• RockTom's Avatar

    RockTom asked a questionHodgkin Disease

    Do you find that the farther out from the end of treatments you are the less you think about what it was like being in it?

    • Molly72's Avatar

      Rock Tom----See that you are from Ann Arbor, and I hope you took treatments at St. Joe's instead of "you know where"! I live close by AA & now try to only use the wonderful staff at St. Joe's.

      To get to your question, I think in my case, I try to forget, then it comes back & literally socks me in the face. (My nose, to be precise) I had a number of Basal Cells cancers several years ago, which were pretty deep & scaring. Last week another popped up & I had to have it removed surgically.
      The wound is deep & disfiguring. Perhaps plastic surgery is in the future.

      But it never seems to go away, at least for me, cancer sadly seems in my genes as I have had so many different types. Maybe a lobotomy might work!!!

      about 14 hours ago
    • GregP_WN's Avatar

      I have said this time and time again on this site in different conversations. Mainly because it's how I have felt through the years. You get less and less attached to your time when you were a daily or weekly patient visiting your doctor or treatment center. And then BANG! A lump or bump or whatever gives you a scare and you start thinking again about starting over.

      Just like what has happened to me this week. I have been suspicious of an issue in my throat and it came to be yesterday. So, yes, I do know how you feel about that!

      Molly, I hope you get your issues taken care of with plastic surgery or whatever works for your situation. It's frustrating having some of these issues that give us a body complex.

      about 12 hours ago
    • myb's Avatar

      Yes, I agree that the further out we are from treatments, the less we think about it. I was talking with a Colorectal Cancer Alliance Buddy the other day about her current journey when she asked if my colon cancer was in the ascending or descending colon. For the life of me at 7 years out, I couldn't remember.

      about 2 hours ago
  • RockTom's Avatar

    RockTom asked a questionHodgkin Disease

    If you've already had a bone marrow transplant and it fails a few years later, what's next?

    • BuckeyeShelby's Avatar

      I haven't, but a local meteorologist did. They were readying for another transplant, but unfortunately he took a turn for the worst, so I know a 2nd transplant is possible.

      29 days ago
    • po18guy's Avatar

      Which type of transplant did you have? Your own cells? Sadly, those are the least risk as far as mortality, but do suffer from a higher relapse rate. You can have an allogeneic transplant (donor cells) which carry higher risks but have a better long-term record against the cancer.

      Again, there are newer drugs and drug combination to use - many of them biological drugs which are not standard chemotherapy.

      If you are not at an NCI designated comprehensive cancer center, please at least consult with with. In the US, find the nearest center here: https://www.cancer.gov/research/nci-role/cancer-centers/find

      27 days ago
  • RockTom's Avatar

    RockTom asked a questionHodgkin Disease

    Has anyone taken busulfan?

    • carm's Avatar
    • cllinda's Avatar

      I didn't have that drug but other ones mess with your finger and toe nails. These are fast growing cells, along with hair, so chemo does effect these cells.
      My finger nails became really brittle and would break so easily. I also lost my big toe nails and they took forever to grow back.

      3 months ago