• Anyone dealing or have dealt with intractable bone pain from cancer?

    Asked by StacyG on Saturday, November 5, 2011

    Anyone dealing or have dealt with intractable bone pain from cancer?

    My husband has cancer of unknown primary with only significant symptom pain and pathological fractures from bone mets. He is in serious pain and pain medications, including hydrocodone and oxycodone, have not been very helpful. It is difficult to watch him suffer with so much pain. He is having radiation therapy to bone mets right now, but not improving. He is also very weak since surgery to stabilize fracture and radiation therapy.

    3 Answers from the Community

    • KarenG_WN's Avatar

      Hi Stacy,

      I just wanted to reach out to you. It must be so hard to see someone you love in pain. As you may know, WhatNext is new and growing. I am optimistic that someone will be able to give you some insight. In the meantime, I will do my best to find someone who can share their perspective on this issue with you.

      Please feel free to let me know if there is anything we can do to help...and please keep us posted.

      Stay strong,

      almost 5 years ago
    • judith4040's Avatar

      Stacy, I am not an expert but I will tell you what has helped me out with alot of my pain. I finally found a pain clinic and after I attempted fentalyn patches, every drug available orally (even a prescription of metadone), they placed a titaniam pain pump. This is how it works...they insert a catadral in your spinal cord and feed the tubing around your side. My pump sits in my far right stomach. I receive dilaudid 24 hours a day. I even have a little travel item that I can give myself 4 bolos of the medicine. Metroncic is the company who created the pump. You get your medicine refilled about every 2-3 months and its easy. The only downside is that you can't go through security gates at airports they have to pat you down but that is really nothing in my book if I am pain free. When I am hospitalized they can still hook me up to a pain pump where I can push a button every 8 minutes for pain relief. I don't think I will ever be pain free but the pump allows me to live a better life and it allows me time with my children and husband and I am not miserable. I wish there was a magic wand and I could help your husband be pain free. Take care and good luck.

      almost 5 years ago
    • lovingspouse's Avatar

      My wife had surgery to stabilize a shoulder fracture (with a plate and screws) and also has a compression fracture of her spine. Her metastatic cancer has spread to the spine, shoulder,sternum and leg. However, she has had success with the radiation in the shoulder for lessening of pain but she still (9 weeks post surgery) has surgical pain. Recently, her oncologist discontinued her 60 mg. of oxycontin (30 mg. twice daily) and told her to vary her doses of dilaudid to as much as 6 mg. every three hours. We have since tried 4 mgs. every four hours with another two mgs. at the two hour mark. Check with your doctor about the dosages but, depending upon her pain level, these variations seemed to help. Good luck and God bless.

      almost 5 years ago

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