• Anyone uses Prolia to treat Osteoporosis?

    Asked by CancerFree2015 on Thursday, September 21, 2017

    Anyone uses Prolia to treat Osteoporosis?

    After being on Femara for 2 years and a half, my latest Dexscan shows that my T-score is -2.8 and my physician wants to put me on Prolia. I am a bit nervous about this. Anyone wants to share their experience? I would appreciate greatly.

    11 Answers from the Community

    11 answers
    • geekling's Avatar
      geekling

      NO.

      I use zero prescribed pills or potions, have had 80 radiation session and 1 chenotherapy session and one botched chemotherapy which left me with a blood disease I have managed to rout.

      My last bone density test was in March or April (not exactly sure) and was a -1.9 or slightly thinning. I had also gone a couple of months (surgery) with no exercise. Movement is important.

      I eat really well.

      Minerals are in cucumbers, celery, and nuts/seeds along with cruciferous veggies and juicy greens.

      Molybendum is a rare mineral. I also use herbal teas to keep my bones stronger. I run a micro herbal shop where I sell fresh teas to make one feel better and keep bone density where it ought to be.

      www.etsy.com/shop/rawmaven

      3 months ago
    • debsweb18's Avatar
      debsweb18

      Yes I have osteopenia and have had 2 injections of prolia. I haven't had any side effects and my dr said it gives protection from the reoccurring.

      3 months ago
    • 2943's Avatar
      2943

      I have osteoporosis . I have had two Prolia 'injections'. Really a shot that just takes longer. Take regular Claritin (not D) day of shot and day after. No problems... had injection in fat in arm. Easy peasy! ( they talked about injection in stomach... not this girl) but nothing to it!

      3 months ago
    • Kris103's Avatar
      Kris103

      I've got osteopenia in my hip. My doctor wanted me to go on Prolia, but I decided against it. Apparently it can have some pretty severe side effects to teeth and jawbones. I've got pretty crappy teeth, but I'm doing what I can to keep them. There are a couple that will probably need to be pulled in the next year. So I get a lot of calcium and Vitamin D every day and exercise daily, too. My bone density scans show no deterioration over the past couple of years, so I'm good with that.

      3 months ago
    • Nanzee's Avatar
      Nanzee (Best Answer!)

      I'm having my second Prolia shot today. I noticed NOTHING from the first one six months ago. I have osteopenia, and some older family members have had severe consequences from falls--terrible wrist and ankle fractures that required surgical reconstruction, deterioration of vertebrae leaving them stooped and in pain. My very experienced oncologist has used Prolia for years, and has never seen a case of jaw necrosis in his own patients. The one person he did see with it, another doctor's patient, was having very high doses of Prolia for bone mets. I'm going to take advantage of this treatment. Sure, it's a risk, but so is anything in life!

      3 months ago
    • threewillows' Avatar
      threewillows

      Yes I take Prolea. Have for about two and a half years. I have osteoporosis. Strong family history plus chemo tamoxifen and hormone blockers. Prolea has raised my bone density. One concern with Prolea is dental work. I would suggest a good dental check up before starting and good communication with your Dentist about your treatment. Also when having the injection be sure to stay very hydrated before and the first few days after to avoid some at least for me some pretty serious flu like symptoms.

      3 months ago
    • CancerFree2015's Avatar
      CancerFree2015

      Thank you so much for your answers. It is very appreciated. It helps making my decision.

      3 months ago
    • andreacha's Avatar
      andreacha

      I have had Osteoporosis and was given Alendronate (Fosamax). After a year the condition was downgraded to Osteopenia. My Primary at the time had me stop the meds. About a year later I asked my new Primary about a dexascan. and he ordered it for me. Sure enough I had to go back on the Alendronate. It's been a year and a half now and I just got scanned again. My condition is worse than it's ever been! My Oncologist and Primary got together and came up with the Prolia idea. I spoke to my niece who is an NP and she told me of all the possible side effects. The biggest fear for me is my teeth. I need 4 extracted (2 surgically I think). When I saw pictures of the jaw necrosis I just said no, I couldn't do it. I can't afford to have the teeth taken care of properly. I just pray that there are no falls. I've already had 2 back fractures with no falls at all. You can bend over, reach too high or twist slightly and have a fracture. I spoke to my pharmacist about the Prolia and he knows of several of his customers that get the shots and appear to be fine. I sure wish you the best.

      3 months ago
    • ChicagoSandy's Avatar
      ChicagoSandy

      Get your dental work done first, and then wait at least 3 months (preferably 6) before starting Prolia. Not all dental work is dangerous--regular cleanings & fillings are fine. But anything invasive--root canals, new crowns, deep root-planing, extractions, implants--shouldn't be done while on Prolia.

      I just had my second Prolia shot. No side effects at all. After the first one last spring I felt a bit achy for a few hrs. the next day but was fine by evening. I'd originally started on Zometa after my DexaScan (just before starting radiation, wasn't yet on letrozole) showed osteopenia. The Zometa was a nightmare--took 5 tries to find a vein, it burned with each pulse of the pump, and I felt like I had the flu for several days despite taking Claritin for the bone aches. Even had some foot neuropathy and had to take a Lyrica. Prolia is a breeze by comparison. Didn't even need Claritin this time.

      3 months ago
    • Nanzee's Avatar
      Nanzee

      Great advice, ChicagoSandy! I know dental work is expensive, but I'd make it an absolute priority. You might have no idea just how disabled you can be by bone fractures. I've been through them while helping family members. Imagine losing your mobility or the use of one (or both) arms and hands for weeks or months, with wires and splints, pain, doctor visits, rehab and physical therapy for more weeks and months. The incidence of jaw necrosis is so low at normal doses--instead of looking at scary photographs, find the numbers of cases per 100,000 patients. You will find the low incidence reassuring.

      3 months ago
    • ChicagoSandy's Avatar
      ChicagoSandy

      Oh, I know how disabling a fracture can be. I had my leg shattered 21 yrs. ago by a car bumper as I crossed a street with the light. I left the hospital & rehab with a tibia full of hardware holding together bone chips & epoxy. It changed my life, brought on traumatic arthritis & weight gain due to inability to exercise, made travel and performing (I'm a singer-songwriter) a challenge, and eventually necessitated total knee replacements. I'm much better now, but those first 15 yrs after the accident were no picnic. I despaired of ever being able to walk normally again.

      And three months ago, I lost a dear, dear friend at only age 70 to the consequences of a broken hip. She had COPD (oxygen-dependent) & diabetes, was osteoporotic & frail, and spent a year in skilled-nursing and then assisted living. She only had 6 months to enjoy the fully-accessible home she & her husband had bought.

      Life-altering fractures from osteoporosis are far, far commoner than side effects of treatments.

      3 months ago

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