• Anyone else with Papillary carcinoma?

    Asked by akane on Thursday, September 29, 2011

    Anyone else with Papillary carcinoma?

    I've found fellow co-workers with thyroid cancer but not this type. Their experiences are not what my doctor has described to me. Just wondering. Thanks.

    12 Answers from the Community

    12 answers
    • sbausman's Avatar

      Hi there,

      Yes, I had papillary carcinoma. Mine was a follicular variant, but none the less, papillary carcinoma. Most common thyroid cancers and very treatable!

      about 5 years ago
    • Fringetree's Avatar

      I, too, have had papillary carcinoma. It is very treatable; but they can never get all of the thyroid gland so mine has returned after 45 years. It is slow growing and persistent. You have to follow it the rest of your life. It is more of a nuisance than life threatening.

      about 5 years ago
    • Mereaaryn's Avatar

      I had papillary carinoma. Mine had metasized to my lymph nodes and lungs. it was a serious pain. And experiences are different depending on your variety but in general papillary thyroid cancer can be easy to treat (mine was a pain in the booty)

      almost 5 years ago
    • SMT4's Avatar

      I have papillary carcinoma as well of the follicular variant. I am getting ready to take the I131 and starting the iodine free diet in a couple of weeks. The doctors have said the prognosis is excellent and one just needs to be on top of what is going on after treatments are over. I agree with everyone else it is mainly just be aware and staying on top of it, that is the important thing.

      almost 5 years ago
    • dawgfather62's Avatar

      I too had papillary carcinoma. Complete thyroidectomy Dec. 15, 2010. Iodine 131 in Feb., 2011 (diet was pretty rough, but developed a couple of good recipes if anyone is interested). Had surgery again on Dec. 14, 2011 for more papillary carcinoma in lymph nodes. Had 15 removed, 2 with micro organisms in them. Not sure what is next, but ready to continue the fight...

      almost 5 years ago
    • ILDenlou's Avatar

      hi i am new to this only 4 days since i found out i have papillary thyroid cancer had a fnb on a 5mm nodule that was in my thyroid for years grew very slowly doctor was very surprize it was cancer haven,t been feeling well over year have to clear my voice all the time .is it worse when they are small .denlou

      over 4 years ago
    • kidswife's Avatar

      I was diagnosed in March with papilary carcinoma, i have had complete thyroiectomy now after 2 surgeries within a week of each other.... i just had my RAI I131 treatment on Friday 5-4-12.... i have had some nausea but most of all my face around my eyes are very swollen almost to the point it looks like they are shut.... does anyone know if tis is a normal side affect?????

      over 4 years ago
    • TraciD's Avatar

      I was diagnosed in May, had my complete thyroiectomy in June, and now just waiting for my appointment with the oncologist this week. Im very nervous about upcoming treatment.

      over 4 years ago
    • hgbkokopelli's Avatar

      Yes I have papillary thyroid cancer also. Diagnosed in Nov/Dec 2011 total thyroidectomy Dec 2 2011 then RAI 131 feb 20,2012 the no iodine diet for 30 days after treatment and very symptomatic with low to no thyroid. I am very excited to be going to CTCA Aug 19 for evaluation and hopefully treatment. I would like to be rid of it but it sounds like a lifetime of battle. Mine was not given stage ?

      about 4 years ago
    • katiecakes' Avatar

      This was my type, as well. Went through the typical process of the Thyroidectomy, low-iodine diet and I131 radiation. Now I have been cancer free for a year and a half. The biggest pain was finding the correct dosage of your replacement hormone (levothyroxine for me), as it took many months of altering it before i felt my energy come back.

      about 4 years ago
    • medisteve's Avatar

      Yes me.
      Steve in Western Australia.

      almost 4 years ago
    • Corri's Avatar

      This is the kind that I have, too. What bugs me the most is that I've heard over and over that this is the "easiest" cancer to have/treat. Well, it's still *cancer*--and that comes with all of the emotions, treatments, side-effects as any other cancer! My doctor likened it to a common cold so that my husband wouldn't be overly worried....so he treated me like I had a cold. It *is* a big deal. After about 2 weeks, I let my doctor have it. He wouldn't allow me to go back to work for 10 weeks (a little excessive), yet kept telling us it wasn't a big deal.....I asked what made it "less than" and his response was that it was highly treatable....yet-it needs to be treated! When I explained my perspective (surgery, treatments, recovery, life change) he agreed that he was making light of it so we wouldn't worry. UGH! Yes, it has probably not been as difficult as other cancers--but it's still shocking...and confusing...and needs treatments.....and really happening!

      almost 3 years ago

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