• Anyone familiar with 5-FU, Cetuximab (Erbitux), or Carboplatin? Has anyone ever worn a "pump?"

    Asked by packerbacker on Friday, July 27, 2012

    Anyone familiar with 5-FU, Cetuximab (Erbitux), or Carboplatin? Has anyone ever worn a "pump?"

    New nodule revealed metastatic cancer. I start the combination of meds Friday, the 27th. I had Cisplatin in the past and tolerated it with minor side effects. I'm still nervous, though. Wish me luck?

    6 Answers from the Community

    6 answers
    • Nancebeth's Avatar

      I am on 5FU along with Cytoxen and Methyltrexate for breast cancer. For me, the cytoxen in the worst of the three but the whole things kind of sucks, of course. I have a lot of the side effects that I was warned about. I don't have a pump but I get my chemo through a port.

      almost 9 years ago
    • FreeBird's Avatar

      Dad had carboplatin and taxol for his previous lung cancer. He did really well with it. Good luck!

      almost 9 years ago
    • IKickedIt's Avatar

      Absolutely, good luck!

      I received 5FU via pump over 46 hours. Not fun, more of a pain in the butt. A major inconvenience. I hated not being able to shower. I would wash my hair in the sink and then take a bath. I hated the clicking of the pump more than anything. I would wrap the pump in a blanket, pile pillows on top, wear ear plugs and take Tylenol PM to sleep. I am just easily irritated by noise.

      I thought wearing the pump would be emotionally difficult, especially since I was teaching throughout my chemo and I didn't want to scare my students or have people ask questions. It turned out to not be a big deal at all. I would wear scarves and higher-necked shirts to make sure no one would see it. I thought I would wear it in one of those cute backpack bags that are stylish. Didn't bother me at all and I returned the bags and wore it like a fanny pack.

      I received 3 chemo drugs, one of which had much more difficult side effects. I think the only side effect that was directly attributed to the 5FU was horrible constipation which was followed by horrible diarrhea, so it was a challenge to balance the two. I kept a journal of the side effects and the timing of them so I could determine a pattern and do what I could to prepare and possibly offset the problems.

      Good luck!

      almost 9 years ago
    • CarolLHRN's Avatar

      I wore a pump for 6 weeks straight receiving 5-FU. I thought it was going to be a huge pain but it's not that bad. I had the infusion through my port but I know others had a PICC line. I did shower with the pump. I hung the pump's strap on the shower rod. I covered my port with Glad Press and Seal. That stuff is amazing! I didn't stand and let the water run right on my port sight but I was able to splash around a bit. I got a shower head with a handle and Home Depot for $20 and mounted it lower in the shower so the water wouldn't run down my shoulders. I used 2 in 1 shampoo to make that easier and then Friday nights my girlfriends would get together and we'd play beauty shop. I treated myself to some expensive salon shampoo and my friends washed and conditioned my hair and then blew it dry. It was a lot of fun and we made a night of it with pizza, wine and painting nails.

      At work, I just kept the pump on my desk. I often forgot I had it with me and got up a couple of times without it. Don't tell my infusion company but the pump fell on the floor quite a few times! When I would go to meetings, I just kept the pump on my lap under the table. People didn't even notice it and if they did, they never said anything to me. It does make a clicking sound every few minutes. The first day I was very aware of it but then I didn't even notice it any more.

      I will be honest that I was happy to get rid of Mr. Pump but it was fun going to football games and security asking me to open my bag. When I said it was chemo, you should have seen the expression on their faces! My friends and I had some good laughs. I think if you don't look at it as something horrible and a pain, you can get through it. When I had my second round of chemo and only had to wear it 46 hours at a time and it wasn't bad at all.

      almost 9 years ago
    • jksatx's Avatar

      Recieved two rounds of Carboplatin and Erbitux,one before and one after surgery.Wasn't too bad only got sick once and had a bad reaction on starter dose of Erbitux.I am now almost two years cancer free.Starting to have nerve problems,had surgery on leg,just had EMG on arm may need surgery for that also.Apparently Neuropathy is a side effect,Neurologist said both are hard on nervous system.

      almost 9 years ago
    • Charlie54's Avatar

      Experience about 11 hours ago
      Charlie54 shared an experience
      Oh No (Cancer is back/Recurred ): I had a lump appear on my neck in 2005...I never smoked but I did drink for many years....after surgery to remove it, I was told it was cancer squamous cell carsonoma, I was given options to have chemo/radiation, or just watch it ..So I decided to watch it...Well 5 years later another lump appeared and this time it went from one cyst that was removed to 6 lymphnodes and the primary was located at the base of my tongue...So now I had to get chemo and radiation along with surgery to remove the 6 bad (tumor filled) lymphnodes...Treatment began 3 days after surgery, I was given Eurbotux for chemo, which did not make you sick or lose any hair, however you will break out in a terrible acne rash...I had 35 radiation treatments, the first 4 weeks were painfree, but week 5 began the daily pain in my throat/mouth area...I weighed 220lbs for many years now I went down to 168lbs...so I had to have a feeding tube put in my stomach to eat and stop the weight lost, the tube is put in during another surgery. The medicine that help my mouth pain was called by the pharmacy..MiracleMouthWash, I got it by the quart size and you will use it ..all of it...You will get fatigue during treatment and may need help getting to treatments...Now it,s been one year out and I have drymouth and must drink all day long and when eating...my taste has come back but it not the same as prior...spicey is real spicey and because your throat is now damage, you cannot eat alot or large mouth fulls...heartburn is a daily occurrance, I also have lympodema or turkey neck, but I,m 54 so I would have that anyway, it's just a little sooner...Now my summary...Although it's horrible news to get, it's no longer a Death sentence, and you will adjust to the different changes to you throat, mouth, neck, eating is different, taste is different...But through it all...I,m Alive, I feel great...You will get closer to family and friends and co-workers, almost all my caregivers were awesome, family, nurses and doctors, and friends...In my personal experience, Prayer, prayers, and talking to and trusting in God's Son...Jesu.s pull me through ...Your faith is a true healer when you trust in the Lord...I give Thanks to all who went thru the journey with me, my wife, my children, my family, my friends, and the many doctors and nurses all who did there best to help me get thru, and to help me forget the cancer journey...There will be setbacks on your journey, pain<---although tolerable---...and changes to your body that you will have no control over, but the second you finish your last treatment...each day will be better than yesterday, and although your daily thought is Cancer now, when you finish...you will not think about it again, oh sure you may have a memory from something you heard or see on tv, or online, but that's it....One more note: Stay away from the internet for information, as you will read the wrong info and make yourself crazy, thinking of death and dying...an Thank all those who will help you...I hope my story may help and comfort you on this journey, and remember it will all be over soon...Goodluck and God Bless you.....Charlie Fowee...Ohio

      over 8 years ago

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