• ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    Back from MD Anderson...it was very overwhelming. Imagine going to a Dallas Cowboy Football game and half the people there are fighting cancer. Everyone was very nice but they really pressed us to be at their facility. They do not have any clinicial trials going on for Esophageal Cancer but wanted him to meet with the Phase I group and do all the work to see if he was a fit if they should have one available at some time in the future...he has already done a clinicial trial and has no desire to do another one. They also talked about taking tissue from his biospy when they discovered his cancer (not sure if there is any since Lilly wanted it after his clinicial trial) so they could work with his genes (5% chance). He decided not to do anything until we discuss our options with OUR oncologist. They were not happy and have called us twice more to change our minds. I also thought the doctor was very unprofessional when he told us not to go to another clinic closer to our home because that clinic was having personal problems. We were discouraged to say the least.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      sorry your experience wasn't a more positive one. There are a thousand decisions to make I know. Wishing you the strength to make the right choices for you.

      over 7 years ago
  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    First day at MD Anderson ... Kinda of scary.

    3 Comments
    • GregP_WN's Avatar
      GregP_WN

      So how's it going at the big MD?

      over 7 years ago
    • ogtxaggiemom's Avatar
      ogtxaggiemom

      Overwhelming ... Lots of ill people ... I want to cry for everyone. We got here at 8, checked in paperwork and meet our team, statics taken and he lost 11 lbs in 3 weeks, meet with RN, then doctor assistant and then doctor, them blood work and chest X-ray, now wanting (Gary has been sleeping) for C-T scan to begin at 6 with scan at 8. They will give us off tomorrow and we will meet with oncologist Thursday to see if they have any news for us. He has already had 3 lines of chemo and 1 clinical trial, so doesn't look good & they do not have any clinical trials now for esophageal cancer. My husband is just about ready to call the game, about to throw in the flag :( thanks for asking and listening to me !

      over 7 years ago
    • queen3rjd's Avatar
      queen3rjd

      Hope you are doing ok. I will say a prayer for you and your husband.

      over 7 years ago
  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    My husband has esophageal cancer which has moved to his liver (3 tumors) this is the only place it is showing up now. They said he might be a candidate for a procedure that is usually done for people with liver cancer. They go in thru his groan to his liver, cut off the blood supply to the largest tumor (grew from 5 cm to 6.5 m in a month) and then shoot it with chemo. If that works then when the other two tumors are large enough they will do it too. He is going to stay on the chemo treatment he is own now, it is the 4th line of treatment...1st chemo then radiation, moved to his liver so no surgery in esophagus, then 2nd line of chemo, then clinical trial and it really grew and now we are on 4th line of chemo. Any advice on what to expect if they say yes?

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Hello, sounds like an interesting plan. these Dr's sure come up with some brilliant ways to fight cancer! I can't help you with this, but if you will post this in the questions page, by clicking on the questions tab at the top of the page then fill in the question there, you will get some feed back from the community. There the questions are seen by most everyone who browses the page.

      almost 8 years ago
  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    My husband has liver tumors due to esophageal cancer moving. They tried to do a chemo embolization on thursday but they were not able to find large blood vessels going to the tumors. He is on his 4th line of chemo, has now losted 10 lbs in the past month and we are running out of options.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Hopefully one of those treatments will kick in and start working. Are you on trials, or regular treatments?

      almost 8 years ago
  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    Had a C-T scan and it showed that there was no new growth, and tumors he has have not increased in size. His blood work and lab work have all come back good. He has maintained his weight. Our doctor is very pleased with how he is handling all of this. Just a touch of nausea without any throwing up and he is just tired alot. He has never been hospitalized. Doctor has decided to stay on the course we are on now with chemo every two weeks on wednesday wear the pump home and back on friday to have removed. We are now at a year into his diagnosis and feel lucky that he is doing this well. When friends see him they always comment on how well he looks...which use to make him mad but now he is greatful. We have been very lucky in the fact that we work for the same company and I am able to take off to go to all doctor appts, chemo treatments are just stay home when he is not feeling well. And even if he does have a office upstairs most days we are here together he uses the extra desk I have in my office. He does have his good days and his bad days when it comes to mood swings and they are sometimes hard to deal with when I have my own emotions. We have a great family doctor who has been there the whole way and he has given me something to take on those really hard days. It can be a really balancing act because we have no clue what the future holds for us. He can make me laugh telling me the silliest story and I wonder how I will manage without him there for me because I will miss him so much.

    1 Comment
    • TammyF's Avatar
      TammyF

      our stories are the same, reading your post here, it could have been me writing the same thing. I hope your interested in following each other so we can learn from each other. The hardest part right now is waiting for the second PET scan. Hoping, Prepared for the worst, if anyone really can be, but hoping for the best with a smile everyday...external only I am afraid

      almost 8 years ago
  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    my husband was having an ache in his back which was due to cancer moving to his liver but now he is having real pain in his side and it is from the cancer tumors growing larger in his liver....what can we expect next? He is on two pain medicines, one for every 12 hours and then another to take as needed but neither seems to be doing much and he really doesn't want to take anything stronger and be knocked out. It hurts to cough, hiccup, and his acid reflux is in high gear and he belches all the time. They say his blood work is all good, we did the 1st level chemo then radiation, then it went to liver before we could do surgery. Then we did 2nd level chemo, they grew. Then we tried clinical trial and they got larger. Now we are on 3rd level chemo. What have others experienced, what can I expect as his caregiver?

    1 Comment
    • danellsar's Avatar
      danellsar

      I am sorry to say that what you are looking at is a lot of hard work. He will likely need more pain meds. You'd be shocked at how much the body can take and stay concious. With my husband, they upped and upped and upped again his morphine. He was on a 12 hour med and a breakthrough med, and then they made the 12 hour one be every 8 hours, then every 6 hours. He quickly couldn't drive and couldn't function well.

      If you haven't already, your husband should talk to a pain control specialist. There are ways to control the pain that would be easier on him.

      Sorry he's so sick right now.
      Ellen

      about 8 years ago
  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    My husband has esophageal cancer that has moved to his liver. I know that it can also move to your bones too but can it move to your brain too? We were sent for a MRI of his brain on wednesday but can not gotten the results back yet. We are nervous about this new information.

  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    Husband did not realize there would be so much blood work done during clinical trial...his veins are getting harder and harder to find. He is tired of being tired.

  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    We went to San Antonio on monday and got a second opinion ... so far he said we are on the right track with treatments...will finish this round of chemo next wednesday and then they will scan to see if the tumors in his liver have decreased, moved or grown...if they have decreased then we will continue these chemo treatments but if not then we will return to San Antonio and check on the clinical trials available. We did do a wonderful thing on Saturday...all our children, grandchildren and great grandchild (30 of us) came home and we had family pictures taken...the real deals...it was a wonderful day to remember with pictures.

  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    #3 of 4 chemo treatments was yesterday but they did not include one of the drugs due to low white blood count. They will delay next chemo, instead of in two weeks it will be three weeks with the possibly of a shot to increase the white blood count. Our doctor is also sending us to UTSA in San Antonio to see if there are other options (MD Anderson in Houston does not take our insurance :( ). He has gained weight (9 lbs in 2 weeks), very little nausea, no throwing up, never been hospitalized, works most days...so he has bad very little side effects.

  • ogtxaggiemom's Avatar

    ogtxaggiemom posted an update

    now what? We just found out about not being able to do surgery last monday 04/23 and got to visit with chemo oncologist on friday 04/27. Had so many questions and forgot to ask any of them...
    Surgery on the esophagus is out...surgery on the liver is out. When he got chemo is was suppose to be the strongest kind...nothing showed up in the Feb pet scan before radiation and now it does. We were told it also could move to other areas too.