• Are there any triple negatives out there that feel like it's only a matter of time before it comes back?

    Asked by jag1110 on Tuesday, February 5, 2013

    Are there any triple negatives out there that feel like it's only a matter of time before it comes back?

    I completed treatment 8/12 and worry about the triple neg. thing. I don't understand it or no much about it. My husband and I thought it was a good thing at first, thats how clueless we were.

    6 Answers from the Community

    6 answers
    • nancyjac's Avatar

      It is neither a good thing nor a bad thing, it is just one adjective of many to describe your cancer. As a triple positive inflammatory breast cancer, stage 3B survivor, I probably have a significantly higher risk of recurrence than you do. None the less, concern about recurrence is universal among all cancer survivors.

      over 3 years ago
    • SueRae1's Avatar

      I have TNBC - it's amazing how many new treats are available or in the pipeline. Every one who has any type of cancer, no matter what stage they are in, active treatment. remission, etc, have that feeling in the back of their minds, that it will come back. It's normal. Modern Medicine has so many new treatments for TNBC as many more in the pipeline. Concentrate on getting through your treatments, and figuring out how to live your life in ways that make you the happiest.

      over 3 years ago
    • Mel's Avatar

      Hi, For Sure I do!!!... ugh... I have to laugh a bit at your last sentence. Took me back to when i would tell people I had Breast Cancer was BRCA1 Positive and also Triple Negative and I'd Ohhhhh really in that sad not so good voice and I'm like hmm ok guess that's not good... :) But seriously I deal as I'm sure all of us do with up and down feelings and emotions everyday still. I finished treatment 11/27.

      over 3 years ago
    • SusanK's Avatar

      It's tough not to think about it occasionally. Every cancer patient worries to some degree about recurrence. Triple negative...most people lump breast cancer into one category. My family physician has limited knowledge of tn and so does my plastic surgeon. I have to keep reminding them that no, I am not taking any drugs for it because it's not fueled by hormones. When I worry, I try to search out the positives of my cancer. My lymph nodes were clear and the margins were good. I also feel like I've done all I can do--mastectomy and that killer chemo. I try to get on with life, enjoying my family and treasuring the good times with friends and my husband. Cancer is a part of my life/history, but I won't let it rule my life as it did for nearly a year of surgeries, chemo and recovery. Stay strong and find positives in your life to cling to. Visit the tnbcfoundation.org website for a downloadable booklet on tnbc if you haven't already done so. Good luck.

      over 3 years ago
    • MarnieC's Avatar

      Hi jag1110 - I didn't have TNBC but I did have that feeling and there were several things that helped me through that (because I knew it to be a detrimental way to think): (1) I went to see a counselor, (2) I checked into EFT (which helped me a lot), and last but not least (3) I began meditation and focusing on more positive ways to think, stress reduction, etc. The meditation was the thing that made the biggest difference for me. I found out that by changing your mind, you can change your life. The cells of your body are listening to your thoughts and doing their bidding, so learning how to put aside thoughts that don't serve you is a really good step in the right direction. I now teach meditation - I'd love to help you if you're open to that. Hugs!

      over 3 years ago
    • Jaimebrie's Avatar

      Hi jag1110,

      I definitely feel that way. I completed treatment in 2011 and I worry about being triple negative too. I had told my oncologist that I wanted to take tamoxifen or femara or arimidex but of course she told me I could not take any of those drugs because they would not help me since I am triple negative. I told her at least I would feel like I am doing something to help prevent the cancer from coming back. After chemo, I was "on my own" as far as meds were concerned and that was scary, for as much as I hated having chemo and was deathly ill from the chemo and was hospitalized many times and always dehydrated and had to go for fluids at least twice a week, at least I felt I was doing something to fight the cancer. But I am staying strong and positive and my cancer is in remission right now. Whoo hoo! All good positive thoughts to you and stay strong.
      Best always,

      over 3 years ago

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