• jad's Avatar

    Aromatase inhibitor (AI) side effects or NO side effects

    Asked by jad on Tuesday, January 29, 2013

    Aromatase inhibitor (AI) side effects or NO side effects

    I will be starting AI therapy when I finish radiation. Reading about the side effects scared me. So my question is: are the people who are on AIs who don't have side effects, or have minimal side effects only?

    8 Answers from the Community

    8 answers
    • debsweb18's Avatar

      Everyone reacts differently. I was on Arimidex for 10 months and developed awful joint pains especially in my hips after being on it for 4 months. I switched to Femara for 6 weeks. No change. I've been on Aromasin for about 5 months with almost no pain. Sleep is another issue, but I had that problem before. I didn't have hot flashes with any of them, but I didn't after menopause either.

      over 7 years ago
    • karen1956's Avatar

      Not everyone experiences side effecst with AI's,.....I was one who had side effects on all of the AI's, but I know several gals who have minimal to no side effects....it just varies from person to person......

      over 7 years ago
    • nancyjac's Avatar

      I would say my side effects are minimal. I've been on Anastrazole for about 7 months now. Had a few hot flashes at first but rarely get them anymore. I get some joint/bone pain, particularly during the night when I am inactive. I take Tylenol PM to help me sleep through it. Once I get up in the morning and have walked around for 10 minutes or so, the joint pain/stiffness is gone.

      over 7 years ago
    • JennyMiller's Avatar

      I started Arimidex in July 2012. At first, I had a touch of nausea mid morning and mid afternoon that went away quickly. The only effect I have now is some bone pain & stiffness that will wake me up early am but when I get up and move around, it goes away. Other than that -- I am doing great on it. And - actually, that is a small price to pay for the benefit. Good Luck!

      over 7 years ago
    • DorothyV's Avatar

      Hi Jad. I'm from Silver Spring, Md too! But I live in North Carolina now. I have been on Letroole/Femara since Nov 8. Headaches, joint pain, hot flashes. But as everyone has said your onc can always switch you to something else if the side effects are too annoying. Best of luck to you. God bless :)

      over 7 years ago
    • raven's Avatar

      I have been on Anastrozole for 18 months. I had a slight increase in hot flashes initially. Now having less then I had prior to starting it. No other side effects.

      over 7 years ago
    • Yallpaint's Avatar

      I've been on Femara for 2 1/2 years. I got terrible pain and stiffness in my hands and my fingers would get stuck in a bent position. Couldn't hold a coffee cup and it took 2 hands to turn a key. At the recommendation of a naturopath oncologist I am taking glucosamine, curamed, green tea, and several other vitamins. These have helped tremendously. There is rarely any pain and the stiffness is minimal. Just last month I was able to snap my fingers again! Sounds weird but that is a big accomplishment. Anyway, I recommend adding a naturopath oncologist to your team.

      over 7 years ago
    • Marshah's Avatar

      I was on aromadex for about 1 yr to 1 1/2 years after chemo/radiation. I was having many aches and pains in addition to muscle spasms. I mention it to my Dr. at the next visit and while I was telling him about all of the locations he was busy writing. I thought he was just putting a note in my file but he was actually writing out a new prescription for aromosin. This is the same base drug but from a different manufacturer. Within 5 days the aches and pains disappeared and I have been fine since. I am now a 7 year survivor. While each of us is different and different in how we react to medicines, you may not have any reactions or may have more than one. But be sure to mention any bothersome reactions to your Dr.and he will probably be able to prescribe another drug that may not cause you any problems. Remember also the list of reactions that are listed with any medications can be a large list. Maybe only 1 or 2 people had some of the reactions but they will list them so it will limit their potential for lawsuits.

      over 7 years ago

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