Asked by JulieA on Tuesday, June 4, 2013


    7 Answers from the Community

    7 answers
    • GregP_WN's Avatar

      Yes, I have. I used to be able to do quite a bit of work in a physical job. Now I can't do half of what I used to, and the tone has dropped way off. I used to have very well defined muscles in my arms and chest, now they are gone. I'm sure mostly from just not doing what I used to. And my work out center at home does a fantastic job of holding all my clothes, so I can't blame it either.

      over 3 years ago
    • glam's Avatar

      I have lost almost all my muscles. I was sitting on my bones directly and that hurts a lot.......my skin was accumulating close over my knees and elbows.....was terrible......most of that was because I lost to much weight in few months because of a severe mucositis, so when I could start eating again, I tried to make as much exercise as I could, even a short walk counted......and now I have recovered some of them but still have lot of work to so especially with gluteus and upper legs. I also have an elyptical machine and some home gym machines at home to help me and motivate me in days I can not go outside because of sun/clarity reaction or just because I do not feel that good. God bless you and keep fighting!!!!

      over 3 years ago
    • SueRae1's Avatar

      yes, I have had muscle tone issues. I take a Pilates class once a week which has helped mitigate the problem, but I started having problems with my knees a few month back because my leg muscles were no longer supporting the joint as wells as the should, so I now am doing PT for that.

      over 3 years ago
    • geekling's Avatar


      I'm trying to be brave enough to go back to yoga which I thoroughly hated but did me a world of good.

      Swimming would be fine except I don't ever seem to get around to doing it.

      over 3 years ago
    • CAS1's Avatar

      yes its the cancer

      over 3 years ago
    • Jodi's Avatar

      Yes. Absolutely. I have been really amazed by the loss of muscle tone and strength. And...the difficulty it is to get it back. It's been a year since I stopped treatment. I cannot figure out why I am not building my leg and stomach muscles back. And...I know this sounds weird....but my feet hurt all the time now. I was a runner before treatment and never had an issue with muscle tone or strength in my stomach or legs. Now I ache all the time in my joints (hands, feet). My hips were hurting for a long time but they have stopped hurting finally. I have muscle tone back in my arms and back but not my thighs or stomach.

      over 3 years ago
    • geekling's Avatar

      I'm convinced that radiation really does a bad number on a person and am learning, the more I read here, just how poisonous is chemotherapy after all.

      No one ever told me my teeth would rot away or that it would be so difficult to fight for a semblance of normality again.

      I am somewhat underwhelmed by the medical theory of trying to kill the patient in the hope that the cancer cells die first.

      I'm all for much more positive energy these days.

      BTW, I've phoned the ACS several times to date and their assistance with numbers for either dental assistance OR hyperbaric oxygen chambers is very close to zilch. The phone number for possible dental works are, to date, disconnected, out of date, or simply too busy to reach. As for the hyperbaric oxygen chamber, I was told there are no referrals because it is "experimental".

      So glad the ACS collects so much $$. WTF do they do with it all? They haven't cured a thing and simply seem to be honing the same tired methods of torturing a person over and over and over again.

      over 3 years ago

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