• Topazcat's Avatar

    Topazcat asked a questionBreast Cancer

    Has anyone survived stage 4 Inflammatory Breast Cancer after it went into the bones?

    17 answers
    • Prentiss' Avatar
      Prentiss

      Bone pains are really the worst. I've boney mets and have been through massive pain mgmt pharmaceuticals...it's been nearly 10 years since my first dose of pain medication. I'm here to say that I have weaned down to almost no pain medication over the last two years. And now I am able to treat the pain with non-pharmaceuticals. Just about every night I take calcium, magnesium and potassium vitamins and if I ham having a particularly difficult spell- medical marijuana. I don't like feeling medicated about as equally as I don't like feeling bone pain... but when it comes down to it, no pain (reduced pain) is an obvious choice. Find a pharmaceutical formula that you can live with and stick with it, even if it is seemingly forever...it won't be forever. The brain can adjust itself to pain over time. Side effects from one concoction or another vary. Pick and choose. I don't believe that addiction should be a reasonable fear, (in hindsight). I weaned off with out even intending on reducing my intake. Do investigate marijuana as an option, the side effects were much less disturbing in my honest opinion. Keep the faith and a positive outlook. This is a hard road, but change is inevitable. And I wish for you and your husband better days ahead. Peace sister and come back for more support.

      over 1 year ago
    • Vclay's Avatar
      Vclay

      I have been living with Stage 4 Inflammatory Breast Cancer that spread to the bones, liver and lungs for 5+ years now. I am also Her2+. Hang in there.

      over 1 year ago
    • MsShipp's Avatar
      MsShipp

      I was recently diagnosed with IBC stage IV triple negative that has traveled to my left hip and right femar. I am 30 years old with 5 children, my youngest is 5 months. I am terrified!!! I start chemo on Tuesday and we plan to do 4 treatments over 8 weeks and redo my PET scan. I am wondering if anyone else has dealt with what I am going through and can offer any advice or anecdotes? Thank you in advance.

      about 1 month ago