• Anyone here have multiple myeloma?

    Asked by STEVEN2 on Saturday, February 2, 2013

    Anyone here have multiple myeloma?

    3 Answers from the Community

    • GregP_WN's Avatar

      Hi Steven, You can click on the People tab in the blue bar above, then on the left side of the page click people, then in the diagnoses section click Multiple myeloma, this will bring back all of the people registered on the site with that Dx. Here is a link to our Multiple Myeloma page, with some people listed at the bottom, as well as other info.

      Let me know if I can help you find any info your need.


      over 6 years ago
    • Cat's Avatar

      Yes! Diagnosed 1 1/2 years ago. Thought I pulled my groin kick starting my dirt bike. Ha surprise 2 mm of femur almost gone. Felt like a train hit me! Thought that It was all over. NOT true. Went to Standford to a rock star of a surgeon. Had two surgeries now have a rod in my leg. I'm back rideing my Harley. Getting stronger. Takeing chemo pills w dex. Bone strengthing iv once a month. It's hard mentally sometimes my mind go's crazy but I'm still here. And so are you. Hang tough, that's what we have to do. Try to be positive as much as you can. That's what everyone tells me even though sometimes it's hard.
      Hopefully Cat

      over 6 years ago
    • Therose's Avatar

      Yes I have multiple myeloma. I was diagnosed in November,2008 I have had chemo-Velcade,stem cell transplant, up until recently I also had maintenance of 50mg of thalidamide daily. From 10/09-10/12. Since April , 2009 been cancerfree. I am not familiar with the type of therapy you suggested. Are you a member of LLS society. Do get me wrong will attempt to spell it out. Leukemia, lymphoma Society. They have classes online and by phone, chat line on Tuesday, and some funding for medical expenses.

      over 6 years ago

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