• A little survey for the Community

    Asked by GregP_WN on Wednesday, March 2, 2016

    A little survey for the Community

    Are you:
    1) Just diagnosed, not started treatment and have lots of questions
    2) Diagnosed and currently in treatment, learning lots
    3) Finished treatment and getting on with life, and have lots to share with others

    35 Answers from the Community

    35 answers
    • BuckeyeShelby's Avatar

      Finished w/treatment in Jan 2013. Got lots of help here. Trying to pay it forward now.

      almost 5 years ago
    • SandiA's Avatar

      Currently in treatment. On a clinical trial for stage 4 melanoma

      almost 5 years ago
    • BoiseB's Avatar

      Finished treatment and struggling with other issues. I feel I have lots to share. I have had experience with two different cancers.

      almost 5 years ago
    • DoreenLouise's Avatar

      Finished with treatment but not taking the recommended estrogen blocking medication. I learn vast amounts of information.

      almost 5 years ago
    • banditwalker's Avatar

      #3, and willing to share if the question pertains to me and what experiences I have been thru'.

      almost 5 years ago
    • Ejourneys' Avatar

      Finished with active treatment, currently on endocrine therapy to try to prevent recurrence, dealing with collateral damage from treatment (taking blood thinner for port-induced blood clot), still learning and sharing a heckuva lot, not only as a patient but also as a caregiver; living life as best I can.

      almost 5 years ago
    • cam32505's Avatar

      #3 twice. Always learning and sharing.

      almost 5 years ago
    • geekling's Avatar

      Closest to #3.

      Recovery is a process which I may or may not complete in this life.

      My energy level is still in the category of 'more is desired'.

      almost 5 years ago
    • Maddy61's Avatar

      #3 - Fortunately. Working on energy level and alternative ways of doing things because of bad neuropathy in my fingers.

      almost 5 years ago
    • cindylou92's Avatar

      I guess I'm at #2 and have been for almost 5 years. Diagnosed with stage 4 colon cancer at age 37 (female).

      almost 5 years ago
    • meyati's Avatar

      #3-- Just getting a ton of follow up because I'm cancer free of a rare incurable and I had a ton of radiation that wasn't supposed to work.

      almost 5 years ago
    • Michele_55's Avatar

      #2 - Diagnosed with inflammatory breast cancer in January 2016 and just had second round of chemo (chemo is every 21 days). Learning lots and still very new to cancer!

      almost 5 years ago
    • Kez's Avatar

      #2 Just finished chemo but still having Herceptin every 3 weeks through to October. Keen to get started on reconstruction surgery now.

      almost 5 years ago
    • ld_105's Avatar

      3. Getting on with life.

      almost 5 years ago
    • beachbum5817's Avatar

      #3 for me. I am willing to help with anything that anyone is going through that I have already been through or just give a few words of encouragement. I am getting on with life and praying that someday someone can figure out how to cure the pain and numbness in my feet. If not, I will just persevere and enjoy my time with my family and friends.

      almost 5 years ago
    • LiveWithCancer's Avatar

      I am #2. For the rest of my life! (I am always willing to share my experiences, though, and definitely am getting on with life to the fullest extent possible between treatments.)

      almost 5 years ago
    • Judytjab's Avatar

      #3....on estrogen blocking therapy. Getting on with my life and dealing with other problems that have occurred since my diagnosis. I try to help others with encouragement and understanding. So grateful that I am cancer free.

      almost 5 years ago
    • Saok1969's Avatar

      #3 Thank God. Trying to figure out what strange things in my life are cancer/chemo/hysterectomy related and which are just getting old related.

      almost 5 years ago
    • pammyjo's Avatar

      #3; I was a relatively healthy middle aged woman before diagnosis. I now find I've taken a light speed leap into old age with all the aches, pains, pills and dr visits.. Still trying to figure out what my body is still capable of.

      almost 5 years ago
    • HeidiJo's Avatar

      # 3, I have been in remission 6 years now. And I am very happy to give my support to those who need it.

      almost 5 years ago
    • jeanettev's Avatar

      #2 , I am currently at second treatment of a four cycle chemo, Yondelis, This drug was approved Oct.,'15 by the FDA. Surgery was end of Dec, for third recurrrence of leiomyosarcarma since initial diagnosis in 2011.

      almost 5 years ago
    • Bug's Avatar

      #3. I have finished treatment and am trying to get on with life and I'm happy to share any info I can.

      almost 5 years ago
    • Richardc's Avatar

      #3. Finished treatment 7 years ago. Getting on with life. Finding new normal everyday. Paying it forward where I can.

      almost 5 years ago
    • kalindria's Avatar

      I am #3 and love this site for the support, information and resources I gained while going through treatment.

      LOVE YOU GUYS!!!

      almost 5 years ago
    • karen1956's Avatar

      3) Finished treatment and getting on with life, and have lots to share with others - Diagnosed 10 years ago, 02/03/2006. Bilateral Mastectomy on 03/01/2006....TAC chemo, radiation, oophorectomy and endured AI's for 3 1/2 years. Love to help and pay it forward when I can.

      almost 5 years ago
    • Lynne-I-Am's Avatar

      #3 Two years out from chemo. Busy living life. Sharing with others my journey with ovarian cancer on a regular basis.

      almost 5 years ago
    • LiveWithCancer's Avatar

      These are awesome responses. I was at an American Lung Association meeting last night with a friend and fellow advocate who has been in treatment and fighting stage IV for the last 7 years. WhooHoo. I spoke with another friend who has been battling one kind of cancer or another (breast, lung, lung, thyroid, breast, lung, thyroid, lung, lung or something like that) for the last 27 years. She is the brightest spirit in the room and she will tell you she is the luckiest person on earth because she's had such a wonderful life. This she says even while undergoing brutal treatment for a lung tumor that has been unwilling to submit to any treatment plan. (And the best news of all is that the brutality is paying off ... at last the tumor is beginning to shrink significant amounts!!!!!)

      I am so blessed to have met so many late-stage lung cancer survivors and thrivers. Most are still in active treatment of one kind of another but, wherever they live and whatever their treatment, they are out there with smiles on their faces and joy in steps. Many are active with lung cancer advocacy activities and are always somewhere telling their stories, raising awareness, and passing out hope. It brings me such happiness to be around them.

      My mom, who is soon turning 86, accompanies me to some activities, including some of the walks, and she calls us a fraternity or sorority. No one wants to join our particular organization (those surviving cancer), but once here, a lot of us wouldn't trade the experiences for all the money in the world. The people I have met and the opportunities I have been given can't be beat. That includes getting to know and interact with many of you here on WhatNext.

      almost 5 years ago
    • JennyMiller's Avatar

      I am finished treatment and getting on with life. But how about those delayed side effects from chemo and radiation. I call them Flashbacks. I will have periods of thinning hair, sporadic diarrhea, swallowing problems, etc. My Oncologist confirmed that delayed side effects can show up years down the road. I am still on Femara which causes some bone pain. I will be reaching my 5 year anniversary in November and yes --- I will celebrate!!!!

      almost 5 years ago
    • sarasmash's Avatar

      Number 3. But, am still mentally recovering.

      over 4 years ago
    • Kebohs' Avatar

      #3 and still recovering. Love this community! Helping hands here at all times and paying forward when I can contribute to the already great information and encouragement here❤️

      over 4 years ago
    • Danfan714's Avatar

      Almost 3 years post-op, almost 4 years from last treatment. The side effects and operations have caused me to retire from my job of 35 years. I bring a lot of post-it notes with me wherever I go and make sure I have my GPS. My memory is shot and I have constant pain.
      I now travel with my wife whenever she goes on business. Getting on with my life, it's very different yet so much better than the original prognosis. I have several friends that I am assisting with their journeys. Makes me feel as if I can still make a difference. I share experiences and answer questions for whomever I can.
      Livin' Life and doing fine!

      over 4 years ago
    • Sblackshear's Avatar

      Completed treatments Oct. 2105. Declared NED (no evidence of disease) Feb 2016. Next appt. May 5, 2016. Feeling good & slowly regaining strength & hair. Paying it forward with National Ovarian Cancer Coalition DFW, traveling & enjoying family time.

      over 4 years ago
    • bnshutts' Avatar

      Currently in treatment, halfway through!

      over 4 years ago
    • Gabba's Avatar

      # 3... Here to help in any way I can!

      over 4 years ago
    • TonyaH's Avatar

      Diagnosed 3/20/15 with Adenoid Cystic Carcinoma of my ear canal - Stage III. Very rare - so much so it took until June to find someone to remove the tumor. Had 38 sessions of intensive proton therapy which was completed Nov 2015. Post treatment scans show NED. Right now I struggle with the side effects, transitioning back to work, & accepting the 'new' me.

      over 4 years ago

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