• Any Treatment for Advanced Chemically Induced Neuropathy

    Asked by sandylnelson on Monday, February 22, 2021

    Any Treatment for Advanced Chemically Induced Neuropathy

    I sure wish someone would have shared information about chemically induced neuropathy with me way back when I had my first rounds of chemo. I have had ovarian cancer for over 20 years and have been on many types if chemo therapy....I'm now on Avastin. My feet are so painful that I have trouble walking and as such, my balance tends to be way off causing many falls and accidents. My hands are not quite as bad, but I do have problems holding on to things. I use a cane and/or a walker when I'm out and about, but the pain itself is so life altering. I've tried just about everything including drugs, pain medications, creams, oils and all types of footwear and inserts, but it appears to be too late and major damage has already been done. If anyone with similar issues has found something that provides even a tiny bit of relief, especially from the long term effects of neuropathy, I would be very greatful for this information. I'm always open to new suggestions.

    9 Answers from the Community

    9 answers
    • sandylnelson's Avatar
      sandylnelson

      I want to thank everyone for all your input with suggestions for my neuropathy. Unfortunately, I can't take Neurontin as I've tried it in the past and have had a very bad reaction to it. I also have kidney problems due to the many years of scans with contrast and other types of procedures that have been detrimental to my kidney function. I have to be very careful what I take in over the counter medications. But you all have suggested several new things that I will definitely check with my doctor and try immediately if possible. I am very appreciative of your time an suggestions. I'm also ordering a pair of Oofos today. Thank you all very much.

      4 months ago
    • po18guy's Avatar
      po18guy

      @sandylnelson Just now it hit me to check www.clinicaltrials.gov for any trials involving neuropathy. Surprisingly, there were nearly 2400 trials total - quite a few of which are completed or no longer recruiting. But - many are indeed actively recruiting. I have been in four clinical trials and while none of them was for neuropathy, I am keeping these trials in mind. I think that it would behoove someone who is at wit's end to ask doctor about clinical trials, possibly consult at such a facility, and investigate the available and applicable trials.

      https://clinicaltrials.gov/ct2/results?recrs=&cond=neuropathy&term=&cntry=&state=&city=&dist=

      4 months ago
    • sandylnelson's Avatar
      sandylnelson

      Thank you, po18guy. I've checked it out and nothing available at present time, but I'll keep watching. Appreciate your suggestions.

      4 months ago

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