• Anyone have any experience with atypical presentation of squamous cell cancer? No horror stories please?

    Asked by tigertk62 on Tuesday, December 6, 2011

    Anyone have any experience with atypical presentation of squamous cell cancer? No horror stories please?

    Specifically, I had a squamous cell tumor that completely destroyed my boney nasal septum. I am lucky, nasal bridge bones, orbits, hard palate and the surface of my face are so far unaffected. I have just had the tumor, cribriform plate, maxillary sinuses and all nasal structures surcically removed (endoscpoy is incredible), expect radiation, won't know about chemo 'til after a PET acan later this month.

    6 Answers from the Community

    6 answers
    • GregP_WN's Avatar

      I had squamous cell in a tonsil, had the tonsil removed with a section of the tissue around it. And a radical neck disection. I'm not sure what you mean by atypical, but my latest run up with cancer was squamous cell, the first two were Hodgkins disease. It's been 2.5 years since my last radiation treatment, follow ups every 4 months and everything is still good.

      almost 5 years ago
    • tigertk62's Avatar

      I should have said "unusual" presentation instead of atypical. It seems your squamous cell is an unusual presentation too, from what I have been able to find in researching this. Did you only have to have radiation? It's great that you have been clear!

      almost 5 years ago
    • GregP_WN's Avatar

      Yes I only had radiation. My ENT surgeon at Vanderbilt told me that this type of cancer cell didn't respond to chemo, so they done an aggressive surgery with the Idea that I wouldn't have any treament, radiation or chemo. They didn't think I could have radiation since I had it on the same area 23 years ago. A few weeks later after the "tumor team" at vanderbilt discussed my case, they agreed that I could have limited radiation, so I had 25 instead of 30 treatments. And yes it is great to keep going back and hearing that everything still looks great! Good luck to you in your treatments!

      almost 5 years ago
    • drchant's Avatar

      I have squamous cell presented in lymphnodes on left of neck. Just completed rad toncilectomy on left where the surgeon thought the PET scan showed something. Thankfully nothing in the lungs etc. SO I am now waiting results of the biopsies and a treatment plan. I don't know what a neck resection is like to go through but it scares the XXX out of me. Rad / chemo don't sound like fun either but I'm at the begining and still half checked out and half terrified.

      over 4 years ago
    • Charlie54's Avatar

      Experience about 11 hours ago
      Charlie54 shared an experience
      Oh No (Cancer is back/Recurred ): I had a lump appear on my neck in 2005...I never smoked but I did drink for many years....after surgery to remove it, I was told it was cancer squamous cell carsonoma, I was given options to have chemo/radiation, or just watch it ..So I decided to watch it...Well 5 years later another lump appeared and this time it went from one cyst that was removed to 6 lymphnodes and the primary was located at the base of my tongue...So now I had to get chemo and radiation along with surgery to remove the 6 bad (tumor filled) lymphnodes...Treatment began 3 days after surgery, I was given Eurbotux for chemo, which did not make you sick or lose any hair, however you will break out in a terrible acne rash...I had 35 radiation treatments, the first 4 weeks were painfree, but week 5 began the daily pain in my throat/mouth area...I weighed 220lbs for many years now I went down to 168lbs...so I had to have a feeding tube put in my stomach to eat and stop the weight lost, the tube is put in during another surgery. The medicine that help my mouth pain was called by the pharmacy..MiracleMouthWash, I got it by the quart size and you will use it ..all of it...You will get fatigue during treatment and may need help getting to treatments...Now it,s been one year out and I have drymouth and must drink all day long and when eating...my taste has come back but it not the same as prior...spicey is real spicey and because your throat is now damage, you cannot eat alot or large mouth fulls...heartburn is a daily occurrance, I also have lympodema or turkey neck, but I,m 54 so I would have that anyway, it's just a little sooner...Now my summary...Although it's horrible news to get, it's no longer a Death sentence, and you will adjust to the different changes to you throat, mouth, neck, eating is different, taste is different...But through it all...I,m Alive, I feel great...You will get closer to family and friends and co-workers, almost all my caregivers were awesome, family, nurses and doctors, and friends...In my personal experience, Prayer, prayers, and talking to and trusting in God's Son...Jesu.s pull me through ...Your faith is a true healer when you trust in the Lord...I give Thanks to all who went thru the journey with me, my wife, my children, my family, my friends, and the many doctors and nurses all who did there best to help me get thru, and to help me forget the cancer journey...There will be setbacks on your journey, pain<---although tolerable---...and changes to your body that you will have no control over, but the second you finish your last treatment...each day will be better than yesterday, and although your daily thought is Cancer now, when you finish...you will not think about it again, oh sure you may have a memory from something you heard or see on tv, or online, but that's it....One more note: Stay away from the internet for information, as you will read the wrong info and make yourself crazy, thinking of death and dying...an Thank all those who will help you...I hope my story may help and comfort you on this journey, and remember it will all be over soon...Goodluck and God Bless you.....Charlie Fowee...Ohio

      about 4 years ago

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