• After radical surgery,cheom, 35 radiation treatments (that all seemed to put me close to death) has anyone had a hysterectomy.

    Asked by AQHAgirl on Sunday, September 16, 2012

    After radical surgery,cheom, 35 radiation treatments (that all seemed to put me close to death) has anyone had a hysterectomy.

    hysterectomy due to er possitive. To stop estrogen.
    If so was it hard? I am in a later stage of breast cancer and it is very hard. Should I have one more surgery?

    7 Answers from the Community

    7 answers
    • LadyM's Avatar

      I was diagnosed with ER positive as well. My chemo put me in chemical menopause and Femara has kept me there. We have had similiar treatment protocols and I know you are exhausted. If your doctor recommends the hysterectomy, consider it. Did you get other options? I am checked regularly for my estrogen levels and Femara has worked. I also try to avoid soy and other estrogen "producing" supplements/foods. Take care and good luck my friend. It does get better, promise.

      about 4 years ago
    • ruthieq's Avatar

      I would just take the Aromatase inhibitors (pills) instead. You don't have to have a hyst (actually to stop hormones you would need an oopherectomy to take the ovaries) to stop hormones. The AIs are Femara, aromasin and arimidex. Femara and aromasin are generic now and cost less. If you are still recovering from chemo and /or rads I would hold off on any surgery until you feel better, and take the AI until then. There is always time to decide on surgery... no hurry.

      I was ER PR positive and had chemo, bilateral mastectomy without reconstruction, then rads, then Femara. Femara worked the best for me, re side effects. Surgery doesn't stop all the hormones so you would have to take the AIs anyway. I would hold off surgery for now and recover. Hugs!

      about 4 years ago
    • lilnursey's Avatar

      I had stage 3 breast cancer ER positive. had mastectomy, chemo and radiation 1 year after initial diagnosis had hysterectomy. had hysterectomy because I figured was going to be put into menopause anyways might as remove it all to eliminate chance to of cervical cancer.I would let yourself heal and then consider all your options ( if you decide to have surgery see if dr can do it laproscopic I was up and around and left on vacation 2 days later little sore but okay

      about 4 years ago
    • KimmieC's Avatar

      I had bilat mastectomy, chemo, radiation, and a month after my radiation I had a hysterectomy with oophrectomy (ovaries removed) but at the same time I had a bladder and rectum repair. The surgery was a doozie, but more so because of the rectal issues. I was actually given the choice of just having the ovaries out, but neither of my doctors WANTED me to take that route. If I remember correctly, (and there is a good chance I don't, ha!), they encouraged me to go ahead with "the works" because I am also BRCA positive, and the gene mutation made it more likely for other cancers as well. I stopped having a cycle during chemo, but they said they still would not give me Femara if I kept the ovaries. I had to have the rectal surgery anyway, so I went with getting it all over with. I was VERY relieved once I did recover, to have it all over with, but looking back, I might have waited another few weeks or about 3 more months, just to recover a little more, but at the time I just wanted all of it over with so I could move on. I remember thinking how exhausted I was , and I still struggle with fatigue even now. My best advice is, do what YOU feel you can handle. Tell your doctor how you feel, see if waiting a while is an option, if that is what you think will work best for you. I was never given the option of having my hormone levels checked. Maybe it was because I was also pr positive, or because I was Stage 3, or because I was BRCA positive, or all of the above, who knows? But that might be an option for you. Whatever you and your doctors decide, best wishes and God's blessings to you!

      about 4 years ago
    • Laurie's Avatar

      I had ovaries/ hysterectomy after recurrance while on tamoxifen. Can't have ovaries functioning to do AIs. I had abdominal endoscopic with vaginal removal of organs done with DaVinci robot system. It was a piece of cake! I was very happily surprised at the lack of pain (except the headache that nite cuz you are place practically upside down to be able to see better in surgery). Way way way different from the mastectomies. With endoscopic/ vaginal (with or without DaVinci), pain is less and recovery time is less. I didn't feel any different than pre-surgery (I was in perimenopause with regular periods), altho that might not hold true for everyone.

      about 4 years ago
    • ErinJ's Avatar

      I had bilat mastectomy, chemo, radiation, and then I had a hysterectomy with oophrectomy (ovaries removed) because I was not having more children, ER positive and have the BRCA gene. I chose to have mine done at the same time as my reconstruction surgery because I was a working mom with two young children and did not want two separate hospital stays and recoveries. Doctors were not thrilled but agreed and I am glad I did it Recovery was no problem at all, especially after everything else I had been through. My lingering effect, since I can't take hormone replacements, is weight gain. I can't lose the weight around the middle! But, I am healthy, active and here to raise my children- so muffin top it is!

      about 4 years ago
    • Bulldogdarc's Avatar

      I had a hysterectomy but I didn't go thru radiation. I have had double mascetomy ( but one @ a time ) attempted reconstruction, which was infected for 6 months so I had the plastic surgeon take out the expander. I had the hysterectomy due to BRCAA 1 positive. My original diagnosis was 11/10 and I am still in pain & tired. I feel for you, it is a hard decision. My hysterectomy was an easy surgery (comparibly speaking- laparoscopic ). Are you strong enough to go thru another surgery ?

      about 4 years ago

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