• Aneurysmal fibrous histiocytoma vs MFH

    Asked by medicgirl05 on Sunday, March 24, 2013

    Aneurysmal fibrous histiocytoma vs MFH

    So last year after multiple dr visits with my primary care physician and a surgeon I had a tumor removed. It was sent to 2 pathologists who were unable to make a definitive diagnosis. I was sent to a local oncologist who found a spot in my lung and was concerned about sarcoma so I was sent to MD Anderson. They were unable to make a diagnosis but on paper they called it benign, the oncologist said it was better for insurance since I'm so young. They think it is MFH. Now I'm just waiting for something to grow back so I know what to do about it. I feel very stuck and am alarmed at every new lump and bump. Anybody have a similar experience?

    3 Answers from the Community

    • carm's Avatar

      Hello, I am an oncology nurse and usually MFH is quite curable even if it is recurrent. It is a wait and see disease and there are 4 types of tissue types. Depending on the staging, tissue type does direct the plan of care. Best of luck to you, Carm RN.

      over 3 years ago
    • SueRae1's Avatar

      Hugs. I don't know anything about MFH, but I am an expert on waiting, wondering and anxiety, and therefore have an idea of the emotional impact this is taking on you.

      Take care of your emotional and physical self. Do things you enjoy, see people you love. If you are having a bad day, let people know, I have been know to answer "how are you doing" with " I have good days, I have bad days, today is a bad day" . my DH and I set up a few code phrases so we each know how grumpy the other is on any particular day.

      If you like, why not call MD Anderson up and find out if they can recommend a therapist who can help you deal with your fears and anxiety and offer you practical advice on moving froward.

      over 3 years ago
    • reginak's Avatar

      I have a similar experience with waiting, wondering and anxiety. Try to get paired up with someone who has or has had a similar type of cancer (R A Bach[phone number redacted].
      Remember, people on this site are here for you!

      over 3 years ago

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