• After having breast cancer I had the genetic testing done it was inconclusive for the genes but I was told there was a mutation somewhere.

    Asked by debi11 on Wednesday, December 12, 2012

    After having breast cancer I had the genetic testing done it was inconclusive for the genes but I was told there was a mutation somewhere.

    I have 5 sisters, I would like to be retested as I heard there is different testing now. Can anyone tell me if they have had this done and if their insurance covered it?

    5 Answers from the Community

    5 answers
    • RachaelC@StF's Avatar
      RachaelC@StF Community Outreach Coordinator 317-528-7794 (Best Answer!)

      Hi debi11,
      Please forgive me- I'm about to play 20 questions here, but it will help me give better advice. Who told you there was a mutation? How long has it been since you had genetic testing? Does breast cancer run in your family?
      Genetic testing has changed and is more on the forefront of the medical field than ever before. If breast cancer has touched other women in your family as well as you, that puts your sisters at a higher risk. It is then that genetic resting is recommended. Do you have access to a genetic counselor somewhere close to you? They would be able to explain this more thoroughly and do an assesment as to whether they think you need to be tested.
      As far as insurance goes, I know off the top of my head that medicare will not pay for genetic testing. Most other insurances do, you'll just have to check with your provider before scheduling the test. I also know that the genetic testing company Myriad has a payment plan in case your insurance doesn't cover the whole test. Website is :
      Hope this helps, and looking forward to your answers!

      over 5 years ago
    • Nellie's Avatar

      My insurance would not cover it, reason was the cutoff age is 45 and I'm 47 and no known family members who have had breast cancer. My oncologist has sent an appeal letter to the insurance company. I haven't heard anything yet. I too wanted it done because I have a sister, daughter and nieces. I am referring to the BRCA test.

      over 5 years ago
    • Nancebeth's Avatar

      My insurance didn't cover it either but I got it anyway as I had 3 of the 4 risk factors. It was negative for the gene mutation and the insurance ended up covering it anyway, as my doctor wrote n amazing letter to them.

      over 5 years ago
    • barbaraanne's Avatar

      Since I was diagnosed w/Triple Negative breast cancer & just turned 50, it was highly recommended I be tested for the gene mutation. I had the comprehensive BRAC Analysis testing along w/BRAC analysis large rearrangement (BART) testing. I was told they may need to do extra testing if it was inconclusive. Did they do the (BART) testing for you? These tests are very expensive, but you need to way the pros & cons. I was told I had to remove my breasts & ovaries if the testing was positive. I was so grateful that it was negative for the mutation, because I was not ready to go down the road, if I didn't have to. The company that performs the test is Myriad Genetics Lab Inc, perhaps they can assist you. I was fortunate that my insurance paid, I really can't believe they didn't even question it, they question every thing else... You should also speak w/someone at your cancer ctr, I had a Nurse navigator who was very helpful with everything. Good luck to you..Barb

      over 5 years ago
    • SueRae1's Avatar

      I was lucky, my insurance paid for BRACA testing including all sub-types, which came back negative. I expect the results of a BreastNext Panel in the next few weeks - it is checking for mutations in 14 sets of gene linked to Breast and other cancers - I was told I would get one of 3 results for each gene tested. 1)Positive 2)Negative - no known mutation based on current information 3)inconclusive - the gene is not "negative" but at this point they don't know if the difference found is a normal or a variation or a cancer causing mutation. Perhaps that what your doctor meant my "inconclusive" speak with her and/or a geneticists to get clarity.

      over 5 years ago

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