• Arm pain after nodes removed from double mastectomy

    Asked by cris on Saturday, March 16, 2013

    Arm pain after nodes removed from double mastectomy

    I was just wondering how long does the pain last in your arm that the nodes were taken out, I had 24 removed on 3/4/13 & all were clear. Drains removed 3/13/13 so I am do my exercises but there still is so much pain, am I just wanting this to go away to fast? Monday will only be two weeks since double mastectomy was done? Thanks..

    7 Answers from the Community

    7 answers
    • Nancebeth's Avatar

      Congrats on clear nodes and having the drains removed. Drains suck! I hate to be the bearer of bad news, but the arm pain may stick around for a while. I had pain in the left for a good 2 months after my surgery, and I only had one node removed. I did the exercises, but since I also had reconstruction during the same surgery, I had limited range of motion because of the tightness of the muscles and skin from the implants.
      I had the left implant replaced last November and had very little pain from that surgery. However, once I started back to the gym on a regular basis in January, some pain is back in my left arm and I am hoping it is just soreness from working out. I see my doctor this week and will check for lymphedema.
      Just remember, cancer is not a sprint. It is an uber marathon. Dont rush anything. Try to be patient although it is difficult.
      And just as everyone's cancer is different, everyone is different ad we all heal at a different rate.
      Hang in there. It gets better :-)

      over 7 years ago
    • Ydnar2xer's Avatar

      I'm curious why your surgeon took out so many nodes when they were all clear? I thought that was the purpose of the "sentinel" node--to check it (and maybe one more beyond it), and if it (they)were clear, to not have to take any more--? Just wondering...

      over 7 years ago
    • bbay65's Avatar

      Nancebeth is right, patience is a virtue. We get anxious to get back to "normal". If you rush, you may do more harm than good. It's good to push yourself, but listen to your body. If it hurts a lot you may be doing too much too fast. Congrats on making it through the tough part. Good luck.

      over 7 years ago
    • karen1956's Avatar

      My BS only took the first layer of nodes out at time to bilat....I don't remember how long the pain lasted, but by 2 1/2 weeks post bilat I was feeeling pretty good.....Hope you are feeling better sooon....

      over 7 years ago
    • Mel's Avatar

      Hi, I had 3 nodes removed during my bilat. mast. that was in April 2012 and I know it was sore for awhile totally agree with Nancebeth it all takes time and just let your body heal. I know I still have where under my arm into pit some days aches or feels like pulling and right now for weeks it's dumb. I've asked before and everyone even doctor says that can last forever I'm like huh!?? But so glad to hear they were all clear wonderful news!!. :)

      over 7 years ago
    • debsweb18's Avatar

      I had 5 lymph nodes removed. It will be 2 years in June. I still get some soreness and tightness under my arms periodically. I have to keep the area stretched out by raising my hands above my head several times. That usually gets rid of the soreness and tightness.

      over 7 years ago
    • polgara's Avatar

      I had all my nodes removed from the effected area and the pain does go away. My dbl mast was roughly six weeks ago and I still have some residule pain. Just do your stretches, and you should hopefully see an improvement soon. Don't forget you just had major surgery, I know it's hard when you have little ones but try to take it easy and eat more protein and Vc, it will help you heal. Good Luck!

      over 7 years ago

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