• Anyone have experience with Vitrakvi?

    Asked by kalindria on Friday, June 26, 2020

    Anyone have experience with Vitrakvi?

    There's a clinical trial for this drug currently going but wondering if anyone here has taken it or knows anyone who has and what their experience has been like. Thanks!

    5 Answers from the Community

    5 answers
    • po18guy's Avatar
      po18guy

      Since this is a rather new drug, chances are that there are few who have experience with it. You might contact the lead investigator of the clinical trial and see what the indications so far are. Depending on your insurance, such a clinical trial can save you untold costs, as the sponsoring drug company pays all drug, scanning, checkups and even mileage that are outside of the "standard of care" for the illness. That can be huge.

      For example, in[phone number redacted], I was in a phase 2/3 clinical trial and then in a long term study of the drug once it was FDA approved. The sponsoring drug company must have invested between one-half to one million dollars just in my case.

      10 days ago
    • GregP_WN's Avatar
      GregP_WN

      I searched our database in the experiences tab and I don't find any mention of that drug there. That doesn't mean nobody here has used it, only that no one has mentioned it.

      10 days ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      My clinical trial paid for the drugs, but it didn't pay for scans, checkups or mileage. They called all of that "standard of care" even though I learned afterwards that it exceeded standard of care. For instance, I always had two scans, every 6 weeks, during the trial. When I got out of the trial, but remained on Opdivo, I had one scan every 4 months. The trial SHOULD have paid for the excessive scans, but did not. (Since it was entirely new to me, I was unaware of what standard of care would have been compared to trial requirements until after the trial ended.)

      I loved being in the trial - I felt like the level of care I got all the way around was superior to what I have gotten since I got out of the trial. I would get into another in a flash if there was an appropriate trial for me.

      10 days ago
    • po18guy's Avatar
      po18guy

      @LiveWithCancer Why, the wascally wabbits! It seems that your insurance company would have grounds to go after them. In trial and long-term study, I was scanned at least every three months for five years. No way my insurance company would have borne that burden.

      10 days ago
    • kalindria's Avatar
      kalindria

      HI all. I guess I wasn't clear enough.

      I have been in a clinical trial and know how they work. I Googled the drug and know all that info too. And I searched the database and also found no info. What I was looking for was anyone who is a member of this site who has taken or cares for someone who has taken this drug.

      If you can't comment on that, please refrain.

      10 days ago

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