• Anyone with salivary gland cancer, acinic cell?

    Asked by mlts121 on Saturday, May 11, 2013

    Anyone with salivary gland cancer, acinic cell?

    Is there light at the end of the tunnel? I'd like to hear from someone that has gone/is going through this and how they are doing now.

    3 Answers from the Community

    • Dick_K's Avatar
      Dick_K (Best Answer!)

      While I did not have acinic cell carcinoma, I did have myoepithelial carcinoma, in my parotid gland. This was in 2007 and it was surgically removed by having a partial parotidectomy. While I’ve since been diagnosed with malignant melanoma, squamous cell carcinoma, and prostate cancer, there has been no sign of anything in my parotid gland or the myoephithelial carcinoma returning. Hope this helps and good luck to you.

      over 5 years ago
    • carm's Avatar

      I hope you find the answer you seek from one with first hand knowledge. I am an oncology nurse and until you do, let me give you a bit of information on Acinic Cell Carcinoma or ACC. It reflects about 6-10% of salivary gland cancers so it is rare. It usually affects the parotid gland and occasionally the submandibular and major/minor salivary glands. It used to be referred to as a benign adenoma at one time but I think the NCI reclassified it because although it rarely metastasizes to the lymph nodes, it is possible in about 15% of cases. It is considered a low-grade behavioral tumor with a slow growing personality. The outcome with this type of carcinoma is indeed favorable, and is usually treated by surgical or radiation means. I hope this helps you. Best of luck to you, Carm RN.

      over 5 years ago
    • mlts121's Avatar

      Thank you for your responses. One big frustration is that my radiology oncologist hasn't been able to prepare me for the side effects of the radiation treatments. The left parotid was removed along with the tumor, but it was wrapped around my facial nerve so that's where I get the radiation. Side effects started after the 3rd tx. Numbness, tingling and a burning sensation in the roof of my mouth and tongue at first and then progressed to include, eye pain and difficulty focusing with my left eye, earache, phantom tooth pain, jaw pain, cheek and sinus pressure & pain. None of this was mentioned to me and came as an unpleasant surprise. I just started steriods to stop some of the inflammation to the area. I'll let you know if it helps. The evil mask I have to wear during tx. is a whole different issue, but I'll save that for another time.

      over 5 years ago

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