• Anyone who has had more than 4 cycles of Interleukin 2?

    Asked by rocketman on Monday, February 20, 2012

    Anyone who has had more than 4 cycles of Interleukin 2?

    I had a kidney removed, and had 4 cycles of IL2 in 2011. We were trying to maximize our insurance coverage and save out of pocket expenses by completing it all before the end of the year. I am lucky to be in the 20% that have some response to the treatment. Now my oncologist wants to get me into the 6% that have complete response.

    I had two post treatment CT scans, each of them showing the tumors in my lung shrinking. However, two tumors are not responding and the doctor is concerned. I have another CT in March along with a follow-up appointment, at which time we will decide our next steps.

    He has already mentioned further treatments. I am wondering if it will be similar to the first four cycles. I know it is the only game in town. But, I am not relishing the thought of further treatment and the expense.

    2 Answers from the Community

    • isnoop's Avatar
      isnoop

      hi, just saw your questions. i had 3 x interleukin and am now "clean" for almost 5 years. i am anxious to find out what you did.

      over 1 year ago
    • RobinMartinez's Avatar
      RobinMartinez

      Rocketman, it gets confusing when talking about "rounds" and "cycles" of Interleukin-2. Most people use the term "round" to describe two cycles (each cycle being a week of in-hospital treatment followed by a week or more at home). If that's what you mean by a cycle, then you had two rounds of IL-2 treatment. That is pretty normal for people who respond. A third and even a fourth round is possible for people who respond but who have not yet gotten a complete response.

      You should also know that IL-2 can continue to work for months after treatment ends. Some people whose initial response didn't look as good as yours ended up being complete responders this way, so keep hoping.

      Also be sure to avoid all steroids during IL-2 treatment and for at least six months after treatment stops. Steroids bring the IL-2's effectiveness to a halt because steroids reduce your immune response. Don't even use hydrocortisone cream on your itchy skin!

      about 1 year ago

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