• Alternative health survivors out there?

    Asked by IronMom45 on Friday, September 18, 2015

    Alternative health survivors out there?

    Any one do hemp oil or any other way of non traditional treatment for cancer and in remission?
    My cancer is back just 6 months after surgery, chemo and radiation. So I'm Wondering.

    64 Answers from the Community

    64 answers
    • banditwalker's Avatar
      banditwalker

      I do complimentary not alternative. I don't trust myself to be knowledgeable enough to not do traditional medicine. So sorry to hear about this next page in your life. Please keep us posted.

      almost 4 years ago
    • geekling's Avatar
      geekling

      Yes but not likely to be on this site.

      I live less than 50 miles from Hippocrates Health Institute. A friend named Pam survived lung cancer "alternatively". She had a LOT of support..it took about 1 1/2 years for doctors to declare her a remission case.

      My friend Leslie, an MD herself, survived 4 years past her prognosis using raw and living food alone. Her tumor shrunk down quickly (4 months) and her energy returned. She had a good 4 years until she allowed a biopsy (she never stopped looking for a magic bullet). The biopsy was botched and the cancer spread everywhere. She was gone in 5 months.

      I also know a woman who went to Optimum Wellness (campus in San Diego & Austin)and now lives in Atlanta. Chemotherapy caused her to lose her sense of smell. She stopped it and went alternative. She hasnt ever looked back.

      There is a group in Palm Beach County which is run by a woman who no longer has breast cancer. She now runs an organization to help the emotionslly disadvantaged. I met her at Hippocrates.

      Except for Dr. Leslie, I might be able to put you in touch with any of these folks. Would take a little time but doable.

      Brenda Cobb runs Living Light Institute in Atlanta and says she got rid of breast cancer alternatively. I kept myself alive for 13 years without knowing what was wrong because the docs were all so sure the tumor was a wart.

      I've met others but these mentioned folks are/were friends of mine.

      And let us not forget barryboomer either. He thinks his tumors are shrinking. He is using food alone.

      Best wishes

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am so sorry to read this news. I was hoping not.

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      Yes I've followed Barry since I joined what next last year. I also think of our many survivors whom have used chemo and radiation like Greg x 3 and still here. Just don't know.

      almost 4 years ago
    • geekling's Avatar
      geekling

      Have you watched the Rick Simmons movies on youtube? His success in keeping his supposedly terminal friends alive and talking about it is, I believe, a major factor in the continuing legalization of marijuana.

      I've a gf in Ca who is figuring it all out. The issue is now confused regarding pot components. Sinpson did not think about any if that. He suggested buying the best bits a person could. So my gf is experimenting as to whether to use Rick Simpson goo, called Phoenix Tears, or high cannibinoid oil or stuff high in thc. She has hiv & pulmonary hypertension. She is tired of taking antidepressants which have side effects.

      I joined a facebook group using pot. To date, about a year, 5 people have remissed and one died.
      Idont actually know any details. In my experience, the oncologist in a non legal State, didnt much care about pot use but covered his ears and said to do as the patient thought best but to, please, not tell him about it.

      There is so much to look at. Guanabana has a protocol. AHCC can be effective. Most other than medical ways do not interfere with each other. Soursop is famous for its blessings. So you can swallow fermented mushrooms, pot goo, Chaga extract and so much more without a conflict. She left choices and chances for just about everybody. She being Mom Nature.

      Where were you attended?

      Best wishes

      almost 4 years ago
    • BoiseB's Avatar
      BoiseB

      I have used do complimentary not alternative medicine for all my ills so far it has worked well for cancer. Other ills not so much. My brother is a Nurse Practitioner and is very knowledgeable on the subject. I have been a follower of Dr. Andrew Weil, the ultimate spokesman for integrative, holistic medicine Here is his web page http://www.drweil.com/ He has written many books on healthy living unfortunately healthy living is not cheap (make that affordable for us low-income types)

      almost 4 years ago
    • cam32505's Avatar
      cam32505

      I'm sorry that you had such a short remission. I know you're looking for alternatives, but have you also consider clinical trials? I know there must be something going for gynecological cancers, after all it is ovarian cancer awareness month.

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      Essiac tea anyone? Just started that 3 days ago at the advice of my gyn not onc and maybe I'm just wishing but my right side feeling less large. Maybe wishful thinking but promised my gyn I would try it while figuring out my next step.

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      Can I talked to my onc about that not much happening for uterine despite the month. I had info last year now I can't find it but some my dx on Wednesday been not stop here. So going to try again soon to look for immunology. The usual answer is not for uterine. Sick of that answer like we die any differently oh wait yeah we do of neglect.

      almost 4 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Ya know, wishful thinking is not necessarily a bad thing. It's like a biofeedback thing. I know w/some illnesses, drs try to get kids to think in terms of video games -- blowing up the bad cells, kinda thing. While I wouldn't put my whole faith in something like that, it can't hurt to do that in addition to other things... I'm so sorry you are facing this again. Hugs!

      almost 4 years ago
    • Robyn721's Avatar
      Robyn721

      I have been using Colorado Tears since my diagnosis. Ingested 5 grams between the diagnosis and surgery. Was not able to do any more oil for about a month due to two surgeries and an open wound. (BTW, there is a product called Juven, a nutritional supplement, that healed my wound much faster, in about half the time, according to my home health nurse.)
      Continued with the oil and have now ingested a total of 100 grams. My scans prior to starting chemo were clear. My scans mid chemo are clear. I feel great and have tolerated chemo very well. Doc says he is close to saying I am cured - waiting till my Chemo is complete and the next scans are clear. I had 3 different gyn cancers all diagnosed within 2 months, two of which spread like wildfire, Clear cell ovarian and USPC.
      I also do acupuncture, massage and Reiki. Some meditation. Folks are amazed with my attitude and energy. The oil gives you a sense of well being. Contrary to popular belief, you do not have to be high all the time to use the oil. My amazing naturopath suggested Acetyl L Carnitine which helped both the Chemo fog and the high. He has added other supplements that have helped me sleep, have energy, etc. This has allowed me to work the entire time! Mind you, I am not at full capacity and there is some fatigue. Very grateful to a wonderful employer and working from home.
      I firmly believe that your attitude and anticipated outcomes positively impact your health. Yes the stats for gyn cancers suck. BUT, they are old, do not include me and thus, in my mind, did not dictate my future. My understanding of the oil is that it helps guide the chemo to the cancer cells and helps protect your health cells. This is my vision during chemo. I stand in Wonder Woman pose prior to each chemo, use edibles and smoke to prevent the nausea post. My appetite has stayed in tact and I have been able to maintain weight. Also, at chemo #5 of 6, my blood work is actually improving and no neulasta needed! My plan is to continue ingesting 30 grams a month thru October and the post chemo scan. Then drop to a maintenance dose for two years when I am at most risk for recurrence, then drop to a low lifetime maintenance dose. While it has not been cheap, it is better than the alternative!!

      There is a patient at the pharmacy I use with Leukemia who had 24 rounds of chemo without success and lost 50 lbs. Was not able to leave his house. Started the oil and in a month had gained 20 lbs, was able to enjoy life. Now his blood shows no signs of Leukemia. He also has liver cancer and while that has not cleared, it is improved.
      While each persons response may be different, I Hope sharing my experience is helpful.

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Please consider clinical trial. You can get out at any time if you don't like anything about it.

      Consider second opinion, too. I met some brilliant minds this week in DC ... including the head of the cancer center at MSK ... and University of Michigan ... there is lots of HOPE out there.

      I agree that if it were me (which it is in many ways except I haven't had any remission time), I would go with traditional treatment (clinical trial), supported by complimentary (as approved by my doctor and not by individuals) methods, ie, healthy eating and supplements (maybe).

      Hoping and praying for the best, whatever route you decide to take.

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I agree at lot with Robyn721 about attitude. I was sooooo lucky to spend 2 days with the heads of cancer clinics across the US ... even Dr Jose Baselga, Physician in Chief at Memorial Sloan Kettering Cancer Center ... and I was talking to a group of them prior to dinner the other night. I told them I was aware that some research says attitude makes no difference, but that I am not so sure I agree. (At the least it impacts the life you have while alive). These top brains in the US agreed with me that attitude is an intangible ... and they DO believe that attitude affects response.

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      Hi all. I have 2nd opinion next week. Have holistic dr week after that he does acupuncture etc and looking into the oil. I like the idea of blending the oil use with the chemo. I've considered utilizing the holistic with chemo under the care of both practioners. They all work out of my hospital so onc and holistic can all see what I'm doing with whom. Appreciate all here. I'm optimistic and ready to explore this with an open mind. Thank you!!

      almost 4 years ago
    • banditwalker's Avatar
      banditwalker

      @Robyn721, I had done some research into the Colorado Tears you mention, but you have to get it from the store as they do not ship. Can I ask if there is something about delivery that I don't know about?

      almost 4 years ago
    • geekling's Avatar
      geekling

      Essiac tea is famous but I dont know that anyone has (since Rene died) gotten well from it alone.
      It cant hurt and likely does help to shrink tumors. Robyn721 is combining therapies whichvis the wonderful thing about alternatives. They do not fight each other.

      Relief from pain is a marvelous way to allow a body to heal. The magic amount for the fb cannibis group, as I recall and now that Robyn721 mentions it, is 60 grams per month. If you are on fb, check it out.

      I dont see how torture is so good for a person so please do what ever you can and what seems reasonable to help yourself.

      Best wishes

      almost 4 years ago
    • Robyn721's Avatar
      Robyn721

      Banditwalker, you have to be a Colorado resident and pick it up at the pharmacy. I immediately moved to Colorado to have access. I am fortunate that I was able to do so. There is only one pharmacy that I am aware of in Colorado that has the tears and regulated by the state. As I understand it, they provide oil for a pediatric group in the state. Caregivers for Life is the pharmacy in Denver.

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      Nobody really knows anything including our Oncologists or Researchers. They only DO KNOW that the Don't Know why we have cancer or how to cure it....sorry but that is what we have NOW at this time in 2015....

      Nobody really knows anything about anything. Is there a God....is there wind when we can't see it....We have cells and we can't see them....lol Is the sky really blue or is it just how it looks to us. SO.....I do know this. God designed an amazing body for our Soul....it is for the most part SELF Healing....cut yourself and WOW.....it clots and a scab is formed and if we keep it covered and clean it will completely heal. HOW did that happen without our participation? Because it is IN THE Design......If there are two million man armies facing each other BUT one has planes with bombs and Tanks WHO do you think is going to win. IF we have an immune system and body that has been malnourished for many years HOW well will it work....It will start to break down and lose energy. Many illnesses we can't stop BUT Many we can. Our trillions of cells are not farmers or hunters as they have to WAIT for it's meal everyday....It's like our dog....if we don't feed them they won't eat....SO.....WHAT we feed the cells daily must have a bearing on how strong and vibrant they are. Each cell is a world unto itself but needs constant nutrition. IF we feed it a donut rather than an apple IT will survive but with less nutrition and after awhile as the cells divide over time the new cells are not healthy and when they divide the next generation are less healthy and on and on and on it goes. What I believe is IF we start to Feed our cells very nutritious food than over time their dividing cells will get healthier and healthier and start to fix things in the body that it was not able to before. I notice how much more I can get done when I'm energetic of mind and body.

      I could go on but I think you see the story.

      The mental part is probably just as important but may even be harder to fix. We are stuck in our thoughts all day long. Our cells actually respond to those thoughts in either positive or negative ways.....we are ALL connected to our thoughts and the physics of Nutrition. We CAN control what we think and what we eat.....AND that is a LOT of Power.....It took a long time to get cancer and probably will take a long time to get better IF we Can......Belief is the Key to everything and that is hard because we believe that cancer is awful and mostly out of our control and the standard is to try and poison it, burn it or cut it away. BUT the conundrum is that by doing that it kicks our cells down even farther. SO to me it's either one of the other. I chose healing my body through nutrition and changes in my belief system. Actually it would have been easier emotionally to just put all my faith in an Oncologist and their treatments. That way I wouldn't have any responsibility to try and make myself heal...there IS an appeal there.....just trust the experts and get on the conveyor belt and just waddle along and HOPE for the best....

      One more interesting thing about me.....and I do NOT know if I'm better or what....I'm just doing it differently.....I had many large nodes on the right side of my neck as well as the other side and in my groin and that's why I went to a surgeon and had a biopsy.....a year into my protocol the ones on my groin and right side of my neck were sticking out and making me very unhappy. About 8 months ago I went to the Surgeon who took me on as a GP and he was very concerned....I could see the fear in his eyes and it freaked me out and I went home very depressed.....For the many past months I was obsessed on these nodes and touched them all day and looked at them and it just ruined everyday. One day I decided I had enough.....I took the side mirror and covered it up. I sat on my freaking hands all day....I NEVER touched or thought about them before sleep anymore. For the most part I just let it go and lived my life.....A funny thing happened about a month later ( I was planning not to be here much longer ) my wife said the lumps on my neck seemed smaller....yeah right....lol....Went on with my life STILL ignoring the nodes including three large ones in my left groin that I HATED......about a week later I got the nerve to look at the side mirror and DID notice the nodes looked smaller....THEN I touched a few nasty ones and they felt slightly softer.....THEN I started to notice the nodes in my groin felt a LITTLE Softer but couldn't be sure but was hopeful.....After awhile they were all getting softer and looked smaller and I finally told my wife AT Least for some of the large ugly ones I can feel THEY seemed like something was happening.....Every week I would check them and Amazingly one by one started to go down and down and were flattening out.......SO NOW I still have a nasty one behind my neck but no larger than two years ago BUT ALL the large ones on both sides of my neck and in the clavicle are either gone or small.....The ones in my Groin are gone unless I press down hard and can still feel them inside.....I still can feel one deep under my left arm and who knows about my spleen or abdomen...

      NONE of this means a hoot BUT IT is kind of amazing to watch those nodes go down. Maybe it's part of my type of indolent NHL or maybe what I'm doing is helping....I never took any treatments at all.....SO I choose to see the glass half full not half empty and am happy everyday I wake up. I have NO Symptoms from the NHL and have a lot of energy....Have very depressing days and up days and sometimes I get really down thinking about it all. A new pain or a small new node or whatever is like a roller coaster ride BUT That is what Planet Earth is all about. I call it Boot Camp for Heaven and we ALL have our crosses to bear and then one day we are GONE.....Dust in the Wind and where we go nobody REALLY Knows for sure.

      SO that is how I see the Natural healing protocol against the Chemo or Radiation or doing both. I believe it's either or.......many who poison and burn their cells and DO ALL the natural things I BELIEVE are behind the ape ball because killing at the same time as healing is an Oxymoron.....It takes guts to do it the mainstream way and guts to do it my way BUT it takes guts to be a Citizen on Planet Earth and WE should be thankful for this wonderful opportunity to be here for however long it is. God Bless...B

      almost 4 years ago
    • Carool's Avatar
      Carool

      Barry, isn't it true that for your type of (rare) cancer, the usual medical protocol is to watch and wait until and unless the lymphoma becomes aggressive? It's not as if you have been offered many medical treatment methods that you have chosen to refuse. It gets annoying (to say the least) to me when you keep representing your situation as being one where you've chosen to (bravely) do the so-called alternate route, when in fact there IS no real alternate standard-medical route. Your cancer is slow-growing - I'm glad about that - but for many of us who HAD standard medical treatments to choose, and whose cancers are not indolent, we wisely seek any and every possible scientifically-vetted treatments, including clinical trials, before (or in addition to) going the alternative route.

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hear-hear, Carool!!!!!! I hope and pray we are all mostly smart enough to realize his beliefs are scary, but i worry for that one newbie who might not think so, to their own peril. I didn't read the above diatribe but i have read plenty enough of his posts to know in general what it says.

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      Sometimes indolent cancers are watch and wait but more and more they are using treatment. ALL I can say is in two years 99% of my lymph nodes are gone and For that I'm optimistic. AND Carol if you are sick and tired of hearing me too bad. I had huge nodes and they're are in remission SO they aren't growing slow they are gone...B

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      I have just as much right to say what I'm doing and offering SOME hope to some that are looking for some alternatives. WHY I annoy some is beyond me but like I said...too bad.

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      The title of this tread was Alternative Health Survivors out there?
      SO I said SO FAR I am......what's wrong with what I said.
      Indolent means slow growing not receding so WHY Shouldn't I be optimistic.
      Maybe since I had time My Body MAY be responding to what I'm doing.
      Maybe by body is healing......why is that annoying?
      I'm proud of what I'm doing and answering the question of the Title above.
      Since I'm the only one on this site doing this and it's been 2 years I have some anecdotal evidence of some Optimism and Hope......WOW....can't figure some people out.

      almost 4 years ago
    • geekling's Avatar
      geekling

      I don't understand. What is wrong with some of you that you must tear others down? None if us know what is or isnt wise. We each have our own belief systems but if yours can only be supported by tearing soneone else's apart, it isnt so very strong, is it?

      @Carool & @Livewith if you are happy with what you are doing, fantastic. If the only way you can be sure of yourselves is make sure there are no other options, you might wish to rethink your ideas. Try reading a book by Jonathan Swift called "Gulliver's Travels". Pay special attention to the viyage to Lilliput where two kingdoms are at war over whether to crack a boiled egg from the round side or the pointy side. Attacking barryboomer for his choice is exactly like a small minded Lilliputian War game.

      Others on this site with a similar diagnosis to boomer are going through chemotherapy. Any fool who thinks that the best way to treat cancer is to watch and wait simoly prooves that the fool has no idea what to do. If you are sick you need to be proactive even with such a thing as a common cold, no one watches and waits. Hot soup and best rest is proactive. It just isnt costly and doesnt require some sort of expert to watch and wait.

      I don't understand why you need to write and be so small minded and meanly.

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      All I was doing was answering the question posted above....lol

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @geekling ... thanks so much for taking the time to give Carool and me the benefit of your brilliance. (I admit I didn't read past seeing my name ... but I am just awed that you took the time to write.)

      almost 4 years ago
    • Carool's Avatar
      Carool

      Geekling, your brilliance was so bright I had to lather on sunscreen. Glad you like Jonathan Swift! I always suggest his book to someone seeking a good read (btw, he's a cousin of mine, many times removed).

      I wasn't being mean. My "belief system," as you term it, is supported by the latest medical science. "Alternative treatment" is supported only by the hopes and fears of non-medical people - a very rickity support. I know you and I and others - and Barry - have argued about this before. I've tried to keep out of it recently. Once in awhile, though, my gag slips, and the objectionable (to some) opinion escapes.

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      We just don't have to get personal. The question of this thread was anybody doing anything alternative and how are they doing....That's what I answered so I don't see the problem. Just telling my story as we ALL have different Stories and Journey's. Thanks Geekling for the support as it's pretty lonely out here on the ledge.

      almost 4 years ago
    • Carool's Avatar
      Carool

      Barry, please stop with the drama queen routine ("drama king"?). IronMom45 asked about alternative treatments, and I, too, said what I think about that. Since there are no controlled studies of alternative treatments (from what I know), there's no accurate way to tell if those survivors who use those methods are surviving because of those methods or for other reasons. And how long they end up living remains to be seen. And there is usually a tiny percentage of people with almost any dire diagnosis who survive even without treatment of any kind (from what I know).

      And Barry, look around that ledge you are clinging to and you'll see lots of others - not on this site but on other sites catering to those who believe what you do. I hope you and Geekling and all those others are right! Not right about conventional medical science, but right that there are many additional solutions to helping people with cancers.

      And some people who posted here recommended to IronMom45 that she look into clinical trials and complimentary treatments. Cover all bases, as long as medical science is included.

      almost 4 years ago
    • Carool's Avatar
      Carool

      IronMom45, I, too, am sorry your cancer is back , and I'm glad you are combining two modes of treatment. I wish you the best.

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      Hi all interesting reads. I'm not sure what I'm doing until after I have finished seeing all the drs and reading up. I appreciate all whom have answered. I asked the queastion to see if anyone could just do the alternatives and really be healed because my relatives tell me this cause they read stuff but do they really know anyone? But it's difficult to say one way or another what would work for one person over the other for each person doesn't have the exact cancer type or response. This whole cancer issue just doesn't make sense. Thanks all.

      almost 4 years ago
    • gonewest's Avatar
      gonewest

      http://www.simmsmanncenter.ucla.edu/index.php/center_events/medicinal-marijuana-cancer-expert-panel/

      Dear Iron Mom, Here's a link to fantastic UCLA presentation regarding cannabis trials. I am so sad to hear you are going through this. So am I and it just stinks. Best.

      almost 4 years ago
    • CAS1's Avatar
      CAS1

      Iron Mom you are smart so I know you will make the right decision. I am most certain anyone with Lung Cancer does not survive by doing nothing for 1 1/2 years. Impossible. Unless its BAC which is an indolent lung cancer in many but not all.

      Do not even consider stories of how someone knew someone else who survived by doing this or that. It's all hear say and indeed dangerous. Conventional treatment has saved the life of 10 million people in the USA alone.

      There is NO DATA to confirm any benefit from alternative treatments. This is not to say that they won't make you feel better during treatments.

      Geekling you have personally insulted me on several occasions and your rants and claims are outrageous and dangerous. so please don"t even try and play the victim now. The ridiculous claims that you developed anal cancer from mold in your attic..IMPOSSIBLE and a FLAT OUT LIE. You hurt others with this fabrication and unproven claims. Your constant hatred of this country and every process in it has really gotten under my skin. Why? because nothing is stopping you from taking your grass mat, hoochie herbs and back pack and going elsewhere. Don't let the door hit you on the way out.

      These third person claims of people being cured are not fair to anyone fighting for their lives from cancer. Its WRONG and CRUEL.

      Barry you need check what you say with only your personal experience. That is the only fair thing to say. You have no right or knowledge of the research process for drug development therefore you have no right to scare people in any way with false claims and accusations.

      For anyone to put out there that people should ignore traditional treatments is so awful. People have the high burden of selecting treatments, are in PTSD, and are so confused as it is. Its cruel, it's wrong, its dangerous and it might even be illegal.

      There is no conspiracy by the medical establishment. These medical professionals have devoted their lives to help find the cure..More sacrifice that all of the NAY SAYERS IN THE WORLD COMBINED WOULD NOT TOUCH EVEN 20 % OF THE FANTASTIC MINDS.

      Clinical trials are a real solution for you. And you can still be put into remission and that is what i am hoping for. Remember to set up a google search on your cancer. Remember people come from all over the World to the USA for treatments..why/ because we have the best, best best cancer treatments in the WORLD..I trust, admire and am so grateful to be in this country with the resources we have. I urge you to put your trust in whoever you select as your provider

      Don't hesitate to have 3 and 4 additional opinions from the top name cancer centers. If I can help you in anyway find contacts at the cancer centers I will do every thing i can to help you.

      If anyone can beat this its you. It's you..I know this..you are tough and you are smart and strong and we are all behind you all of the way.

      almost 4 years ago
    • CAS1's Avatar
      CAS1

      Iron Mom I know for certain Yale is doing immunotherapy trials for all solid tumors. Call the NCI and ask them as well.

      almost 4 years ago
    • BoiseB's Avatar
      BoiseB

      Iron Mom, I suggest you tell your relatives that it doesn't need to be an either or but it can be both. If you can find a Dr. who is trained in Integrative Medicine. There are books out there on Integrative Oncology mostly by Dr. Donald Abrams. There is a lot of bad stuff out there and some very good stuff out there. Check your sources particularly see if it is peer reviewed. You might make use of your nearest Medical Library, preferably at the nearest University or medical school. Some University Librarians will help you access medical journals.

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      Cas......AGAIN for the one hundredth time....I am ONLY speaking for ME....I Never told anybody I had any or all the answers. I would never tell anybody NOT to do treatment and I DON'T know why you keep saying I do. I ONLY SPEAK TO ME. It's almost like you don't want to hear any good stories about people NOT doing the Mainstream.....you seem to just throw water on ANYBODY with an interesting story to give some different side of the Story. It took TWO Years for me to THINK that MAYBE I'm on the right path. SO PLEASE Don't misrepresent me anymore. I don't know why I rile you up so much but I'm ONLY Speaking of MY Journey, Story and Experience. Just STOP IT.....I don't tell you what to do. You are starting to get OLD....I am NOT doing anything wrong.....UGH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You seem to only hear what you want to hear.....because you are NOT Hearing what I'm saying or don't want to.

      almost 4 years ago
    • Carool's Avatar
      Carool

      Barry, stories are not evidence. When someone has a cancer, relying on unproven treatment can result in death rather than eradicating or at least controlling the cancer. That's what CAS1 (and LiveWithCancer and I are emphasizing). Alternative treatments have NEVER been scientifically proven to do anything but perhaps make people feel better emotionally. If their cancers had feelings, their cancers would be jubilant, because they weren't being eradicated by the "treatment." If and when any alternative treatment is put through the rigorous, double-blind studies that all standard medical treatments are put through before being applied to patients, and the alternative treatment is shown to be effective, then it will no longer be ALTERNATIVE - it will be part of standard protocol.

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      I have applied for research clinical trials. I'm really interested in immunology so thank you for that info. Sorry to see any discord among the responses here. Sorry to have stirred this as I only wanted anyone to hopefully share a success story in something other than I know which is the traditional medical world. Thank you for the compliments and support of my strength. I feel fairly strong at the moment and hope to find a way to continue. Thank you again!

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      I'm ONLY speaking about me but anecdotal stories about what and how people have done may not be double blind study but it can be a powerful testimony. You know the entire New Testament is based on Stories told by others to others and Billions Follow it. Stories in Life are very Powerful and in my opinion shouldn't be discounted. SO what I said to rile anybody up is still a mystery.

      almost 4 years ago
    • CAS1's Avatar
      CAS1

      Iron Mom remember to check solid tumors also for clinical trials. .

      almost 4 years ago
    • CAS1's Avatar
      CAS1

      Anecdotal stories in my opinion are not what people are looking for when faced with a cancer return. Or an initial dx..Fairytales are just that .
      It gets back to the equally unsavory suggestion that we can think our way out of cancer with a positive attitude or juicing. Harmful , outrageous, inappropriate, selfish and cruel ate just some of the words thst come to mind.

      When someone asks please give me some b.s. stories about cancer then I think all of the above is in order..but what I will never ever accept are the broad trashing of our countries reserchers and brilliant minds in medicine and the accusations of our FDA and cancer community trying to harm our citizens. While not perfect and certainly always room for improvement we have the best cancer care in the World..I am pround of it and grateful to be an American..You keep trashing my country and I am going to respond in kind.

      We have real cures in the pipeline..There is reason for Hope for many many cancers and I will try and help anyone I can with solid information because I am not trying to sell a sale published book or make myself feel better or bigger..

      There is real Hope in clinical trials right now.

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      I'm not trashing this Country....I LOVE this Country and always strive to make it better. America is a work in progress. Cass.....no sense us talking to or past each other anymore as it appears to me that we are from totally different places.....bye

      almost 4 years ago
    • L_Meligne's Avatar
      L_Meligne

      IronMom, just putting in my 2 cents; I saw a naturopath/oncologist at Bastyr in Seattle for a 3rd opinion before I started chemo. I was hoping they'd have an alternative. They also felt I needed chemo as there was cancer found in lymph nodes. My acupuncturist had given me essiac tea, which they told me was fine but to stop taking it once I started chemo. I did take the turkey tail tincture (Host Defense), and still do to keep my immune system up. I really feel like that has been helpful. I had friends make me some of the Rick Simpson oil (I'm in WA so it's legal) which I waited until after chemo to do as well. They made me oil from a high CBD, low THC strain so it was relaxing without the heady high. I did that for a 30 day period. Covering all my bases I guess.
      In all honesty, if I have a reoccurrence, I feel like my body was so wrecked by chemo I don't know if I'd do it again. But you really can't say until faced with it, right?! Research everything that is available to you, ask questions like you are, and use the NIH website to search for clinical trials...but most importantly, listen to your gut! This is your body. XOXO

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      Wish I lived in your state cause I would like to try the hemp oil and the alternative. Why stop taking the essiac with chemo? My gut is screaming my 13 daughter needs me! Like the universe cares! I'm trying to reign in the terror but unlike last time I can feel the Tumors with my hands in my abdomen. Just not a what if like lymph nodes I believed I was fighting last time. Feel like they are popping up in my body taking over demanding surrender!

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      Iron Mom....I know this sounds nuts but STOP Touching and Thinking about them because you are scaring yourself to death. Fright tells the immune cells that the gig is up and we are in crisis mode. The chemistry in the body puts us in a fight or flight scenario and that is NOT Conducive to any healing. I had to actually sit on my hands and cover the mirrors in my bathroom as well as lower the light so I would STOP the obsession....it was killing me Emotionally and Physically. I started to make sure I did NOT Think about the stinking cancer before sleep as that would b=give me a terrible sleep and terrible dreams so I listened to the Cable news show while dosing off....keeping my flying mind on SOMETHING else besides MEEEEEEEEE.....And that was the beginning of my nodes STARTING to get softer.....I cannot say this is WHY it happened but that's when it began.....My stomach problems got better when I stopped obsessing on the cancer and me.....I've read about this but never believed it. I saw a lecture somewhere about a year ago that the main thing to healing is mental and spiritual. ALL the Plant foods and supplements and juicing in the world will start you off but UNTIL you deal with the mental part it has no chance.

      SO.....that's my advice based on just my experience. I do know who powerful my mind is as I'm a legend IN MY OWN MIND but negative loop in my mind going all day can be awful and destructive. SO I TRY and change the thought pattern as SOON as the voices get negative which is all the time....I also try and remember to breath.....just take three deep breaths and especially enjoy the exhale...the exhale is Under Rated.

      Try it and see......Maybe that's the component that is missing from your treatments......Give your mind and soul a break the just don't obsess on it....your giving it too much power. Someone said whatever you focus on will get stronger....well I want my cancer to get weaker....

      God Bless everybody and hope everybody is doing better than yesterday.

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      Thanks Barry. I just mean compare to the first time I had cancer I couldn't feel it. I didn't have big lumps or really any symptoms. Had a backache prior to surgery but gone after . After my hyst they said the tumor was gone but there were microscopic traces in the lymph. So it was more of a intangible cancer in my mind. By saying I can physically touch them makes it more real not that I'm per say measuring them daily. Either way I see what your saying but I'm having pain when I stretch or turn from them as in my waist line. So it's a different experience this time. More physically real. Most of the day I'm busy with life. My mother having surgery in the morning. Then I have to take care of her. My daughter is home Schooled now so my focus is on school work and a million other things. So it's here on this site I only get to be obsessive. Appreciate the thoughts and concern. Agree got to think on other things! Thanks again. Prayers for all!

      almost 4 years ago
    • gonewest's Avatar
      gonewest

      https://www.leafly.com/finder/detroit-mi

      Michigan enacted a medical marijuana law in 2008. Cancer qualifies. The link provides information on where to go in Detroit. Much love and understanding coming your way.

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      Thanks will check it out. Got to get my mom through this tomorrow then see.

      almost 4 years ago
    • gonewest's Avatar
      gonewest

      https://www.marijuanadoctors.com/medical-marijuana-doctors/MI/detroit

      This link is for your card. Holding your hand. Meditations and prayers for you and your Mom. Best. Christine

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hoping your mom's surgery will be successful and that she will have a quick recovery.

      almost 4 years ago
    • BoiseB's Avatar
      BoiseB

      Cas and Barry Do I feel the hot wind of an approaching election year? Guys just sit back and enjoy the "Dog and Pony" show. :)

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      It IS more scary when you can feel the lumps.....stinks all around.

      almost 4 years ago
    • geekling's Avatar
      geekling

      http://enhs.umn.edu/current/5103/molds/harmful.html

      IronMom45 will make up her own mind what she will or will not do in order to help herself overcome her fear, gain resolve, accept as treatment, and come out as a live and breathing winner over the cancer. Calling me a liar, @CAS1 just proves your inability to be reasonable or civil or truthful.

      Essiac tea is a combination or either 4 or 8 herbs which are remedies which were in use in America about 960 years before the Founding Fathers asked the People who used them for helpful information on forming a Constitution. A Canadian nurse treated people with it to the end of the 20th century and it certainly seemed to help a lot of people who were expected to die of cancer by western medical practitioners. Make sure you are using the herbs of a reliable company, IronMom45.

      Information is power. I could show CAS1 Pubmed studies on various non chemotherapies but I doubt she would be able to understand them because minds need to be open in order to process information. IronMom45 and her doctor would, however. It is not recomended that the oil be taken in combination with chemotherapy but is shown to be effective in shrinking tumors, among other things. People, around the world have been using the plant long before Western medicine was invented. That doesn't mean to say that new tehniques aren't viable. It does mean to say that people need to use every option at their disposal or, as least, have options at their disposal in order to make good choices.

      http://www.ncbi.nlm.nih.gov/pubmed?term=%22Nigella+sativa%22[MAJR]

      There are so many, as you call them "anecdotal" protocols. In my quest to stay alive, I came across a whole heck of a lot of them. The basis of all of them is to strengthen the immune system
      via ingestion. We arent talking hemlock. What makes you so afraid of everything natural to your home planet, I wonder? Not my business CAS1 and I don't really care ...

      Marijuana, guanabana, soursop, chaga mushroom extract, turkey tail mushroom, reishi mushroom extract, fermented mushroom extract, pant pant pant there are so many foods and herbs which contain compounds which fight cancer ... even cherries fight off cancer but you likely would not feel so great eating them exclusively all day long. Most "natural" protocols are used in combination with each other and there is no reason not to eat well in any case. I only experienced one chemotherapy infusion (lucky me) so Im no expert on fighting nausea but dried, compacted fruit saved me when I was in so much agony and exhausted from radiation that I simply was unable to care for myself. I learned a lot about natural methodologies while doctors were unable to recognize what they called "a wart" on my person as the tumor it was.

      The point of juicing is to relieve the body of the work needs to digest food (over 70% of the body's resources, to be conservative) so that the body can be free to fight the cancer. Simple mathmatical calculations. ... are they also too much for you, CAS1?

      In any case, I wish you well IronMom45, and hope you can reduce the stress, increase your strength, and rout your ills.

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Geekling, why???

      almost 4 years ago
    • barryboomer's Avatar
      barryboomer

      Why What...?
      I hear a lot of nay sayers say that it's ridiculous to think that eating strawberries or broccoli will cure your cancers....THAT is a red herring....What eating Foods of ALL Colors can do is make you healthier and that's a good thing. The Immune system for us in not functioning in ONE organ of the body. Hopefully by getting very healthy the immune system will be healthier and will start to do its job in that one organ.....no guarantees at all. BUT killing the cancer cells is good AND making the Immune system stronger can help IT control the cancer from within....SO the plant foods don't kill cancer it just helps us get healthier.....and that's always a good thing.

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      The negativity and hatefulNess toward other WhatNexters is what I was referencing. The digs get awfully tiresome. But, I imagine many of us are growing accustomed to being called liars and far worse. Some days I tolerate it better than others. I guess today isn't one of those days.

      almost 4 years ago
    • IronMom45's Avatar
      IronMom45

      Hello all. Been off the site a few days with so much going on. I will have more answers as to what my next step is after Thursday as I have an appt at Barbara Ann karmonos institute here in Detroit. I have a plan of attack but will update everyone Thursday as I don't have the details as of yet.
      I am honored to have so many well wishes and thank you all. I appreciate the diverse answers and hope we can agree to disagree among each other. I think we all want resolution to this awful disease and how ever we each choose is our own. I hope we can continue to support one another because despite the many styles of approach we have this in common: cancer! is our enemy not one another. But we here at Whatnext are of strong and amazing fortitude or we wouldn't be here trying to share our battle plans. Pray for all of you and peace on your journeys. Again, I am humbled and proud of my fellow whatnextets for taking the time to share and show me concern! You guys are great!!!!

      almost 4 years ago
    • Carool's Avatar
      Carool

      IronMom45, you are, too! It doesn't take much for ME to get riled up (I always love a good argufight!). As you say, we should all try to help each other - gently. Anyway, looking forward to your next update. Best of luck to you on Thursday -

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am glad you are feeling more positive.

      I hope your mom is recuperating nicely from her surgery.

      almost 4 years ago
    • happydyad's Avatar
      happydyad

      IronMom45, I hesitate to throw in my 2¢ but here it is nonetheless. I have discarded all mainstream treatment other than surgery. I have a "good" prognosis so my "success" is nothing worth giving a testimonial on. Still, I watched my closest friend succumb not to her metastatic breast cancer but to the ravages of the after-effects of chemo. I am putting my faith in natural protocols that strengthen and oxygenate the body.

      I will not presume to suggest what course of action you should follow beyond recommending the following two resources for you as you research your options:
      (1) PubMed offers numerous articles from respected main stream medical researchers and journals and an easily searchable database. Admittedly the articles can require a bit of re-reading to fully absorb but cutting edge information is contained there on both conventional and alternative treatments.
      (2) adjuvantonline.com is the same resource your oncologist uses for determining statistical benefits of various treatments. To get access to that function you must tell the program you are a medical professional. Doing so is not forbidden by law or anything else. My own oncologist recommended that I use that resource in that way.

      My heart and prayers are with you as you research your options and choose your path. Hugs & prayers, Judy in Ky

      almost 4 years ago
    • fmmd's Avatar
      fmmd

      Glad to join this community and surprise with the answers also. Found something new and relevant to my work. - https://bit.ly/2qQD5un

      about 1 year ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      We're glad you're here and hope you find other good information, too :)

      about 1 year ago
    • Razmataz's Avatar
      Razmataz

      Ok I know most of this is from 3 years ago. Hopefully at this point many of us are still alive and maybe wondering how that happened. At least I am. It's been 4 years since my first diagnosis. Just for everyones peace of mind...haha I've tried everything. I do believe in alternative methods to heal...I also believe in regular ways of healing as well. My cancer has come back 4 times. I have beat it 3 times but fighting for me to say I beat it 4 times... I know that everyday is a gift. No matter what methods I choose to use. Unfortunately I finally figured out why I was constantly feeling ill after my use of marajuna... apparently I am allergic to it...urg...I swear I tried it a billion times with different strands...haha I can use it topicaly sometimes but sometimes it itches like crazy. So who the XXX knows...haha but I'm up for trying anything. Take care everyone

      10 months ago
    • happydyad's Avatar
      happydyad

      BTW, If you haven’t yet read Radical Remission it’s a pleasant read and I found it inspiring as well as informative. Best! Judy in Ky

      9 months ago

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