• Ydnar2xer's Avatar

    Ydnar2xer posted an update

    July marked my 5th year since my second diagnosis of breast cancer. It's amazing what I've been able to scratch off my bucket list since then. By far the best thing? Holding my first grandchild, a boy, born last December. THANK YOU, makers of Herceptin!

    4 Comments
    • Judytjab's Avatar
      Judytjab

      Congratulations! Definitely a cause for celebration.

      almost 4 years ago
    • beachbum5817's Avatar
      beachbum5817

      Wow, this is great news to hear. As an HER2+ person, it is very encouraging. I also am so thankful to the women who were willing to take part in the years of trials to get Herceptin approved. I hate to think of where we would be without it. Keep knocking those items off your bucket list. Your best thing is number one on my list. Don't be a stranger. Take care.

      almost 4 years ago
    • Ydnar2xer's Avatar
      Ydnar2xer

      What a great bunch of responses from my little update. Thanks to all of you! Oh, didn't update you on my costumes...It started when I lost my hair due to chemo. I'd go to my chemo & onc visits w/a goofy wig or hat on. The other chemo patients seemed to get a kick out of it, so it got worse---soon I was making entire costumes just for those occasions! I've done Captain Chemo, Elvis, a cavewoman, an October Breast Cancer awareness costume, a leopard, an old hippie and a woman in a bathrobe with curlers in her hair (wig). The last one didn't go over very well---I think people thought I was serious! But for my October visit this time (1x a year now), I am planning to go as a Ninja! It should be a hit, especially since I am shortish and rather rotundish, LOL. Thanks again, Ladies! Let's keep up the good mojo!

      almost 4 years ago
  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    Have been doing well, not thinking about recurrence for some time, simply by focusing on others. Started a nonprofit scholarship for local low income kids and it keeps me so busy I don't dwell on the fact that I could sometime become a 3xer w/cancer. For me, busy=happy!

  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    Haven't visited whatnext lately & thought I'd give an update: just passed the two-year anniversary of my bilateral. That operation seems like so long ago! I have gone through a lot since then--am still being bothered by some long-term side effects (neuropathy has now progressed to my hands as well as feet), but you know what? I am SO HAPPY to be ALIVE! No, I'll never be the same as I was before, but that's ok. I can adapt. I still feel a strong "need" to help educate healthy people about how to talk to those with cancer and to cheer chemo patients up by visiting my oncologist in costume! Life is short anyway, and for many, much shorter than it should be. Why not be happy when you can? The hospital administrator who refused to let me volunteer in costume (???) has left and I may soon mount an online campaign to the new guy to let me do it now. Don't know why they consider an older woman who has had breast cancer TWICE and who WANTS TO VOLUNTEER in a Captain Chemo or Cavewoman costume a threat to chemo patients! Would any of you wonderful friends help me with that? Thanks! "YD"

    14 Comments
    • ticklingcancer's Avatar
      ticklingcancer

      I'll happily sign your petition. Good to hear from you!!

      almost 7 years ago
    • Kathy1's Avatar
      Kathy1

      I think its great...that you are feeling great and the captain chemo costume. The hospital administrators have got to understand that laughing is part of healing. The fear one feels before chemo could disappear with one Captain Chemo's face. Congratulations!! Can't wait to be able to say its been two years!

      almost 7 years ago
    • MLT's Avatar
      MLT

      Will be glad to support you so you can brighten the days for many!

      almost 7 years ago
  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    I went to my exit interview with my oncology nurse practitioner last week and it was extremely satisfying. We talked about the past 23 months since I'd been diagnosed for the second time with breast cancer. It seems so long ago, now--but when I was going through all of the testing, chemo and some of the reconstruction--it seemed like it would never end.

    Wanted to tell others who are now going through treatment that yes, it does finally end. Although I still have "reminders" of my cancer (neuropathy, tremors, some chemo brain still), I am still left with deep feelings of gratitude for my medical "team" plus a reawakening of what it means to live. I try to make each day count now. When I have a chance to lift someone else up, I try to take it. The big picture seems to me that there are so many good things in life, and no matter how much time any of us has, each of us can make a difference if we try. I honestly wish the best for each of you going through cancer challenges. Thanks for the opportunity to express these feelings. "yd"

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting that YD! Things like this are fantastic motivation for those that are still deep in the trenches of their own fight. It lets them know that they too can be "done" one day. I hope you are doing great!

      about 7 years ago
    • Gabba's Avatar
      Gabba

      You are the consummate survivor and thrived...best wishes for good health and an easy journey from herein out!

      about 7 years ago
  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    Today was the best day in a long time! My second 3-month check up and cancer markers in blood are NORMAL! YEAH! Let's keep 'em that way!

    5 Comments
    • cbanks' Avatar
      cbanks

      Thank you for sharing the great news. Congratulations!

      over 7 years ago
    • GregP_WN's Avatar
      GregP_WN

      Good news YD! nothing like having the Doc saying You're OK.

      over 7 years ago
    • Bug's Avatar
      Bug

      This is really great to hear! Congratulations! : )

      over 7 years ago
  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    Went to see onc for first time in about 3 months. I finished Herceptin year in September. He said my cancer markers keep going down, which is great. He patiently told me all of the indications my body would give me if the cancer comes back and that only THEN would we follow up w/more invasive tests. That sounds good to me--it's wonderful to know I can continue my life w/o worrying about being tested constantly. I will enjoy life, listen to my body and keep my fingers crossed! :-)

  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    My sister starts HER chemo for HER IDC tomorrow. Lucky for her, it's just 12 weeks of TH--without the carboplatin, which was the drug that made me feel the worst. Send your good mojo her way!

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      We wish her nothing but smoooooth drips, and no sick's.

      about 8 years ago
  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    Just got back from two-day stay in Leavenworth, a small town that is designed to look like a Bavarian Village. It'd been10 years since we were last there, and all of that Tyrolean music they play there on loudspeakers reminded me today that it'd been 10 years since we were last there! ("He's a little bit country--she's a little bit rock 'n roll!

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Hey YD, isn't there a famous prison there? You weren't in the pokey were you?

      about 8 years ago
    • Ydnar2xer's Avatar
      Ydnar2xer

      Not THAT Leavenworth, LOL! This was a tiny, ignored town until the business owners decided to make it over to look like a town in Bavaria some years back. It NEVER had anything to do with Bavaria, however, the tourists either didn't know that, or didn't care--it still is overrun by tourists and tour busses every summer, with people buying scads of junk they don't need and drinking German beer! (Maybe drinking the beer and THEN buying the junk--?)

      about 8 years ago
  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    Does anyone else have a problem with "for whatever reason, we were meant to go through this" (to have cancer) ? Or am I just being hyper-sensitive today?

    I believe it was totally random--and my bad luck to get cancer twice, it wasn't because I was "chosen"! (It ALSO wasn't because I ate too much red meat! I simply believe that sometimes, XXXX happens!)

    2 Comments
    • lynn1950's Avatar
      lynn1950

      I don't think "we were meant to go through this" because of some spiritual prerogative. I don't think getting cancer is totally random either. I think there are biological/physiological/genetic factors that synergistically spell C-A-N-C-E-R. When we figure that out we will have a cure!

      over 8 years ago
    • SueRae1's Avatar
      SueRae1

      Well the other day I asked 'who stole my real life, and can you please give it back to me"

      over 8 years ago
  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    What purpose do steroids play in chemotherapy?

    1 Comment
    • lynn1950's Avatar
      lynn1950

      I think the steroids help to reduce nausea.

      almost 9 years ago
  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    Under what circumstances would a cancer patient need to inject him/herself?

    2 Comments
    • lynn1950's Avatar
      lynn1950

      I got a Neulasta shot for the A/C part of the chemo; for the Taxol, I only needed Neupogen shots which I gave myself. The nurse at the clinic taught me how. Both Neulasta and Neupogen help build up white blood cells to fight infection.

      almost 9 years ago
    • KarenG_WN's Avatar
      KarenG_WN

      This is a good question - I suggest that you also consider posting it in our Questions section. You can do this by clicking on Questions in the purple bar above. Thanks!

      almost 9 years ago
  • Ydnar2xer's Avatar

    Ydnar2xer posted an update

    BC Veterans, Unite!

    Anyone else go from DCIS to IDC in less than 10 years? I thought I already did my time with cancer! I have a deferment! All that radiation I put up with the first time? What about all those (gulp!) bottles of Tamoxifen? Please say it ain't so!