• Any idea of prognosis for recurrent (metastasized) endometrial cancer? Like my oncologists but they are very vague about best or worse case

    Asked by NJZ62 on Friday, November 30, 2012

    Any idea of prognosis for recurrent (metastasized) endometrial cancer? Like my oncologists but they are very vague about best or worse case

    Seems like there is very little specific information out there about endometriod adenocarcinoma that has metastasized - maybe not very many of us?

    9 Answers from the Community

    9 answers
    • ticklingcancer's Avatar

      I think this really depends on the stage of the cancer more than the fact the it's a recurrence. What stage are you is the cancer? Lots of information from the American Cancer Society is available.


      almost 5 years ago
    • ticklingcancer's Avatar

      Oops, meant to say, "what stage is your cancer?"

      almost 5 years ago
    • Harry's Avatar

      First, prognosis projections aren't always accurate. They are often based on studies from a few years ago and those studies were of patients diagnosed years earlier.

      Second, a second opinion is always a good idea--particularly if you aren't happy with what you are being told. Second opinions are routine. You don't have to change docs.

      Third, different docs state these things differently. When I went to see my mother's doctor he didn't want to talk about median survival time. Instead he talked about "cure rate" by which he meant 5 year survival (It's a "cure" if you live 5 years + 1 day???). The 5 year survival stats are pathetic--but essentially meaningless for my 88 year old mother.

      Fourth, in your situation, worst case and best case may be very far apart and essentially meaningless. "Worst" might be very bad and "Best" might have you living forever. You are probably somewhere in between.

      Finally, TicklingCancer is correct. Stage helps a lot.

      almost 5 years ago
    • SueRae1's Avatar

      What stage you are in does help with the prognosis. But remember prognosis is as much an art as a science, it is based on statistics, research and then applied to your unique case. The oncologists I see/have seen for my two cancers have given me a prognosis. My cancers are responding to treatment, and for me that all that matters.

      almost 5 years ago
    • Peroll's Avatar
      Peroll (Best Answer!)

      NJZ, I would assume that since it has metasticized it is stage IV. I suspect that the lack of information means that youe situation is not common, welcome to the club, I am well beyond there being any guidelines or studies about how to treat me next, but that is not stopping me. You also need to know that the statistics the Drs might quote you are at least 5 years old and with advances are no longer valid for more than general guidence. You also need to remember that if 95% of the people die then 5% live. I personally have been on the 5% of the probability 5 times in a row so I stopped paying attention to the numbers they cite. Harry is right worst case is that you die soon and best case is that you live forever (or die from someting other than cancer). If you feel you need more information then get a second opinion.

      My bwest advice is to keep positive and keep fighting and you will eventually beat it. Good luck.

      almost 5 years ago
    • nancyjac's Avatar

      Best case: you will eventually die of something.
      Worst case: you will eventually die of something.

      almost 5 years ago
    • bigladylw79's Avatar

      I am having the same problem. I was diagnosed with endometrial cancer with clear cell adenocarcinoma in February. I was given a total hysterectomy. The doctors said with the clear cell they wanted me to have radiation just in case. I couldn't receive radiation because I weighed to much for the special table, so they ordered 6 rounds of taxol/carboplatin. I was ready for my last treatment to be in August. About 4 days before my last treatment they found my cancer had metastasized to lymph nodes in my pelvis and back. My doctors now have me taking a new chemo drug called Doxil. They are hoping it will shrink the cancer. I will have a full body Ct this month. Sorry for the long post.

      almost 5 years ago
    • NJZ62's Avatar

      Yes, Stage 4 once it's metastasized - that much I do know.

      Nancyjac is correct - "best case, worse case, you die of something."

      I'd just like to have some frame of reference to make plans, decisions - should I retire now? That sort of thing...

      almost 5 years ago
    • Karenhopeful's Avatar

      I am in the same position.I"m feeling weaker and weaker, sicker and sicker and about ready to give up. But no one gives me any time frame at all. I've put off many things my husband will need thinking I had another year, but now it doesn't feel that way at all. And he is going to be stuck with our finanaces which I normally take care of. I'm not taking any kind of pain medications, maybe that would help, but it seems everything I take makes me feel worse lately. I've heard narcotics cause constipation and I do not want that again either. But currently I can't keep food or liquids down and my abdomen area really hurts, so I don't know what can get constipated. Initially, she told me she had patients similar to me living now out 4-5 years, but now all I hear is that it is palliative care.

      over 4 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy

    Read and answer more endometrioid adenocarcinoma questions.  Also, don't forget to check out our Endometrioid Adenocarcinoma page.