• anyone on herceptin indefinetly ?

    Asked by Lynn51 on Tuesday, July 17, 2012

    anyone on herceptin indefinetly ?

    I have been on for two years now, recently moved to Utah and Dr here wants to take me off . I am scared that if cancer comes back it will I catch it in time ? mine was so aggressive it overwhelmed my left breast in 3 weeks.

    3 Answers from the Community

    • nancyjac's Avatar

      I am still on herceptin but my plan is to stop after 1 year. Unfortunately the drug is still too new for there to be any long term studies weighing the risks vs benefits of continuing it for a longer period of time. I hope you have had your heart monitored closely for the time you have been on herceptin. In any case, cancer can recur with or without herceptin and catching a recurrence quickly really doesn't have anything to do with whether you continue on herceptin.

      over 8 years ago
    • Kris' Avatar

      I agree with nancyjac. I was on for one year and my biggest concern was my heart and how it would do. Please make sure to have your doctor checking that while you are on herceptin. I do understand your fear. I know I still have concerns and little things trigger the fear; I try not to let it consume me but for everyone on this journey each step is different and their own, not anyone else's.

      over 8 years ago
    • Scheryl's Avatar

      My Oncologist has me on Herceptin for a total of 1 year with a heart Echo every 3 months. I did not know that it was given for more than 12 months. It is scary to think about going off as it is my last "attachment" to treatment.

      over 8 years ago

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