• Overlyaverage's Avatar

    Overlyaverage posted an update

    I have been told I have 6months to live. I would like to hear from other liver cancer people about their experiences.

  • Overlyaverage's Avatar

    Overlyaverage posted an update

    Liver cancer has been found and I have been waiting for thee days now for an extrrnal drain and a bag to collect the bile procedure. I've been told I have

  • Overlyaverage's Avatar

    Overlyaverage posted an update

    I have recently gotten some good news. A PET scan in June showed no evidence of cancer in my esophagus though my oncologist thinks there are likely microscopic cells that don't show up on the scan. I have decided to continue treatment with taxol and cyramza because the side effects-taxol (my finger and toe nails have fungal and bacterial infections though they are improving some on new treatment I started a few weeks ago) are now manageable. The cyramza has no side effects of which I am aware. I encourage anyone with esophageal cancer to look into cyramza.

  • Overlyaverage's Avatar

    Overlyaverage posted an update

    I had an endoscopy on Friday and the tumor in my esophagus has shrunk and maybe even considerably. I have been on palliative taxol and cyramza since August. An endoscopy done then, after I finished chemo and radiation therapy found cancer in the tumor. The tumor at that time was friable and the Doctor who did the scope did not want to take a biopsy sample due to the risk of bleeding.

    He did take a biopsy this time and I haven't yet learned the results. I probably will by Wednesday.

    I especially want any readers to take note of the taxol combined with the cyramza and the good result. Also I want to mention the first two oncologists I had told me I wouldn't be around at this point and certainly would not have seen a reduction in the tumor. I fired both of them because of their focus on my death rather than a focus on keeping me alive. The oncologist I have now who is also the head of the oncology service has been walking a line between objective data from prior studies regarding who benefitted and for how long from this regimen and attending to my emotional and mental health by providing me with any help he can.

    I am also very grateful for the kindness of the staff in the infusion center. I have received infusions from 3 centers and all of the staff in each of them were warm, encouraging, fun loving, sensitive people who certainly know what they are doing and have good advice for managing some of the side effects.

    4 Comments
    • Overlyaverage's Avatar
      Overlyaverage

      I got the biopsy report today. There are still cancer cells present in the tumor. I hope to meet with my oncologist today to discuss what next. I also learned of a bacteria often found in stomachs that seems tied to cancers of the stomach-espalori (my phonetic spelling) that is treated with an antibiotic. The gastroenterologist is recommending the antibiotic though mine is an esophageal cancer,.

      over 3 years ago
    • BoiseB's Avatar
      BoiseB

      This news saddens me. I will continue to keep you in my prayers.

      over 3 years ago
    • BoiseB's Avatar
      BoiseB

      I am so glad that you have found Dr.s that are focused on keeping you alive. It took me a long time, winning a bet, and pointing out that there might just be some grant money available for research to turn my oncologist around. Now I am his favorite lab rat, Of course having a female 5 year survivor of stage IV EC is a feather in his hat.

      over 3 years ago