• 10 yr old papillary thyroid cancer questions distant mets, and diffuse sclerosing

    Asked by TeamBella on Sunday, January 21, 2018

    10 yr old papillary thyroid cancer questions distant mets, and diffuse sclerosing

    My 10 yr old was recently diagnosed with papillary thyroid cancer. We found out yesterday it is in all lymphnode compartments on both sides of her neck, sternum lymph nodes mets to lungs. And diffuse sclerosing variant. Anyone with information on quality of life, recurrance, anyone else?,

    6 Answers from the Community

    6 answers
    • GregP_WN's Avatar
      GregP_WN

      Sorry for Bella's diagnosis, I had head and neck in my last diagnosis. Mine was right tonsil, with lymph node involvement in the right side of the neck. I had a radical neck dissection on the right side along with the radical tonsillectomy. I'm sure some of the thyroid members will see this and offer their experiences when they get online. We wish her and your family the best.

      over 1 year ago
    • TeamBella's Avatar
      TeamBella

      We are luckily working with our second opinion right now. First place dell childrens Austin had no idea what they were doing. Her endo day after meeting had ultrasound. Sat me down and told me she had cancer. MRI they said it was just in the right side. Yes she told me 2 weeks before christmas without a biopsy confirmation. At Texas Childrens houston they have a pediatric thyroid cancer team. They ordered more tests and images. Dell had it so wrong. Fully lymph node involvement in all compartments minus the submental, sternal lymph, and lungs. She also was born with 22q.11.2 deletions, and has had 4 open heart surgeries to fix congenital defects. I am 31 she is 10. She has been medically involved her entire life. With the rarity of each separate its amazing she has so many non related issues.

      over 1 year ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      How terrifying to have your young daughter diagnosed with cancer. I don't have any answers to your questioms, but am wishing the best for you and your daughter.

      over 1 year ago

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