• ARE YOU ON VELCADE? ARE YOU ALSO A DIALYSIS PT WITH MULT MYELOMA?

    Asked by KATHYKA1302 on Monday, February 4, 2013

    ARE YOU ON VELCADE? ARE YOU ALSO A DIALYSIS PT WITH MULT MYELOMA?

    looking for any mm pt who may also be on dialysis. WHAT SIDE EFFECTS DID YOU EXPERIENCE? How soon did you experience them?

    2 Answers from the Community

    • lynniepoo's Avatar
      lynniepoo

      I am sorry it has taken me so long to answer you, I am having a hard time figuring out this site. You asked me (lynniepoo) about my treatment. I started out in August of 2011 receiving Velcade once a week and zometa once a month. I responded well until I sort of hit a plateau in Dec. In Jan 2012 I started Revlimid oral chemo and took that for 4 months (14 days on, 14 off) and responded great to that. By May I was ready for my stem cell transplant which took place (using my stem cells) on June 1st. I have done well with that but am now on a maintenance dose of Revlamid 10mg, 21 days on, 7 days off. I had no real side affects from the Velcade nor Revlamid, just tiredness and bone pain which I have anyway from 5 compression fractures in my back before I was diagnosed and the pain meds that I have to take for that. I am working and just taking it easy which is hard since I was exercising 5 times a week, a boater and a skier.... But i am happy to be alive and able to be with friends and family and out and about. I never had any of the renal nor jaw issues and didnt ever react to chemo until the chemo for the transplant. That was a good experience and am happy I live in a state with 3 great facilities that have the stem cell option. I would be happy to answer any other questions you might have.

      over 4 years ago
    • LadyLib's Avatar
      LadyLib

      My husband is trying to avoid dialysis as an option. He has a creatinine level of between 4.9 and 5.4. It was as high as 6.59 at one time. He is trying to allow the treatment to work. It is our hope to see the kidney get a little better to avoid dialysis by any means necessary.

      about 4 years ago

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