• Anyone using 5 FU as a treatment?

    Asked by Coach on Saturday, August 18, 2018

    Anyone using 5 FU as a treatment?

    9 Answers from the Community

    9 answers
    • BoiseB's Avatar
      BoiseB

      I was treated with 5FU for stage IV esophageal cancer. It was brutal but I an still here 8 years later,

      about 1 month ago
    • IKickedIt's Avatar
      IKickedIt

      I had 12 rounds of 5FU infusion via pump over 46 hours for Stage III colon cancer. It was difficult and not so pleasant, but I wouldn't say it was brutal for me. Everyone tolerates it differently, has different side effects with varying degrees of severity/intensity. 6 1/2 years cancer-free.

      about 1 month ago
    • Coach's Avatar
      Coach

      Any problems with your eyesight or heart?

      about 1 month ago
    • BoiseB's Avatar
      BoiseB

      Sad to say yes 5FU did damage to my optic nerve and to my auditory canal which affects balance. As I IKickedIt says everyone is different. When I was diagnosed with esophageal cancer I was in a very weak state and esophageal cancer is a very brutal cancer. I may have blurry vision and I am now working on improving my balance. I am totally glad to be alive.

      about 1 month ago
    • JaneA's Avatar
      JaneA

      I had 12 rounds of 5FU for Stage IV rectal cancer - it was part of my chemo cocktail. I only noticed fatigue as a direct effect - the day after the pump came off, I was exhausted.

      Everyone is different and responds to drugs differently.

      about 1 month ago
    • Lauraandmary's Avatar
      Lauraandmary

      Mom had 7 rounds continuous 5-FU (6- day continuous infusion each round) as part of her treatment protocol. She also had daily radiation during her infusions. It was tough, difficult to say if it was the 5-FU or the combination.

      about 1 month ago
    • Lauraandmary's Avatar
      Lauraandmary

      Mom had damage to her right eye, but the cancer was in the right maxillary sinus with right optic nerve impingement. Her right eye was also in the field of radiation, as was her left ear; she has damage to both, though I believe it was due to the radiation. No heart problems.

      about 1 month ago
    • Lauraandmary's Avatar
      Lauraandmary

      Sorry to keep adding things. She did have a lot of eye irritation during active treatment and needed eye drops every 4 hours. I don't believe she had permanent damage to the left eye, but she did to the right eye (again, probably due to radiation). She did have lens implants to both eyes for cataracts prior to diagnosis and that may have sort of protected the corneas.

      about 1 month ago
    • IKickedIt's Avatar
      IKickedIt

      No problems with eyes or heart. Lots of other problems, but doctors have determined that most of my problems were due to the other drug in my cocktail which caused ototoxicity and vestibular dysfunction (@BoiseB, find a physical therapist who specializes in vestibular dysfuction. I had to basically learn how to walk again. My PT didn't think I'd ever function within a normal range again since I had very severe bilateral vestibular dysfuction, but she performed wonders and while I'm not 100% and still need to be careful, I am drastically improved and normally well within a normal range.) I don't believe any long-term effects that I have were due to 5FU.

      about 1 month ago

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