• Am I hurting too long?

    Asked by Grandy on Friday, May 31, 2013

    Am I hurting too long?

    Seems like so many of you said your Mastectomy wasn't as bad as you thought. Well, i guess it seems like it was the node removal and maybe the reconstruction that is so hard.

    The drains may make me crazy!!! The one has gotten tugged too many times, so if i don't keep it at the right angle it really smarts! It's been 4 wks now. I know there is improvement, but I am SO very uncomfortable... Like crying for an hour kind of uncomfortable. (And I'm not a crier.)

    11 Answers from the Community

    11 answers
    • AlizaMLS's Avatar

      Dear Grandy,

      Hi, It's Aliza (the BC patient and Med Librarian). We've chatted before, so two things: You should call your doc (plastic surgeon) re your pain because it sounds a little lengthy for it to hurt this long and advise her/him of that and see what she/he advises.

      Second, remember, everyone's different. We all have different pain levels (I have a very low pain tolerance-I'm terrible!!) and different areas of sensitivity and this might be one of yours (since you haven't been operated on here before [I'm guessing]). It sucks! The drains made me uncomfortable and unhappy too, but not for as long as you.

      I hope you feel better soon!! The one piece of advice I might be able to offer you is to try and distract yoursellf (difficult as that is) as much as possible. Crossword puzzles, scrabble and gin rummy (if you have a partner, Netflix, a good book (hey, I'm a Librarian, what did you expect?...;) There's a neat online kind of book group called wwwdotgoodreadsdotcom where you can track books you've read, make virtual friends, join small genre book groups, write book reviews, and read others' book reviews. It can be a lot of fun, especially if you invite your friends!

      I know the drains are a pain, try to remember that all of this is a temporary pain (like an awful root canal [I know it's a lot worse]), but see what the doc says and see if she/he has any suggestions re mild heat (or ice) to help? Don't do anything on your own!!!

      Keep us posted!!

      Warm wishes,

      over 4 years ago
    • HearMeRoar's Avatar

      The drains suck!! I had 5. It took 8 weeks for me to be fully back to normal bit I was only in serious pain a few days. Maybe call the surgeon? Sending you virtual hugs. Xoxo

      over 4 years ago
    • FreeBird's Avatar

      I hope you feel better soon. I don't know enough about it, but I would maybe ask the doctor for some different or increased pain meds at least to alleviate that pain and discomfort. If you have drains in now, I know that when dad had drains in, he was much relieved when they were removed.

      over 4 years ago
    • Grandy's Avatar

      Thanks all, I had planned to call doc this morning. I don't have a fever!! So that is good.
      Boy when you hurt, who wants some doctor touching it. I must say it scares me since the right one is so tender. (Also, drainage was bloodier from that one yesterday than before and than the left one.

      I had been taking Hydrocodone... I didn't like how groggy I felt and was going for all OTC except muscle relaxer at night. But then i didn't really sleep much at all last night. :(

      People talked about getting back to things after a few days.

      Oh, and I've mentioned before I have Fibromyalgia, so just my clothes touching parts of me right now hurts.

      Aliza, I watch Netflix, have grandkids around sometimes, other visitors, and a hubby.

      Thanks again!

      over 4 years ago
    • GregP_WN's Avatar

      Grandy, sorry you're having a rough time of it. I hope you get past this rough patch quickly. Like Aliza said, everyone is different, for me, I'm real different since I didn't have a mastectomy! Ha! But I digress......anyway, I had a drain in my neck, maybe not the same thing, but that booger hurt like crazy too, after it was out I still had lots of pain as the nerves were regrowing. My doc said it would take a few weeks and the pain would slow down. In the mean time, talk to them and get your meds in shape to help you. I believe we don't deserve to lay around a hurt. Take that medicine, stop your pain! I hope you get some relief soon, I know it's bad.

      over 4 years ago
    • Grandy's Avatar

      I talked to a nurse, who will talk to the doc. Oh, how i hope they can just take these suckers out! The only thing i can see possibly with the neck Greg, is that you don't have to have skin on skin contact.

      Maybe GREG, you should get an empathetic one because you deal with so many of us! HA!!! (As if you yourself haven't been through enough. Thanks!

      over 4 years ago
    • Ydnar2xer's Avatar

      Hi Grandy: I have had drains several times w/breast reduction (voluntary) and then mastectomy (involuntary!) and they are ROTTEN. Such a bother! But you will feel like a new woman when they are removed! I remember I had to leave mine in until I only drained a specific, "clear" amount...and the drains would wane and then fire up again, bloody again, even though I hadn't done anything! Very frustrating.

      I am guessing you are avoiding pain meds that might help you feel better. That's why they are prescribed! If they make you groggy, SLEEP! You deserve special treatment right now--mastectomy is a huge physical and mental operation. Hang in there and be good to yourself right now. Time will pass eventually and you will be drain-free soon! My thoughts are with you!

      over 4 years ago
    • Nancebeth's Avatar

      I had immediate reconstruction and it felt like I had been shot in the chest for about a week. After that, the pain subsided quite a bit and was more of a discomfort. I have a really high pain tolerance though so I am not sure I am the best judge. I am told that it is the recon that causes more pain than the mastectomy. I had one drain out in 6 days and the other one out after 2 weeks, but when in, they didn't bother me too much.
      I am sorry you are having so much pain. You might want to talk to your surgeon if it is affecting your daily routine too much.

      over 4 years ago
    • Grandy's Avatar

      They did take out the drains on Friday. But I'm guessing that after a month there has been healing around those tubes inside. In removing them, my whole chest really ached! But now, Monday, it is better, and yes, I am taking more script pain meds again!

      over 4 years ago
    • Mel's Avatar

      I agree with the drains I couldn't stand them!!!... :-( I had my drains almost 4 wks, too much fluid.

      over 4 years ago
    • Grandy's Avatar

      Breast/chest ache has subsided mostly!! Progress!!!

      over 4 years ago

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