• Anyone here have a GIST? (Gastrointestinal Stromal Tumor) If so, what sort of physical problems are you having, if any?

    Asked by Molly72 on Wednesday, December 7, 2011

    Anyone here have a GIST? (Gastrointestinal Stromal Tumor) If so, what sort of physical problems are you having, if any?

    How was your surgery, length of time in hospital, recovery time etc.?

    3 Answers from the Community

    • KarenG_WN's Avatar
      KarenG_WN

      Hi Molly72,

      I see that you are trying to get some feedback from others affected by GIST. I am hopeful that someone on WhatNext will be able to share their experiences with you. In the meantime, I am also seeking others via Facebook and Twitter account in hopes they might be able to help.

      Thank you!
      Karen

      almost 6 years ago
    • Molly72's Avatar
      Molly72

      Thanks Karen,
      I know it's a fairly rare condition, and I am going in in a few days to have surgery & would like to be somewhat prepared.
      I don't do Facebook or the other type of social networking sites as they are too public for this type of conversation, or maybe I am too old! LOL
      Thanks again for your concern.

      almost 6 years ago
    • martyp's Avatar
      martyp

      Well I am new here and see that this question is a bit old. I would love to know how things went for you.

      I have gist . It was found when I went to the emergency room for what we thought was my appendix. With in 12 hours I lost some of my intestines and my appendix. It took a week in the hospital and then 7 weeks ay home .

      I just started back at work this week and the 1 day just wore me out.

      I would like to know if you are taking gleevec.

      about 5 years ago

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