you think you don't have any strength left. You are in a difficult situation, but hold on to the hope that you will survive. Keep sayig that to yourself "I will survive." I am praying for you.

      almost 9 years ago
  • Naturegirl's Avatar

    Naturegirl posted an update

    I found a wonderful surgeon who was willing to operate and remove the large tumor that was pressing on the bone and nerves etc.
    I have been in the hospital in New York for the past 3weeks getting amazing help. In order to get all the cancer out they had to remove my pelvis and reconstruct an artificial pelvis and do a hip replacement as well. It took 15 hours, with several specialist involved in the process. 2 days later I woke up
    With a lot of pain but cancer free. Hopefully for a long while. I have a long uphill climb with physical therapy, getting my body to accept all the new devices and hopefully keep away infections from getting in the way of healing.
    I can't say enough good things about the care I have been given by the staff both doctors nurses and auxiliary healing therapists who have been available to me. I will probably will remain here for a few more weeks, then to rehab
    In patient care and eventually home for more PT.
    Amazing journey, have been keeping a log to keep it all in order.

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      That is absolutely incredible.

      about 9 years ago
  • Naturegirl's Avatar

    Naturegirl posted an update

    Has anyone experienced being told by oncologist their tumor is not operable due to the location. Have alternative treatments helped?

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      I'm going to suggest that you also ask this in our Questions section.
      You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help. Also, know you can use the "Update" feature on the site to keep anyone who might be following you on WhatNext up to date.

      Thanks,
      David

      over 9 years ago