• Are there any men out there with prostate cancer having a gleason score greater than 7?

    Asked by Kenster on Friday, January 20, 2012

    Are there any men out there with prostate cancer having a gleason score greater than 7?

    I'm asking because my cancer is a gleason 9 and after surgery it was found I had positive margins and invasion of surrounding tissue. I guess you know I'm plenty worried.

    7 Answers from the Community

    7 answers
    • JannD's Avatar

      My husband was diagnosed 8 months ago. He was at stage 4 when it ws found. The strange thing was that the prostate was essentially untouched. It still looks fine! It moved right into the lymph system. Problem with that is there was no possibility of surgery, or "seeds" or other treatments like that. He started with hormonal treatments, and they were working fine. But in Dec. we were told his PSA rose again from 0.2 to 2.28. The doc ordered a new CT scan and bone scan. Not good. Shows new growth. So, we are just now going to start chemo. I was wondering how that has gone for you? He will be taking Decetaxil. They will possibly add Prednisone.
      I would appreciate any info on side effects from a real patient instead of a list.

      As far as a Geeason scale, he did not have an official one, but the doctor said it would be estimated to by an 8 or 9. Yep, we are nervous, too.
      We just got back from Bethesda, MD to hear about a research study. Bad news is it is best for slow growing cancers and people with no symptoms. Jack has pain. Plus, we would have to travel by train several hours every three weeks. No info, if it would help, just 50/50.
      Plus, it is four drugs with all their side effects. So, we will stay home and take our chances with something known. Please write and let us know how you are feeling. Thanks

      over 8 years ago
    • Kenster's Avatar

      Hi JannD,
      Sorry to hear about your husband's cancer. I am not yet on any type of chemo therapy. I am currently receiving radiation treatments along with hormone therapy (Lupron) so I can't really help you with chemo side effects. I'm new to this website, but I feel sure that if you ask your question, you will find numerous people out there on chemo therapy that can give you the answers you're looking for. Good luck and keep a positive attitude.

      over 8 years ago
    • Afterglow's Avatar

      Diagnosed May, 2009. Out of 12 cores in the biopsy, I had two Gleason 8's, PSA 25.9, stage T2aN0M0. No surgery and no evidence of cancer spreading to lymph nodes or seminal vesicles. I had both radiation (IMRT) and hormone treatments. Radiation was 45 treatments and hormones for 2 years. At last PSA screen last Sept., PSA was undetectable. Next follow-up scheduled for March so we'll see what happens. Urologist has warned me to expect some increase in PSA as the testosterone returns.

      over 8 years ago
    • Kenster's Avatar

      Hi Afterglow,
      I purchased a book from Amazon.com titled "Dr. Patrick Walsh's Guide to Surviving Prostate Cancer". On page 392 he states "...if a man stops taking hormonal therapy, his PSA will begin to rise. Eventually, the effect of the radiation takes over, and the PSA will sink back down". He goes on to explain that this process good lead to needless worry. Hope this bit of info helps you.

      over 8 years ago
    • MAGNUM1's Avatar

      I am an 8 year prostate cancer survivor.

      When I was diagnosed, my Gleason was a 6, based on biopsy.

      I subsequently opted for the robotic surgery. Gleason was elevated to a 7, when the prostate was removed. The cancer covered 60% of the prostate itself; and had already spread adjacent to the prostate.

      I under went 8 weeks of radiation treatments, when the cancer returned, again.

      My PSA is checked every 6 months now, with very minimal increase. Been 8 years since my diagnosis..........

      over 8 years ago
    • tspoon's Avatar

      Husband diagnosed march 11, gleason 9, psa 1913, stage 4. Has been doing hormone therapy, zoladex, and his psa is now. 05, testerone 4. Other than pain from damage to his bones, he is great. Side effects get bothersome sometimes for him, but he deals. I am sorry for your diagnosis and it sounds like you are gathering your info. Good luck, and i will be watching for your post.

      over 8 years ago
    • walton1410's Avatar

      Fouteen months ago I was diagnosed with prostate cancer with a Gleison 8. I had 43 Direct Beam Radiation treatments and take three month injections of Lupron. In March I developed Radiation Protitis due to radiation burns of my colon. I have been hospitalized 8 times due to the bleeding with the treatment being carteriation of my colon to stop the bleeding. I have also had to have two pints of blood. Although my PSA has remained .01 since radiation treatment, the Radiation Proctitus has been horrible. The amemia has been the worst issue. It appears the radiation was an effective treatment of the prostate cancer, although the burns created many problems. I have to remain on Lupron for at least 3 years due to my Gleison 8 rating.

      about 8 years ago

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