• Are there any triple negitive survivors over 3 years?

    Asked by Irishscott on Wednesday, March 27, 2013

    Are there any triple negitive survivors over 3 years?

    I was orignally told that my chances were 80% survivor rate. Now, it seems that I may live only 1-3 years depending. Can this type of cancer be beat? Is it worth having Chemo and surgery and radiation?

    19 Answers from the Community

    19 answers
    • nancyjac's Avatar

      There are millions of them. Whether your are triple negative or not is only one factor, and often a minor factor is cancer metastasis or recurrence or survival. I first had breast cancer 20 years ago.

      over 4 years ago
    • cris' Avatar

      I have tnbc since Sept 2012, I feel any cancer can be beat, you are worth it so yes Chemo, Surgery & radiation is worth it. It is scary but anything we don't understand is, so fight & keep a positive attitude it helps, thinking of you!!!!

      over 4 years ago
    • SandiD's Avatar

      I am not triple negative, but I am a two time cancer survivor (colon and breast)! It ain't over until it's over. What have you got to lose by fighting this horrid disease? Fight girl! I wish you the very best.

      over 4 years ago
    • ticklingcancer's Avatar

      I have a friend that has TNBC and has been in remission for 5 years. Thank goodness she made the decision to go through chemo and radiation. Don't give up!!

      over 4 years ago
    • leepenn's Avatar

      Do you have new information about your cancer? Will you have chemo before surgery? Do you have evidence of cancer outside of your breast(s)? There are so many questions that go into figuring out your recurrence risk and so on... You should ask your health care team these questions.

      So much of this is UNKNOWN, and it's so very hard to NO KNOW!!!! Some days, I feel down right kranky about how much I simply don't know. I finished chemo in Jan 2012 and had double mastectomy in Feb 2012. I am now just over one year since finishing treatment... Because I had chemo BEFORE surgery, I get to know that the chemo was effective. I had a complete pathological response - that means the tumor was completely killed off by the chemo. This strongly drops my recurrence risk, which was music to my ears for sure!

      Looks like you've had a ROUGH MONTH!!!! Car accident? Cancer diagnosis? Ugh!

      I do feel like that once treatment truly begins, you'll feel better... at least, I did. I felt like I was DOING something... as opposed to waiting and waiting and waiting. Does that make sense?

      I also went to all of my appointments with questions written down. That way, I was able to ask all of them ... and be sure I didn't forget any of them. So, I highly recommend taht you take the above questions with you to your next appointment... Those questions PLUS any other questions you have about what drugs you will receive, how many treatments you will receive, etc....

      Good luck. This diagnosis sucks - there's no doubt of that. But treatments are improving... and people are beating triple negative breast cancer. I truly hope that we are both two of those people!

      Best wishes,


      over 4 years ago
    • karen1956's Avatar

      I'm not TNBC, but I knew several gals who are and they are more than 8 years from Dx.....and yes, its worth doing Tx cuz without Tx you wont know how long you will live....I use 100% as my guide....while I'm healthy I'm 100% cancer free....or another way I look at it, its 100%...either it won't come back or it will.....No one can tell you how long you will live....go for the treatment and live your life to the fullest!!!!!

      over 4 years ago
    • JennyMiller's Avatar

      Any cancer is worth fighting!! I chose to be aggressive against this evil and elusive enemy -- Surgery, Chemo, Radiation -- I wanted to have the peace of mind of knowing that I have done everything possible. I was concerned about my 8 out of 11 positive lymph nodes - then I found a Site dedicated to Long Term Survivors with extensive lymph node involvement. There were some with 20 and more involved lymph nodes that are 15+ years out. As nancyjac said, there are millions of survivors -- so never give up hope -- "Get your pink on and fight like a girl"!!! Good Luck.

      over 4 years ago
    • SusanK's Avatar

      My surgeon's demeanor changed when she told me I had tnbc, so I know what you are feeling. I was scared and started planning my funeral. However, I have learned so much the last year and no longer feel that sense of doom. I had a bi-lateral mastectomy and six rounds of chemo, and feel I have done all I can do to fight it. I have personally met one survivor of eight years. I have talked with several on this site, one a thirteen-year survivor. My oncologist gives me hope every time I see him. "Live normally," he keeps telling me. I know more $$ is being pumped into tnbc research today than ever before. Last week's Time magazine had an article about curing cancer and specifically named tnbc and pancreatic as the cancers scientists are especially "into" these days. Do not give up hope. Have whatever treatment is recommended, and don't second guess any of it. You have to fight this. Go to tnbcfoundation.org for more info.

      over 4 years ago
    • DianaL's Avatar

      It matters not what kind of cancer you have--it is always worth the FIGHT! You could walk out the door and be hit by a car. So Fight this with everything you have in your arsenal--chemo, surgery and radiation, if needed. You might be surprised that a lot of people fight this and win. I have friend that was diagnosed with TNBC in 2000 and she is still here enjoying life to the fullest.
      Remember the words "Fight Like a Girl" and get on with it.

      over 4 years ago
    • Marbeau's Avatar

      I am a TNBC survivor 2 plus years. Other famous survivors are Fox News correspondent Jennifer Griffin and ABCs Robin Roberts. The moms of actress Emma Stone and model Naomi Campbell are TNBC survivors. One good web site to look into is "Positives about Negative". Lots of up to date info from a 5 plus year TNBC survivor with many survivor stories. Yes it is worth it. Diane

      over 4 years ago
    • plumcrazy's Avatar

      1-3 years? I was not told that. Next month will be 3 years for me and August will be 4 years from lymphoma. I am a fighter and you should be, too. Take anything they throw at you. It's not very glamorous, but in time you will be back to normal. I now have a thick, beautiful full head of hair (better than pre-chemo!) Keep fighting! Take care, Lisa

      over 4 years ago
    • Teddy's Avatar

      I was diagnosed with TNBC Aug 09 and right now am NED (no evidence of disease). You should do chemo and radiation. You are worth it!.

      over 4 years ago
    • MillieS's Avatar

      Never give up ! Keep on fighting regardless of what you are told. You are unique and so is your cancer. No one but the Almighty himself knows when we are going to die and he doesn't readily share this info. So fight, research , and fight some more. Attitude has a lot to do with keeping well. NEVER EVER GIVE UP......hugs

      over 4 years ago
    • Vjp2012's Avatar

      You are a survivor! You were the first day you were diagnosed. Don't give up! It isn't over till it's over. Make the most of everyday! Hugs!

      over 4 years ago
    • rosiecb's Avatar

      I have had triple negative cancer 4 times between the ages of 29 - 52. I am now 25 years from my first cancer diagnosis. I am also BRCA1 positive. Triple negative cancer is not an automatic death sentence even if it recurs or if like me, you keep getting new primary cancers. No mets. Do the treatment as that is what will keep you alive.

      about 4 years ago
    • kickinit's Avatar

      I was diagnosed in Dec 2012 with TNBC. I had Chemo first, a lumpectomy with 3 nodes removed and then rad. I was on a study and I am so glad I did the study. I was originally suppose to have a mastectomy but with the study and doing chemo first it shrunk my tumor small enough that it was only a lumpectomy. I know the chance of the return of cancer is pretty high but I try and not think about it. Live every day like its my last, I try and not let the stress of bills and other things get to me. I am going to Hawaii in March to celebrate my life. To all my TNBC sister out their keep smiling and try to think positive. WE can do this together. I know this is a rare form of cancer but we can do it together.

      over 2 years ago
    • merose0705's Avatar

      I am very new to this diagnoses too. Found a lump the last Thursday of Oct. 2014. I had a lumpectomy 12-01-2014 and am scheduled to begin chemo the day after tomorrow 02-05-2015. I was buying a 3 bedroom home in Oregon and had lived there for 8 years when I found out I had invasive breast cancer and was told by the first Oncologist I was ER, PR, and HER2 positive. When they told me I needed chemo and would need help I needed to relocate to where I have family that could help me. I saw the new Oncologist and was re-diagnosed with triple negative grade 3 stage 1 cancer. I sold and gave away what I couldn't sell and placed a few larger pieces of furniture with an auction house. I signed my home over to a real estate agent to sell, short sell, or what ever needed to be done in one weeks time and headed to California for treatment. What I own fits in my car and all that I left behind was a lifetime of collecting things that for the most part truly are meaningless. I can't tell you it hasn't been hard but my life and yours means more that anything we can collect in this life. If there is any possibility that treatment will help me, I am going to do it. I try to educate myself to the best of my ability and when I get to the parts that talked about side effects I really couldn't read all about what could happen so I will take it a day at a time and if and when I feel something different I will talk to the doctor. I never knew how my life effected those around me and I just know the same is for us all. Our lives matter! I don't know what the effects of chemo or radiation are going to be but they are my options and I will take it. I don't know how hard it will get but I will fight with all I am. Life has not been easy for me many times through the years but the fight to get to today has definitely been worth it. I hope with all of my heart this uplifts you in some way. I say fight like a girl. I love this sentence and say it often. Love and prayers to you.

      over 2 years ago
    • Penn45's Avatar

      I had neoadj chemo, lumpectomy with pCR, and radiation. TNBC has recurred in exactly the same spot as the disappeared tumor. Due to radiation I'm unable to have another lumpectomy. I was told by first oncologist "It does not return to the breast". Well, it did!

      over 1 year ago
    • Penn45's Avatar

      Less than three yrs after Dx

      over 1 year ago

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