• Advice?

    Asked by Coping15 on Sunday, November 16, 2014


    Hey I'm 17 and I'm looking for some positive advice. I was diagnosed just a few days ago with having a grade 3 astrocytoma in my hypothalamus. I will soon be undergoing treatment and if you have any advice please do give.

    13 Answers from the Community

    13 answers
    • IronMom45's Avatar

      Sorry for what brings you to this site. But here you will find great advice to get you through what others have found helps. Hoping you have great support at home and as you know more what's is coming up in treatment everyone will give you answers to help. Rest when you need as that's difficult to accept if used to busy life. Reach out to others like you are doing. Don't want to give you a bunch of treatment advice until know what you need but for now, one day at a time and know others care here.

      over 6 years ago
    • kkcomm's Avatar

      So sorry for the diagnosis but glad you found us. I don't have your type of cancer so I will let others here answer the more technical stuff. Just know you can get on this site and say anything. We will do our best to help. Right now you need to take off the "I'm scared" gloves and put on your fight gloves. You CAN do this and we on this site will do all we can to help.

      over 6 years ago
    • GregP_WN's Avatar

      Thanks for posting, and I'm sorry too that you have had to find us here. There are several brain cancer patients on the site that may have some specific information for you. We have all been through treatment for different types of cancer. A lot of the procedures are similar. Let us know what you would like to know and we are happy to help. I wish you the best!

      over 6 years ago
    • Phoenix76's Avatar

      Like others have said, I'm sorry that you got that diagnosis. My advice is:

      1. Accept help from everyone that you can; gather people around you who care about you for support.
      2. Give yourself slack - you're going to have better days, and days where you feel really down. You're going to go through a lot of emotions - and it's all normal!
      3. Focus on doing things that you love to do, and try out new things that you might like!
      4. Help your body fight by eating great foods nutritionally, and exercise regularly.
      5. Try to stay in the present, "one step at a time"; if you get on the hamster wheel of "What if...?", you'll drive yourself nuts.
      6. Ask your doctors questions about anything that you're uncertain about, procedures, or any symptoms that concern you. Speak up and don't be intimidated.
      7. Don't sweat the small stuff!
      8. Never give up!!!


      over 6 years ago
    • barryboomer's Avatar

      Chris is a 36 year old 10 year survivor of Colon Cancer and is worth check him out. He does a Great video here for new patients and his facebook page is great also. Check out the New Book Radical Remission also. Sorry BUT cancer seems to hit all ages....(I'm 69 UGH) Good Luck and do your Research on ALL aspects of cancer and it will keep you busy for awhile and you'll find some interesting information out there.


      over 6 years ago
    • elissa5's Avatar

      Great information on here....I agree with Phoenix76 and barryboomer...Look into juicing, wheat grass, and cannabis oil. I have seen 3 different types of Brain Cancer treated by cannabis oil. some Doctors are now willing to use it with there treatment plans..

      over 6 years ago
    • Fusionera's Avatar
      Fusionera (Best Answer!)

      Hi Coping,

      My heart goes out to you. You are way too young to have to deal with something like this. I have been battling my Grade 3 for over 19 years now. One thing I have always done is to completely disregard statistics for my illness past a certain point because my 19+ year survival is way beyond any statistical model. LOL

      Have you had surgery or will you be doing so? What will your treatment regimen entail? I f you take Temodar, be sure to have a good anti-nausea med such as Zofran. If that is not strong enough, ask your doctor for something stronger like Kytril. You want to be as comfortable as possible when taking chemo drugs. That said, many pain meds and anti-nausea meds produce awful constipation. Get extra fiber into your diet, don't be afraid to use laxatives, and stay hydrated.

      If you have any spiritual beliefs or attend a church or synagogue, lean on those friends for help. My church family has been beyond amazing to me.

      Do the things you enjoy most when you feel physically up to it. People around you love you and want to help - I also think it makes them feel like they have some control over a seemingly uncontrollable situation.

      Don't beat yourself up if you're not feeling well enough to go out and do things. Rest is extremely important, too.

      Given your age, I am guessing that you are a junior or senior in high school. Are your teachers aware yet of your illness and pending treatment? I'm sure they will be very willing to work with you around your treatment schedule. Don't be afraid to ask for help.


      over 6 years ago
    • HeidiJo's Avatar

      My best advice to you is to ask a lot of questions, and post on here when you have a specific question, or want to vent. we are an enormous support system!

      over 6 years ago
    • BoiseB's Avatar

      Get in touch with the LIVESTRONG Foundation, They publish a guide book and offer programs for cancer survivors (yes you are a survivor) especially young people. You can get the guide book at this site
      I believe that in our area they offer exercise programs at the YMCA and in the past they have offered a summer camp.

      over 6 years ago
    • Fusionera's Avatar

      One more thing: have someone go with you to be your advocate (one of your parents, perhaps) and write down a list of questions ahead of time. It will help keep the stress down at your appointment so that you don't have to try to recall things from memory so much. Having someone else with you is a great thing, not only for emotional support, but also an extra pair of eyes and ears to ask more questions or gather information.

      over 6 years ago
    • EmilyP's Avatar

      I know it's easier said than done - but try not to think about it too much (or read too much!)
      I've been lucky enough to live a pretty 'normal' life since my diagnosis and I hope you can too!
      In saying that, remember that everyone has a different experience.

      over 6 years ago
    • barryboomer's Avatar

      Take a small recording device when you go to Docs Appointment and ask if it was ok to record the conversation....Very Good to Do.

      over 6 years ago
    • princess123's Avatar

      My doctor says she can't do radiation so she's doing nothing. I went for second opinion and all she did was increase steriods. Is this it?

      over 6 years ago

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