• Anyone else had nivo treatment changed from biweekly to monthly?

    Asked by mockingbird on Thursday, July 19, 2018

    Anyone else had nivo treatment changed from biweekly to monthly?

    My father's oncologist just changed his treatment to monthly. Has this happened to anyone else? Success?

    5 Answers from the Community

    5 answers
    • SandiA's Avatar

      I finished treatment in July 2016, so they were still doing it every two weeks. I was on a clinical trial. I know there are some here that have switch to once a month as far as I know it has been successful! I am sure others will share some personal experience. Wishing your dad all the best. I did nivo for almost a year and had great results!

      12 months ago
    • GregP_WN's Avatar

      I can't help with that drug, I didn't have it, but if you hover your cursor over the experiences tab, then type in NIVO in the search bar you will get several posts about Nivo. I didn't see any of them talking about changing the frequency of them.

      12 months ago
    • LiveWithCancer's Avatar

      I get nivolumab every 4 weeks. I switched about 3 months ago, I think. I just had a treatment on Monday.

      At my clinic, the patient has to request to be switched to monthly, I think. I only know about lung cancer patients. My nurse practitioner and I were discussing it and she said she knows of 3 or 4 men who chose to go to monthly treatments.

      I worried about it because I thought the side effects might be a lot worse when getting a double-dose of the drug. As it turns out, I can't tell any difference at all except that I don't have to go to the doctor as often.

      Good luck to your dad. I think it is wise to really watch for any side effects that might crop up as a result of the stronger dose, but those of us at my clinic who opted for monthly haven't had any negative results. Let us know how it goes, okay?

      12 months ago
    • Margi's Avatar

      My oncologist informed me that the FDA has approved monthly treatments. This may be the reason your Dad's schedule changed. If I changed to monthly, treatments, BMS would not be able to continue funding my treatment. I was still in the clinical trial. Six weeks ago, I had my last Nivo treatment....121 treatments. I am doing well, inherited adrenal insufficiency and a few other medical issues... all very manageable and remain NED for four years. Many prayers and big hugs for you and your Dad.

      12 months ago
    • LiveWithCancer's Avatar

      @Margi ... I have never known anyone who had more nivolumab infusions than I have had, but I do believe you have had more than me by 10 or so!

      My clinical trial offered me the opportunity to go to monthly, but I was too scared to do it. After I saw that FDA approved monthly infusions, I got braver and decided to go that route. My number of infusions is dropping by half nowadays :) :) (I need to ask what number I am on, just out of curiosity.)

      I am surprised that you have been NED for so long and yet still continued to get the treatments. My tumors are stable, but not gone, unfortunately.

      I have a friend who was in the first clinical trial for lung cancer and nivolumab. After two years, the trial ended and he hasn't had any more treatments. I think that was 7 years ago??? Anyway, he is still NED, no treatments needed!! I long for that day :)

      12 months ago

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