Go back to your Doctors with a list of question you want answered and demand they listen to you. Write them down so you don't forget. If you don't ask, they may think you already know the answers.
Prostate Cancer Questions
Asked by bassmaster on Friday, April 12, 2013
Can't get much from my doctor so would appreciate any advice as to which option(s) to pursue.
8 Answers from the Community
Write down your questions and concerns and make an appointment, specifically scheduled with a plan to have the time to discuss your questions. And, take a trusted family member or friend with you to help you. If the doctor won't do it, get a second opinion. You have a right to have your questions and concerns addressed. Don't give up!
The most effective things you can do for yourself are:
1. Understand thoroughly your diagnosis; Gleason score, number of sections involved, overall diagnosis (e.g., T1c, T3, etc.). E.g., is the tumor confined to the prostate or has it spread beyond? Very important to know.
2. Research every aspect of the many treatment options.
3. Develop many, many questions about applying each additional diagnostic test and each potential treatment (including combinations of treatments) and ask your primary doctor.
4. Very important -- seek out the nearest National Cancer Institute (NCI) approved "Comprehensive Cancer Center" like Mayo, Sloan Kettering, M.D. Anderson or Moffitt and get an appointment with both the urogenitary guru and the radiation oncology guru at the site (usually organized in two different but coordinating sections of the center.
5. Finally talk to as many survivors with similar diagnoses, to learn their thought process.
If your tumor is totally contained within the prostate, research and ask all doctors (especially at the NCI center) about HDR (high dose rate)brachytherapy -- a procedure I recently went through.
Best of luck....
If you are not getting answers from your doctor then find a new doctor! You can say you are getting a second opinion (my husband had a
robotic radical prostatectomy with subsequent radiation over a year ago and is doing great and we got three opinions) which solidified his decision making process...if you are not getting answers then be sure your questions are clear, bring them written down, don't leave until they are all answered, and more importantly, understood! Good luck and God bless!
I have been going to this doctor for years and, initially he was candid. Why he has become hard to reach, I don't know, but he has become very hard to pin down, so I am trying to get whatever info that I can, on my own, before I consider finding another doctor. Frying Pan/Fire thing. TNX for your interest.
Hey, I'd like to add that the doctors really don't have all the answers. Everyone really is different. HYou didn't say what specialty your doctor is in, if your doctor isn't a cancer specialist, I'd agree that it's time to find a new one. I reviewed your journey and since the PSA has responded to the hormone therapy, it would not be a bad idea to continue. I only started other therapies when hormone therapy failed. Good luck.
Keep it positive and smile :)