• anyone with mantle cell just started growing tumors between hip and gluts?

    Asked by Cookie48 on Wednesday, February 13, 2019

    anyone with mantle cell just started growing tumors between hip and gluts?

    15 cm by 8 cm on rt hip-now left-painful can not lay on side-onocologist said ignore just lipomas but nausea and hurt. now have 4 since dec---they say needle biopsy can not be done--too bloody to attempt slice and surgeon and onocologist are in a fight over it. I called md anderson as specialist in mantle cell but they turned me over to ortho/ in case fits their area of expertize on tumor . I really do not comprehend this!I understand the remark that its impossible for a person to get such a rare cancer to turn up with another rare cancer--but I hardly plan this--I need care.
    The c-scan looked fine(no new lymph problems)(bones ok) just a little 2.5 cm growth in ascending of large bowel.
    But pc said i have had too much bowel surgery/resection to ignore anything.
    So basically these big things are growing off my sides,uncomfortable fairly new- fast growing and revealed by ultrasound-first one was -others have grown since december and 20.5 cm now. help!

    4 Answers from the Community

    4 answers
    • GregP_WN's Avatar
      GregP_WN

      That's not my type of cancer, but one way of finding lots of information that is stored here on the site is to click on the diagnosis tab, then search for mantle cell in the cancer types and you will get every person on the site that has listed mantle cell as their type of diagnosis. Someone will see this and have some information for you.

      3 months ago
    • po18guy's Avatar
      po18guy

      Sorry to hear of this. If there is truly something growing in there - not inflammation or a true lipoma or lymphaeema from other procedures, then a CT scan (and possibly PET scan) would seem to be in order. Lymphoma can grow anywhere it wants to in the body. It is a cancer of the immune system and so can develop everywhere our immune system exists. If all are arguing over what it is, then diagnostics need to begin and scanning and some type of biopsy would seem to be proper.

      I don't know where you are being treated but I would run for my life to a facility such as MD Anderson or other. If you are having trouble processing all of this, take spouse, family member, neighbor or friend with you to assist - evne by taking notes and asking questions if need be.

      3 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Wow, Cookie48, sounds like you've been through the wringer. Are you a patient at MD Anderson or did you call them for a consult?

      If you're not happy with their ideas, can you go at least once to Memorial Sloan Kettering for a second opinion? Or, even to UTSW where I go here in Dallas? They're not ranked as high, but I can't say enough nice things about them (though I see the docs in the lung cancer part).

      I agree with po18guy that it sounds like more tests are in order because if I am reading your post correctly, there's no consensus on what is causing your pain or what the tumors / growths even are.

      Best of luck. You definitely sound like you are in a difficult place right now.

      3 months ago
    • cards7up's Avatar
      cards7up

      Lipomas are not cancer, they're benign fatty tumors. And I'd see an ortho specialist about having it removed. They continue to grow and can cause lifetime problems. I've had three removed. Two in my back and one on my arm. As soon as I found them, I had them removed. Both my sisters, one older and younger have them on their arm and never had them removed. Now they're huge and hang down, very unsightly. Have it checked again and see about getting it removed if it is a lipoma.

      3 months ago

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