• 2nd Opinion for Inflammatory Breast Cancer Diagnosis?

    Asked by jah7010 on Thursday, March 14, 2019

    2nd Opinion for Inflammatory Breast Cancer Diagnosis?

    Is it important to get an IBC diagnosis? I have the symptoms but not the diagnosis. I feel that I should have the diagnosis to get the most aggressive treatment. Although I'm not sure what they would recommend that they're not already doing, which is chemo (Perjeta, Herceptin/Taxol). Should I get a 2nd opinion???

    7 Answers from the Community

    7 answers
    • jah7010's Avatar
      jah7010

      Thank you Carm and ChicagoSandy. Yes, I'm ER+, PR+ and HER2+. Unfortunately I'm stage 4 de novo and grade 3. My treatment is 2 weeks on (week 1-P/H/T, week 2-T), and 1 week off. I can tell that the chemo is working, but it comes back the 1 week off (breast shrinks, looks normal, then gets larger). I love that I haven't had surgery, but just want to do what's best for treating this. Thank you all so much!

      2 months ago
    • carm's Avatar
      carm

      If you want to know what your options are, google the NCCN guidelines. It is free to join and you can follow the algorhythm for breast cancer. These guidelines are what oncologists must refer to when prescribing. Best of luck to you.

      2 months ago
    • jah7010's Avatar
      jah7010

      Thank you very much, Carm. Very valuable information. I can't thank you enough.

      2 months ago

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