• still_fighting's Avatar

    still_fighting posted an update

    I know it's been awhile since I've posted anything but life has been crazy these past 6 mths. My dad fell and went into the hospital then transferred into the nursing home for about 3 weeks. He passed this past Monday. Trying to get my oldest graduated and he finished his schooling this past Friday. Trying to get my youngest through his Freshman year, his ends this week. Trying to get final arrangements for my dad set up but since we've had so much rain we've had to post-pone the burial. I went to my Family doctor for a check up and everything looks good she said. I start my Rituxin again next month but it's keeping me in remission and so I'm thankful. So all in all I've been hugely busy but I'm ok thank the Good Lord! Hoping and praying you all are doing well too, no matter what keep fighting!

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Sorry for your loss, that's a hard thing to do, we lost both parents in a short time, 10 months of each other. We wish you the best and hope you are doing well.

      over 4 years ago
    • still_fighting's Avatar
      still_fighting

      Thank you Greg. I hope you are doing well too!

      over 4 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    I just wanted to post that I've recently done an interview and a survey on CLL that was recommended by WhatNext and it was really interesting and fairly easy and they pay you for your time. I love knowing that I am helping researchers understand what it is like having CLL and what I've been going through. If anyone is contacted about a survey or interview by WhatNext they should take it if they possibly can because every little thing they can understand about our cancers is a step forward to a possible cure and better treatments. Thank you WhatNext for allowing me to be a part of that.

  • still_fighting's Avatar

    still_fighting posted an update

    I've started my next round of chemo and finishing up year 1 of my 2 yr. treatment plan. My next chemo is Christmas Eve and my next one is..yep you got it New Years Eve! LOL OMW I was really sick for Thanksgiving and now my holidays are 'booked' up my last treatment for 6 mths will be in Jan. Over all I'm doing good and I thank God for that...I have had another year with my family and I'm greatful. I am blessed. I wish everyone of our WhatNext family a very Merry Christmas and a Happy New Year!

  • still_fighting's Avatar

    still_fighting posted an update

    Doing good so far...YAY ME! I do my next round on Dec. 17th...UGH! I don't like having to do treatments so close to Christmas but I have to do what I have to do to keep myself doing well. This last round was rough...we found out that I ALWAYS have a bad reaction on the first treatment in my rounds so now we know what to look for and as soon as the nurses see I'm shivering they rush right over and help me. I'm crocheting Christmas presents for my chemo teams...tree top angels, Christmas drink coasters, and snow flake ornaments, door hangers with jinglebells and silver & gold bells. It keeps me occupied and creative. I try not to ponder on the tiredness...just goes with the territory I think. lol God bless everyone and KEEP ON FIGHTING!

  • still_fighting's Avatar

    still_fighting posted an update

    Hi everyone...I know it's been awhile but I've been trying to help my oldest get through school and it's been a tough hill to climb I'll tell you since he's home schooled...Senior year next year...YAY! I start my 2nd round, in this every 6 mth treatment plan, next month. I'll tell you I KNOW it's working, but every time I go in it seems it gets a little harder. I've been doing well outside a couple of infections here and there but as a whole I've been doing well and I thank the Good Lord for it. My youngest did the Relay for Life last weekend on my behalf bless his heart...he's 14 now. Praying everyone is well and as healthy as they can be. Tired but stilling fighting! lol

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Good to hear from you and we hope you're doing good. Keep those updates coming. Congrats on the youngster making through another year too!

      over 5 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    I know it's been awhile since I was on here...computer and teenager problems! LOL I'm doing good and TRYING to stay healthy but it's really hard when there is so much sickness around lately...colds and flu's. I'm still kicking and doing the best I can as I'm sure you all are. God bless and keep fighting!

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Good to see you and glad you're doing well! I will take the computer problems over the teenager problems anyday!!! Wishing you well with that one.

      almost 6 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Today I saw the most beautiful tribute to those of us who have and are fighting cancer....I hope everyone watches this but grab a tissue because it is very touching!

    We pray that all those struggling receive God's strength!
    http://www.godvine.com/Tear-Jerking-Cancer-Tribute-fb-gv-4128.html
    copy and paste the web address and watch this tribute please.

    2 Comments
    • Teachergirl's Avatar
      Teachergirl

      thanks for sharing! So powerful!

      about 6 years ago
    • still_fighting's Avatar
      still_fighting

      You're very welcome. Hope you're doing well, I haven't been on too much lately because sometimes I think we just need to step back from our cancer sometimes. :) The words of the song touched me and said so much about those of us on our journeys and our loved ones that I just HAD to share. I love Godvine because sometimes I need encouragement they have so many sweet and funny videos that helps me.

      about 6 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Well I'm trying to get caught up on all those physical's and tests that the 'over 50' groups need to have before I start my next round of chemo next month. It's fast approaching and at the moment I don't know how I feel about it. I'm feeling good for the most part which is always a good thing. Trying to reserve strength for my next journey. God bless and keep fighting!

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Keep on a plugging along and fighting. We are with you all the way!

      about 6 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    So I finally started all those things that everyone should do after the age of 50. It's been put off because I was in chemo and now I have to get everything done before I start it up again in November. So far everything looks good my GP says...blood work excellent, sugar...good, liver...good, physical...good, so now on to those things that no one looks forward to...me included! Colonoscopy, mammogram, eyes and I should be set for at least another year my doctor says. Flu season has hit my house already this year, my youngest was home for 5 days sick with it. I 'may be' okay but I'm already getting the sniffles, cough, runny nose..etc. UGH! Get past one thing, and something else blind-sides me. God bless everyone and keep fighting!

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      These things are what I call Cancer's gift that keeps on giving. Every time you think you're done with something, life has a way of sneaking up and kicking you in the knees! Hope you are doing as good as you can be!

      over 6 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Hello my What Nexter friends...today I had such a wonderful surprise from my 16 year old this morning...tomorrow is my birthday so for my present he made me a Youtube video with a special dedication to me about my CLL fight. Please everyone check out his video if you can he worked so hard on it. He is ADHD and Asperger's so to me its extra special...had me crying like a baby, bless his heart. His video is "Bring Me To Life Fight For Tomorrow" its pictures of dragons, he said that 'he chose dragons also because in his eyes that's what we here fight against', our dragons. I've been feeling pretty bad this past week so I went to the ER yesterday and literally waited in one of the rooms 3 hrs and not a single test was run so I went to the Reg. Office and told them if I was going to sit in a freezing room alone for 3 hrs I'd rather be at home being miserable, sign me out. I left. I have an appointment with my family doctor this morning and hopefully we'll find out what is going on with me. Everyone check out my son's video if you get a chance and no matter what "KEEP FIGHTING!"

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Good job and very neat on thevideo! You might post this on the pinboard if you haven't already.

      over 6 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Well I had to go to the doctor yesterday because my blood pressure was bottoming-out we think. Every time I moved my head or turned to fast or stood up I would get that "Whoaaaaa" light headed feeling. Because of the 'years' of chemo my family doctor says I need to get caught up on what they call the 'regulars'...stress test, colonoscopy, blood sugar, cholesterol etc. I have to take my blood pressure twice a day for a week and I go in next week for a blood work up. Then we'll make arrangements for some of the other tests before I start my next round of chemo in Nov. I told my PA that I've fought far to hard to let high/low blood pressure take me out...lol and I mean it! She shared that she was a breast cancer survivor and I told her about "What Next" and told her to come and share with us here. She's such a sweet heart. Well, that's my update so far...God bless each one of us and keep fighting!

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      These "little" things that pop up just blow my mind. Here we beat down the monster that's trying to kill us, then something like this pops up. My dr. came rushing into the exam room after some blood work once, he was exclaiming "we have a problem". I thought, Ohh no, here we go again. He says my cholesterol is wayyyy to high and we have to get it under control. Made me downright mad. I said, do you think I care about stinking cholesterol? Don't ever tell me we have a problem unless it's a "REAL" problem. I fixed it with Cheerios though, so all is good. Hope you get your extra curricular problems fixed too.
      And thanks for plugging WhatNext!!

      over 6 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Well yesterday I went in for my 3 mth checkup and my oncologist said everything looked good and that I'm still in remission!...YAY ME! We did talk about keeping me on the Rituxin treatments because they are working so I'll start them back up again in Oct/Nov. for another 2 year round of treatments. With my CLL, it's not the white count we have to watch, it's my red count bottoming out on me my oncologist said so I will continue on this journey and stay as healthy as I can. So I'll continue to fight on and I pray the good Lord blesses each and everyone of you during your journey's.

    3 Comments
    • cbanks' Avatar
      cbanks

      Hi SF - Great news, celebrate!!! Thank you so much for sharing your story. You are an inspiration to us all. Stay strong!!

      over 6 years ago
    • Teachergirl's Avatar
      Teachergirl

      You are such a strong person and have such a great attitude~thank you for sharing. I hope every check up ends with the word "remission!."

      over 6 years ago
    • still_fighting's Avatar
      still_fighting

      Amen to that, I'll take that every time! Thank you for making me smile. I don't 'feel' strong, I just do what I can and cry and get frustrated when I can't...lol. I think we are ALL strong whether it is one of us or a caregiver. Those outside our homes, our cancer centers really do not know what hard work it is having cancer and because we choose to fight to the end we are ALL strong. Those who stand with us are strong. Love, laugh a lot, look for beauty everywhere...basically do/see anything that takes you away from your "c" journey for a little while so we don't ALWAYS focus on it. I just do my everyday things. Sometimes it takes me awhile to get it done but when I finish I feel like I have accomplished something. Thank you again for making me smile. God bless you and keep fighting, no matter what! :)

      over 6 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Well I've finished my last round of chemo this past Thursday so I guess I go back on the "watch and wait" list again. Chemo this time really made me feel like I had the flu by the time I started feeling better it was time for the next one. I go back in 3 mths for a port flush and blood work to see how everything is going but I'll at least have the summer with my boys. I hope and pray everyone is doing good. My youngest did the Relay for Life for me last night (bless his heart) it was so hot and going to be that way all weekend. 2 more weeks and the boys will be out of school so that will be one less worry for me. God bless everyone and keep fighting!

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Good news! You've graduated. I know that's a great feeling. I wish you nothing but clean scans and no "surprises" in the future.

      over 6 years ago
    • still_fighting's Avatar
      still_fighting

      Thank you Greg I'm sure it will :)

      over 6 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Well I start my next round of chemo next Wednesday and I have to say I'm really nervous. The more I read and hear about Obamacare scares me to death that they won't cover my chemo treatments anymore or they feel that I'm too old to get my life-saving treatments. I even went so far as to call the Cancer Center this week to find out if I should even bother going or not. My blood count wasn't the best the last time they checked it so I'll find out where I go from here soon enough I suppose. They may have to change up my treatments this go round. God bless everyone and keep fighting!

    3 Comments
    • GregP_WN's Avatar
      GregP_WN

      Please don't let the Obamacare issue scare you off. Your still going to get your treatments. Even at worse case scenario, they will figure out something for you. There are resources available. Once you get started they aren't likely to stop you.

      Try to relax, and get healthy.

      almost 7 years ago
    • still_fighting's Avatar
      still_fighting

      It won't but thank you Greg...I'm "still_fighting" for a reason and they're not old enough to take care of themselves just yet LOL. I guess I should have said 'quality of care' maybe. Just nervous about treatments again mainly I think.

      almost 7 years ago
    • GregP_WN's Avatar
      GregP_WN

      Aaawww, shucks, you'll do great. Nervous is normal though. I wish you the best, easiest chemo ever!

      almost 7 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    I went back to my oncologist for another blood workup and I guess everything is ok since they never called me back. In this case, no news is good news, and I'm thankful. I still have a few months before I do my next round of chemo so I am TRYING to stay as healthy as I can. God bless and keep fighting!

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Did you ever hear anything from your dr's about your blood work? Let us know how that's going.

      almost 7 years ago
    • still_fighting's Avatar
      still_fighting

      No, I never heard back from them so everything is okay so far. Unless I feel bad I'll keep my scheduled appointments for chemo in April. God bless and keep fighting!

      almost 7 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Well I just got back from seeing my oncologist and I have to go back in 2 weeks for another blood test. I've had a stomach virus these past few days and wasn't even sure I'd make it to my appointment but I went anyway. My oncologist says my blood work looks good but my lymphocites are higher than she'd like but I'm not due for treatment for another 3 mths. She said that she'd wait and see if I can get over this infection before we decide if I need a treatment now or not...soooooooo its a 'good news/bad news' kinda thing. I AM still fighting and will continue to do so! God bless and I pray all of your visits have nothing but great news!

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Well at least there is some good news, concentrate on that.

      almost 7 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Hi 'What Nesters' I go to get tested to see how the Rituxin is working and get my appointments for my next round I think I have 2 more rounds (a month long) to go. I don't know because I can't remember lol. After so many you tend to forget how many you've had and how many more you'll take, so I just show up when they tell me to. I've had a bit of a dilemma of late and not sure how to deal with it...its been on my mind to maybe start dating again but I'm not sure it would be right. I have so much on my plate with getting my boys schooled and raised (my oldest is home schooled and I am there every minute, he even goes with me on occasion during my treatments) that is my main focus...they are the future. It really wouldn't be fair to my boys or the person I would date not only because of my leukemia but the fact that I have a 13 yr old and a soon to be 16 yr old and well...you just never know.... Well, maybe I really shouldn't even consider it right now, just get through my treatments and get my boys through another year of school. Just a thought, has anyone had this problem before? Anyway God Bless each and everyone of you and keep fighting!

  • still_fighting's Avatar

    still_fighting posted an update

    Oh my word that flu stuff is hitting EVERYONE so hard lately! I just went today and got my flu shot I don't know how much it will help at this point but better safe than sorry I suppose. It just seemed like everytime I went to get it something was going on and I couldn't get it. My new port is still giving me a little trouble for some reason it feels 'tight' like its pulling on my skin/muscles. The surgeon said it looked good and hopefully won't have any more problems with it...I said I sure hope so too! It sure wasn't like when I got it the first time that's for sure, but still better than taking treatments through my arms. My veins are shot so its really hard to start my IV. Praying everyone stays healthy..God bless and keep fighting!

    3 Comments
    • GregP_WN's Avatar
      GregP_WN

      AAAcheeww!! Sorry, hope I didn't get you! I am always around someone who is snorting and blowing, of course I do a lot myself, but most people don't think about us being susceptable to colds and flue more than the average person. A lot of them don't know we are even sick.

      about 7 years ago
    • still_fighting's Avatar
      still_fighting

      That's true Greg, my poor sister's family was sick during Christmas and my boys dad was sick so every where I turned someone was sniffling and coughing! The good Lord has blessed me and my boys and we've avoided it so far. I'm taking both boys in tomorrow for their flu shot. Hopefully it'll help keep that nasty bug down to a minimum around this household. I get sick just 'looking' at people who are sick I think...sure feels that way LOL! Gotta stay as healthy as I can. I go in on the 24th (my son's 16th birthday) to get tested to see how the rituxin is working.

      about 7 years ago
    • GregP_WN's Avatar
      GregP_WN

      Good luck with the test! Just keep thinking happy thoughts!

      about 7 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    wow they censored "Lord" on my post...unbelievable LOL well all put in the word 'Lord' where the XXX is cause that's what I said. lol God bless

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Sorry for that, the software can't detect "context" just words, so in an effort to eliminate offensive words and phrases, there is a list of words that the software company usually sees in offensive posts, and changes them. We are not saying "Lord" is offensive, it's just one of those things that in order to be carful, we err on the side of overly cautious.

      about 7 years ago
    • still_fighting's Avatar
      still_fighting

      That's ok Greg...lol, I understand and find it a bit funny but I certainly understand the censoring thing. I didn't mean that it was a bad thing it just surprised me is all and I didn't want people to think I was swearing I suppose. lol Have a fantastic day!

      about 7 years ago
  • still_fighting's Avatar

    still_fighting posted an update

    Well "HAPPY NEW YEAR" to everyone and God bless us all in this new year! I finally had my port surgery and UGH! I surely do not remember it hurting this bad the first time I had to have it put in. My surgeon said taking it out was easy it was putting another one back in that caused him the most trouble. There was so much scar tissue to fight through he had a hard time with it and boy I FELT his trouble too! I asked him if he was mad at me and beat me up while I was on the operating table because it sure did feel like it! It was swollen and painful and an angry red so I went yesterday to have him look at it to make sure it wasn't getting infected and he said it was just really bruised and that that was normal, so I guess I'm ok. I go back on Thursday to have the steri-strips taken off and I guess I'm go to go again. I hope everyone had a good Christmas I know we did even though the weather was frigid and crazy! A blizzard on Christmas day and fighting the extreme cold the days following but we all made it through even though a majority of the family has come down with a bad cold...not me or my boys thank you Jesus! Hoping and praying good reports, fast healing, loads of love and caring to each and every one of you...God bless and still fighting!