• riverratttt47w's Avatar

    riverratttt47w posted an update

    Well results are in, have seen a few different doc's and all say i need to have surgery and so happens to be the whipple and no i am not looking forward to it but and a oneway street now as i have no other option but to do nothing and things are rough enough at times now so i am not sure doing nothing is an option either so i guess its forward i go with the surgery. i did have to find a different surgeon as my last didnt show me enough confidence to do the job without messing up something as he is young but nothing against that but i need one with lots more experience so i got an older do that has done thousands of these whipple things as well as top notch in his field so he will be the man i am counting on to get me back to me as much as possible as i know i will never be the same as i have changed already with this cancer inside me and things are going to be more so after this surgery as its going to be a tough fight to get through so...see new surgeon next week and setting date I guess to get this over so I can start my recovery...PLEASE keep me in you PRAYERS as i go through this journey.

    3 Comments
    • GregP_WN's Avatar
      GregP_WN

      Wishing you the very best, and for your new surgeon to be the one with the "stuff" to get it done!

      almost 6 years ago
    • riverratttt47w's Avatar
      riverratttt47w

      Thanks GregP, not gonna lie it has me a little worried

      almost 6 years ago
    • GregP_WN's Avatar
      GregP_WN

      You certainly have the right to be worried. I know on my third dx, I was convinced it was going to get me, but I felt better after we started the surgery, treatment and got busy with it. It's been 4.5 years so far so good. Wishing the same for you!

      almost 6 years ago
  • riverratttt47w's Avatar

    riverratttt47w posted an update

    I just wanted to share that its been a little stressful the past few weeks to say the least and I have had second opinions and all but as of this past weekend I made a big decision. I do however have an appointment with my oncology doc on the 2nd as well as another surgeon to see if he agrees and not sure but whatever he says I have decided to put this to a rest for awhile. I have my good days as well as more than I would like of my bad but all in all I am doing ok with this and it seems treatment isn't an option I really don't see surgery one either at this time. trying to decided this has been stressful enough but I know I have made the right decision for now as financially I just cant even afford it as this has put a hurt on my wife and I with trying to keep up with the bills and all the things I have to do and barely making ends meet now with having to decide who gets paid this week and who waits so this journey is over after I am done with my last 2 appointments until hopefully times get a little better. I will keep up with my family doc as always and my diabetic doc but as for everything else I need a break on me as well as the pocketbook....gonna try and have an awesome time as I can this holiday season and going through all the mess has been a little much and I cant keep this journey up and enjoy the time I have with my family as my grandkids mean the world to me and they need to see papaw happy again so gonna tough it out awhile. hope everyone has an awesome Thanksgiving and Bless you all

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Sorry it's having such a toll on you. I know it's a drain, a drag on your mind, body and yes the bank account. I came to a decision long ago to not worry about what I cannot control. So to start with I decided whatever my insurance doesn't cover, I will not worry with. I talked with my hospital and told them basically the same thing, that I couldn't do anything about it and after I take care of myself and family if there is anything left I will be glad to send a few bucks, otherwise don't expect it. They referred me to their financial dept. and presto, things were taken care of. I suggest you contact the social worker at your hospital or treatment center and try that avenue for help. Also maybe the American Cancer Society and the Resources link at the top of the page. There is help. But first please help yourself by trying to not worry about all those things that you can't control, enjoy your life, family, grandkids. I wish you the best!

      almost 6 years ago
  • riverratttt47w's Avatar

    riverratttt47w posted an update

    Well wasn't the best of days at doc's as usual, don't think there are anymore good days with a doc as it use to be. I did have long talk with my Encro doc this morning and as she stated...if not for her seeing me and sending me for the body scan I would never know about this cancer and I agreed as she I my family doc seem to be the only ones that know me and I mean what I say when I feel something is wrong no matter what some of there test show. also told her about GI doc that took first tumor out at least he claimed he did to me and my wife after surgery and even offered to show it to her as he claimed he had it in his pocket but then all a sudden he forgot and says he sent it off and was about the size of a quarter or little bigger but to find out from surgeon that's not to bright either it seems that he never got it out as he lost it inside me and he never should have went in and removed it in the way he did either but he guessed he thought he was saving me from a bigger surgery....WHAT...told her I hate a lyer and that was a flat out lie from GI doc and then call my wife last week and tell her there was nothing he could do for me...told doc today...he will answer my questions from me or my lawyer which ever he prefer as I don't play games when it comes to my health and I wouldn't let the surgeon I have operate on my dog as he has no confidence in himself either in the way he talks and stutters when I or my wife ask a question as well as only give me a 50-50 chance it will even help at all as well as a 40% chance he will XXX up basically...I wont go with them odds as I as her I cant even get an answer as to what type of cancer and why he wants to remove most of my pancreas. she told me I had small intestine cancer which was very rare as only about 4% get this type but it could have spread to pancreas. I ask her about treatment instead of surgery as I am willing to try anything at this point as I have no XXX life and that I was done with test test test, everyone should know my insides like the palm of there hand by now and I just wanted to be fixed so I any have a life I can enjoy to some degree. she told me to ask the doc tomorrow about treatment. guess I will know a little more tomorrow as she told me to make sure I kept it and I am planning on it as well as getting off here a minute and calling my oncology doc and speak to him and I will not speak to the nurse and I will wait for doc to call me back and expect a call back today not next week, got few questions for him as well as he help start this as to telling me I needed surgery but we need to talk again. first time I walked out of a doc's office without having to be sent for a test or blood, I guess after what I said she would give me a break

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Sorry you've had a rough way to go lately, hoping things get turned around fast for you. Hang in there and if you don't like the answers you're getting from that doctor, don't be afraid to talk to another. Wishing you the best.

      almost 6 years ago
  • riverratttt47w's Avatar

    riverratttt47w posted an update

    well I got to see my family doc and she help get me in for my scope for Thursday morning. really hoping to get a game plan with surgeon after this. got to say I have a great family doc as if there is anything I need or need help with she has always been there for me when others said I was fine. looking forward to seeing the surgeon again to get this in gear if all's a go...

    3 Comments
  • riverratttt47w's Avatar

    riverratttt47w posted an update

    Well I got a call from surgeon late yesterday evening, seems after all the test and scans and full body scans as well as upperendo he would like to do some kind of endoscopic thing and CT scan just on my pancreas area. said I needed the surgery but wanted to know more about how big and where as he mentioned last week about maybe having to take part of my pancreas out as well. all this does is worry me a little more and the wait is XXX on the mind and body as its been too long now and I need help as soon as possible. feel that this has gone on for so long all the wait does is give it more time to spread. praying for the best still..

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Yes, the waiting is terrible, my last dx had me waiting for 2 months to get in to see my Oncologist, that was hard to do.

      almost 6 years ago
  • riverratttt47w's Avatar

    riverratttt47w posted an update

    well I got call from doc yesterday and he went over everything with radadoligist and yes I do need the surgery but wanted to talk to the GI doc that took the first tumor out in July as it seems he cant find the pathology report for some reason but going to give me call back today to let me know if I need another look down in there to see just what he needs to do if he cant get any answers from my GI doc. I believe one problem is that I just have too many doctors as I have 7 now and I try to make sure they all know what is going on and what I have had done so no one is left out and everyone is on the same page...