• TOUGHERTHANIT's Avatar

    TOUGHERTHANIT asked a questionBreast Cancer

    I am breaking down and letting them put a port in. I need your pros and cons please

    21 answers
    • po18guy's Avatar
      po18guy

      I still have my first port (Bard Power Port), but not in my chest. When it was pulled to be replaced with a vortex post, I asked nurse if I could have it. "No!" she replied, "it's a biohazard.' Well, I said, then what is it doing in my chest? :-D Anyway, I mentioned the same to my doctor. He said that he could not give it to me - but that occasionally, they overlooked a few details. When I awoke, there was a small red biohazard bag on the counter nearby - with my port in it. I now have it in a shadowbox, which DW forbids me from hanging on the dining room wall...

      1 day ago
    • BreastCancer17's Avatar
      BreastCancer17

      @po18guy my oncologist has written in my EHR that patient wishes to keep port as long as possible; I'm sure there's more after like crazy lady or something. lol It's my security blanket in my mind, as long as I my Bard Power Port I won't go on to stage IV. I will have had mine for 3 years on July 24.

      1 day ago
    • GregP_WN's Avatar
      GregP_WN

      PO, we still have my second one. Somewhere, we were going to do a shadowbox but never did it. I need to dig that thing out and build a little box for it, then hang my radiation mask above it. Maybe I could start a "room of horrors", but then again, depending on your point of view, it could be called "my saving grace".

      You see, it's always in the way you look at it.

      1 day ago
  • TOUGHERTHANIT's Avatar

    TOUGHERTHANIT asked a questionBreast Cancer

    OK people, I'm scared, don't know what to do. I need surgery but because of covid nobody can come

    42 answers
    • GregP_WN's Avatar
      GregP_WN

      All of us have a bit of fear, even me. With 32 years of experience in dealing with cancer issues, treatments of almost every type, side effects of almost every kind, you'd think that I know what to expect and have it covered. I should bounce right through this. Well, I have fear too. Fear that even though everything can be going along just fine today, but in a month take a turn for the worse and I'm gone. I've seen it happen. I've had family that this happened to. I'm afraid that if the treatments that I am on don't work that I'm at the end of the road, unless something pops up, I'm afraid that one of these days I'm going to weave left when I should have bobbed right, and the cancer reaper is going to smack me right in the mouth.

      But even with these fears, I keep them stuffed down deep, packed in a box inside me that I hope I don't have to open up and embrace. For now, I have confidence, optimism, and a positive outlook that if others can take this treatment that I am on and come out good, then I can too!

      Thank you all for helping @TOUGHERTHANIT get through this little roadblock in her journey. This is exactly why WhatNext was developed. So people who 'GET IT', who are going through it or have been through it can help others that are currently going through it.

      4 days ago
    • TOUGHERTHANIT's Avatar
      TOUGHERTHANIT

      Thanks again to you all. I am calming down a bit over all of this and I'm sure everything will be fine. It's just a shock to have everything thrown at you like it's coming out of a tennis ball launcher. I am hoping for a quicker in and out of the hospital than the dreaded worst-case scenario.

      2 days ago
    • 2943's Avatar
      2943

      Girl...with the team that has responded to this and others behind you..powerful feelings going your way. If you want to talk, I will send phone #. Hugs!!!

      2 days ago
  • TOUGHERTHANIT's Avatar

    TOUGHERTHANIT asked a questionBreast Cancer

    Face Masks - Since it appears that they will be a part of our lives, have you found a good source?

    35 answers
    • meyati's Avatar
      meyati

      Ebay is great- they used to give a quick shipment time, but since COVID 19, Ebay vendors say it will take several weeks. Chewy too, and that was the truth-even Sheplers in KS. Now most of the items come super quick, but they still say the shipping time is slow,

      8 days ago
    • BoiseB's Avatar
      BoiseB

      I really have a supply of masks. I am just looking for fancy ones. The homemade ones are the best as my sister, and sister-in-law and my daughter are all excellent seamstresses. I also don't need anymore masks because I rarely leave my apartment, only to go to the Dr. I go to the mailbox in the evening when no one is around.

      8 days ago
    • BoiseB's Avatar
      BoiseB

      I love being masked because I feel free to smile and laugh softly.

      7 days ago
  • TOUGHERTHANIT's Avatar

    TOUGHERTHANIT asked a questionBreast Cancer

    I saw this quote today and although it's talking about the virus thing, I thought about us cancer fighters.

    6 answers
    • Lorie's Avatar
      Lorie

      Thank you Tougher. A family member just completed a 90-day rehab program. This fits everybody
      Lorie

      3 months ago
    • cllinda's Avatar
      cllinda

      It does help both cancer patients, those dealing with other medical issues, and the virus.

      A few years back I was dealing with major stomach issues and had four procedures done in six months. It wasn't easy at all. My diet was severely changed. I was dealing with an ileostomy and so much more. But I took things one day at a time. Sometimes I could only handle one hour at a time. I wish I would have had those words to get me through it.

      3 months ago
    • petieagnor's Avatar
      petieagnor

      Thanks, Tougher. I liked it so much that I reposted it on FB. It truly fits for us with cancer.

      8 days ago
  • TOUGHERTHANIT's Avatar

    TOUGHERTHANIT asked a questionBreast Cancer

    I have a surgery coming up in a couple weeks. The scheduling nurse just called to ask If I have been tested for Covid virus.

    7 answers
    • MyLungCancer's Avatar
      MyLungCancer

      My hospital has people sitting at tables outside the entrances to take everyone's temp, then put a sticker on them that says "screened". The entrances have been limited to just a few so everyone has to go through just a few doors. It's all strange.

      2 months ago
    • cak61's Avatar
      cak61

      My daughter in law works in the ER at a busy south Florida hospital and they have a rapid test. Gives them results right away.
      You would hope all hospitals and surgical centers will soon have these.

      2 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I've wondered about the temperature thing. Do you run a temperature immediately upon becoming contagious? Or is it possible to be asymptomatic but still have the virus? I would think, but I could be so wrong, that checking temperatures would catch a lot of the people who could have the virus, but not all. But, maybe temperature is a requirement and occurs immediately...

      2 months ago
  • TOUGHERTHANIT's Avatar

    TOUGHERTHANIT asked a questionBreast Cancer

    With all that we have going on in trying to get our treatments, office, calls, surgery, etc

    13 answers
    • meyati's Avatar
      meyati

      I'm glad that I was able to find flour online at a reasonable price. It's in 5 lb bags, so I'll be dropping some bags off to the 3 families that have children.

      3 months ago
    • Bengal's Avatar
      Bengal

      I continue to enjoy my bird feeders. Different species show up everyday as spring progresses and I am adding to my knowledge by looking up birds I don't recognize or know the name. It helps pass the time and gives me something to look forward to every morning, to see who's there. Only problem, they're getting used to being fed so yesterday I had to venture out to get more bird seed. I hung up a brand new suet square yesterday afternoon and this morning it was GONE, holder included! I found what was left of it later on the other side of the yard. Squirrels! This could be a problem. I live alone out in the country so it's nice to be able to look out and see other living things. Yes, even the squirrels. Little "&$=s!

      3 months ago
    • petieagnor's Avatar
      petieagnor

      I wake up every morning saying, "Thank you Lord." I've had MBC for nearly 4 years so I've been through it all. My husband's cracked pelvis was a surprise, but I got him home from rehab before we were ordered under house arrest.

      3 months ago
  • TOUGHERTHANIT's Avatar

    TOUGHERTHANIT asked a questionBreast Cancer

    Have you heard of a doctor telling a newly diagnosed patient that they had "the good kind" of cancer?

    19 answers
    • legaljen1969's Avatar
      legaljen1969

      JenInTX, I am sorry to hear that your BC has gone to Stage 4. That is a tough diagnosis to take in. My initial biopsy showed that things were very contained as well, just simple Ductal Carcinoma In Situ. I was scheduled for a lumpectomy. By the time I got to having my SAVI scout implantation for the lumpectomy, there was already more disease than they expected.
      Then by the time I got the pathology for the lumpectomy, they couldn't get clear margins and we had to move to mastectomy. All my doctor had for me for almost two months was bad news.
      If you have a good treatment team, perhaps there is someone who can talk with you and explain things better or give you a more realistic viewpoint on what is to come.
      My surgeon is very straightforward and has, for the most part, been my bearer of bad news. My oncologist has been my bearer of "better news." Make sure your treatment team is all on the same page.

      3 months ago
    • legaljen1969's Avatar
      legaljen1969

      Let me clarify by saying the diagnosis is the same. IT is what it is, but sometimes the way the treatment is laid out or how to proceed may be viewed as "simpler" or "more complex" by one particular member of the treatment team. Maybe surgically your case is more complex, but maybe treatment wise it is not as invasive. Or maybe it's the other way around. I don't mean there is dissent within the treatment team.
      It's like being taught the same subject matter by different professors. There are different points of view and sometimes one has insight into the treatment and even the emotional aspects of the disease that another member does not have.

      3 months ago
    • cheryncp's Avatar
      cheryncp

      Yes, I was told that because there are oral targeted therapy drugs that have a good success rate with the gene mutation that I have

      3 months ago
  • TOUGHERTHANIT's Avatar

    TOUGHERTHANIT asked a questionBreast Cancer

    Did you watch the One World Together At Home show Saturday night?

    4 answers
    • Bengal's Avatar
      Bengal

      I did watch most of it. For something thrown together almost literally overnight I thought it was great. Love Sir Paul! His voice is cracking all over the place but he's still got it. Also loved the four way split screen Rolling Stones. I guess you can tell what generation I come from.

      3 months ago
    • TOUGHERTHANIT's Avatar
      TOUGHERTHANIT

      I enjoyed it all! There was another connection to cancer when another musician sang a song about his dad's cancer fight. Now I can't remember his name.

      3 months ago
    • TOUGHERTHANIT's Avatar
      TOUGHERTHANIT

      found it! Billy Joe Armstrong https://youtu.be/RQFtvAfHndE

      3 months ago
  • TOUGHERTHANIT's Avatar

    TOUGHERTHANIT asked a questionBreast Cancer

    How long was it before you started treatments after you were diagnosed?

    19 answers
    • legaljen1969's Avatar
      legaljen1969

      TOUGHERTHANIT, I hope you get back on track with treatment sooner rather than later so that you will feel a little more confident.
      For those of you who are in treatment delays, perhaps it is of little comfort, but I guess it is good that you are not considered critical or likely to become worse in the time you are delayed. I know that is how I felt when my doctor was not in a hurry to schedule surgery. I felt like I had time to wait. I know not everyone has that experience.
      My thoughts and prayers are with you all.

      3 months ago
    • Danfan714's Avatar
      Danfan714

      The first time it was 3 months, the second time I went straight to operation.

      3 months ago
    • JustGrateful's Avatar
      JustGrateful

      Just about every facility around us is up in the air about who can come, what procedures are being allowed. We even have different doctors arguing over what is considered elective and what is essential.

      3 months ago