• Tracy's Avatar

    Tracy posted an update

    A great way to explain living with a limiting condition
    http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting, there are some similarities there aren't there.

      over 7 years ago
    • Tracy's Avatar
      Tracy

      It is hard to explain to people how you have to dole out your energy for the day. I was impressed with how well this gets the point across with a sense of humor. It is not important what condition you have have, we all understand this frustration.

      over 7 years ago
  • Tracy's Avatar

    Tracy posted an update

    I should have shared this earlier:
    Casting for Recovery http://castingforrecovery.org/wordpress/home/
    A Casting for Recovery weekend is about empowerment
    Knowing little about fly fishing, women learn the basics while experiencing a spirit of trust and sharing that cannot be put into words.
    Participating at your own comfort level, you will find new strength, joy, and confidence, leaving the retreat with a belief in your ability to master the challenges ahead.

    3 Comments
    • GregP_WN's Avatar
      GregP_WN

      Tracy, if you can find a picture off of their website, how about reposting this as the text under a picture post? That way it will be seen by a lot of people. It will show on your page as well as in the pinboard.

      Thanks for posting.

      about 8 years ago
    • Tracy's Avatar
      Tracy

      OK Greg, I hope I did that right :-)

      about 8 years ago
    • GregP_WN's Avatar
      GregP_WN

      Yes you did, it is now on the Pinboard, see, easy.

      about 8 years ago
  • Tracy's Avatar

    Tracy posted an update

    I just got approved for disability. I have Pseudo Tumor Cerebri (too much pressure in the brain) this may be a side affect from the experimental treatment I had in the mid 1970's. I have mixed feelings about being declared disabled but it is hard to function while in pain everyday.

  • Tracy's Avatar

    Tracy posted an update

    ParaThyroids:
    We have 4 Parathyroids, we only need one working properly. If you have had surgery and / or radiation to your neck these can be damaged. I was diagnosed with Hyperparathyroidism after several years of symptoms, I had never heard of this and it took a long time of "something is not right" before we found out what. With Calcium imbalance you end up with muscle cramps, anxiety, depression and kidney problems.

    (from the Mayo clinic web site)http://www.mayoclinic.com/health/hyperparathyroidism/DS00396

    Hyperparathyroidism is an excess of parathyroid hormone in the bloodstream due to overactivity of one or more of the body's four parathyroid glands. These oval, grain-of-rice-sized glands are located in your neck. The parathyroid glands produce parathyroid hormone, which helps maintain an appropriate balance of calcium in the bloodstream and in tissues that depend on calcium for proper functioning.
    Symptoms may be so mild and nonspecific that they don't seem at all related to parathyroid function, or they may be severe. The range of signs and symptoms include:
    Fragile bones that easily fracture (osteoporosis)
    Kidney stones
    Excessive urination
    Abdominal pain
    Tiring easily or weakness
    Depression or forgetfulness
    Bone and joint pain
    Frequent complaints of illness with no apparent cause
    Nausea, vomiting or loss of appetite

  • Tracy's Avatar

    Tracy posted an update

    Thyroid thoughts:
    After more than 40 years on thyroid replacement some thing I have learned.
    If you have thyroid cancer your thyroid replacement needs to be higher than those people who are just replacing thyroid. The reason is that you need to prevent the endocrine system from trying to stimulate the thyroid.
    Thyroid medication is critical. you need to have the same brand every time and do not use mail order. Mail order medications are purchased in huge amounts and the freshness can be an issue. If you miss a dose it will take about 24 hours to leave your system and about the same to return.
    I have found when I miss a dose I lose my sense of smell, my balance is off and my temperature gauge is off.
    If my dose is too high I have twitching muscles, I sweat more than normal and I have higher anxiety. I keep track of symptoms carefully because the levels are very important.
    I hope this helps people with thyroid issues. Tracy