• Anemia - Have you had it? Do you know how you got that way? How do you prevent it?

    Asked by GregP_WN on Thursday, September 6, 2018

    Anemia - Have you had it? Do you know how you got that way? How do you prevent it?

    Our blog post today from Ms. @JaneA has a lot of information about it and how to prevent or fix it. Take a look here >> http://bit.ly/2MODRWJ and please share.

    8 Answers from the Community

    8 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      My mom has always been anemic. Me, never. When I was pregnant with my son, I couldn't take the iron pills. As soon as I swallowed those huge things, they came right back up. My doctor told me he'd never seen anyone with such iron-rich blood ... he wasn't aware that I wasn't taking the iron pills at the time ... I feel very fortunate.

      about 3 years ago
    • macfightsback's Avatar
      macfightsback

      Got mine as a side effect of chemo. Required blood transfusions to correct.

      about 3 years ago
    • SandiA's Avatar
      SandiA

      I am anemic. Started after the immunotherapy. I stopped treatment two years ago and I still have it. It hasn’t gotten two low to do a transfusion but close a few times. I guess just something I will live with.

      about 3 years ago
    • andreacha's Avatar
      andreacha

      I've been anemic most of my life - more so now that I take the oral chemo. I get B-12 shots once in a while, when need is determined by blood test. I have been averaging having Aranesp shots nearly every month (that's the limit-once a month). I have to have a CBC and a BMP every week. Watching the hemoglobin levels is vital. In the past I've had several transfusions and now have to have "Kell Negative" blood when I do. I got antibodies from some of blood I received. I have too much iron in my body since I have Hemochromatosis (inherited) and iron deposits now show on my kidney on my MRIs. The normal way to keep the iron level down would be to give blood on a regular basis. I believe that blood is then discarded. Obviously, I can't do that being so anemic. I continually pray that the deposits will slow down as this condition can be fatal. After the liver is completely covered it starts backing up into the spleen for starters I believe it is, and eventually all organs shut down. By the way, Jane A, the article was excellent.

      about 3 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Wow, @andreacha, I can't even "like" your post. That's awful what you're experiencing :( I'm so confused because I thought it was iron levels that determined whether or not a person is anemic.

      Praying with you that the deposits will slow down. That's scary. I take it that there is nothing they can do medically?

      about 3 years ago
    • po18guy's Avatar
      po18guy

      Good question! I currently have 4 conditions, all of which produce fatigue. Immune suppression (to control GvHD) which causes low hematocrit, Cephalexin (antibiotic as prophylaxis) which depletes B vitamins, type II diabetes and a clinical trial drug (ROCK2 inhibitor) which adds to the malaise. For me, there is no way out except to fight through this. I may reach the other side and I may not. Some days are better than others, but life is still worth living.

      about 3 years ago
    • BoiseB's Avatar
      BoiseB

      I was anemic until menopause due to heavy periods. When I was in college I was put on birth control pills to supress the amount of blood loss. After about 6 months the anemia got better. So I dropped the pills. I was told to eat an iron rich diet. After both c-sections I had to have transfusions and was anemic for about a year later. After my hysterectomy I had to have transfusions due to internal bleeding.

      about 3 years ago
    • LauraRem's Avatar
      LauraRem

      I've been getting anemic, low red blood cells, due to chemo. Am ending my second 4 month block of chemo and only developed this issue after being taken off keytruda (side effects/all over body rash) and starting Abraxane. They treat the low RBC with blood transfusions. My white blood cells get low as well, and they give me shots for the 2 days following chemo to treat that. The good news is that this shows that the chemo is doing its job of killing cells! I'll be having a rescan mid October and we'll then see if this includes cancer cells as well as my blood cells!

      about 3 years ago

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