• Any recurrence of nhl

    Asked by rdy2trvl on Wednesday, August 3, 2016

    Any recurrence of nhl

    I had my last maintenance drug of retuxin August of 2014. Had main chemo rounds in 2011finishing in August. I was stage IV. Has anyone had a recurrence of nhl? Just wondering as sometimes I feel I am sharing my chest with something again, large B cell was there, and I have shortness of breath at times

    13 Answers from the Community

    13 answers
    • geekling's Avatar
      geekling

      Pay attention to your instincts.

      See a doctor and have tests performed.

      Hopefully it will turn out to simp 'll y be frayed nerves.

      Better safe than sorry.

      about 5 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I would go to the doctor. It is important not to wait just in case you do have a recurrence.

      about 5 years ago
    • dhtdiver's Avatar
      dhtdiver

      I had a recurrance of DLBCNHL...but probably not what you think. In Oct 2009, I had my primary tumor in my brain, treated with Methotrexate and radiation, complete remission in March 2010. However, during the diagnostic testing, I had a bone marrow biopsy during which the hypodermic used got minutely contaminated and the tumor reappeared in Sept 2012 at the exact spots on my back where the needle punctures were done. There has been no other case like this anywhere, ever. I was published in the Hematology journal as a case study. My treatment was 4 rounds of RCHOP21 and radiation. All was gone by Dec 2012.

      about 5 years ago
    • DeniseD's Avatar
      DeniseD

      Some of my masses are hardened and remain indolent. Some are in my chest and are uncomfortable at times, however scans show NED (no evidence of disease). I do continue to have regular scans. I too had Chemo in 2013 and Retuxin until January 2016. The last scan was good and next one scheduled for November.

      almost 5 years ago
    • Schlegel's Avatar
      Schlegel

      I have had three recurrences of follicular lymphoma. I have a tumor right now found in May 2014, on watch and wait. NHL is no longer a big deal to me.

      almost 5 years ago
    • rdy2trvl's Avatar
      rdy2trvl

      Thank you all for your kind responses.....will call doctor and he will probably do blood work to see is any positive signs. Meantime, Gods mercy and grace will carry me through and to you all who have received Jesus as your savior who will carry you through tough times

      almost 5 years ago
    • BoiseB's Avatar
      BoiseB

      You should get to your Dr. Right away. Just because you had NHL doesn't mean you cannot get another primary cancer.

      almost 5 years ago
    • Gymmom's Avatar
      Gymmom

      Hi rdy2trvl. Yes, please call you doctor and get it checked out. While I have not had a recurrence, I won't be surprised if I do. I was also Stage IV with DLBCL. Since January I've had an MRI, PET and in September I'll have a CT. I'm scared all the time.

      You have worked so hard for remission, and you want to stay on top of things. Blessings to you.

      BTW, I love your screen name. I just traveled through Oregon - I live in the SF Bay Area. Have yourself a great day, and please keep us posted. -- gymmom (aka Donna)

      almost 5 years ago
    • rdy2trvl's Avatar
      rdy2trvl

      Gymmom....is yours recurring?? In your joints? I had every lymph nod, belly cavity, top of hip bone with the large b-cell encompassing my heart and pushing my esophagus over to the right side of my chest. Yep was a mess!! No surgery as they couldn't and in the end radiation was not needed as they blasted me so heavily with r-chop. My doc released me last December saying unlikely it would come back. Guess that is why I am hesitant to call.

      almost 5 years ago
    • Gymmom's Avatar
      Gymmom (Best Answer!)

      Mine hasn't recurred yet. I lit up like a Christmas tree during my scans too. Mine was everywhere, but primarily it hit my tailbone and right hip. I still have pain and numbness from the damage, and every day I worry that it's back. Hopefully the scan I'll have in September will be clear. We will see. My doc says mine is particularly aggressive.

      Even though your doc said it would be unlikely to return LISTEN TO YOUR GUT. Remember, you worked too hard for remission - so rely on your gut instincts. Please keep me posted, and feel free to get in touch if you just want to chat! :-)

      Gymmom (aka Donna)

      almost 5 years ago
    • rdy2trvl's Avatar
      rdy2trvl

      Gymmom.....thanks for being there.....gosh I have not had a scan in about 2 years...last blood work was last December. I had so many PET and CT scans that the doctor was concerned because of the damage they can do so blood work was done and it was clear so he released me and I have not been back since....keep in touch and I will as well and you will be in my prayers along with some of my friends are fighting as well

      almost 5 years ago
    • Molly72's Avatar
      Molly72

      Had 2 rounds of Rituxin, but not for cancer. It was for Rheumatoid Arthritis.
      Between that drug & methotrexate I got COPD, and I still have the effects from them.
      The damage will probably always be in my lungs, and I of course have some really bad things
      to say about those two "poisons" as my entire physical life has changed for the worse.

      almost 5 years ago
    • rdy2trvl's Avatar
      rdy2trvl

      Molly....all the drugs in reality are a poison killing a poison. I had two years of retuxin and after finishing 6 months later was hospitalized for coughing and breathing issues that were intense. They kept me 8 days never figured out what was wrong. Tested me for everything you can imagine from bird flu to COPD but that was not it. Went home with a breathing machine. It is 1 and half years later, no COPD and pretty good accept now some issues with chest heaviness so back to oncologist for testing.

      almost 5 years ago

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