• Asking for your feedback on Dr. recommended treatment

    Asked by Stew on Tuesday, January 8, 2019

    Asking for your feedback on Dr. recommended treatment

    As a result of the last two CT scans on my lungs coming back clear after chemo treatment, my Dr is recommending radiation treatment on my brain (Prophylactic Cranial Irradiation) as a preventive treatment since small cell lung cancer frequently metastasizes to the brain.

    I would greatly appreciate feedback from anyone who has knowledge of; or has received this treatment.

    Thanking you in advance for your help.

    8 Answers from the Community

    8 answers
    • gmorcutt's Avatar

      Stew, I would definitely seek a second opinion. If I were in your shoes, I would say NO to prophylactic radiation. I’ve never heard of such a thing for lung cancer! (I’m an 8.5 year survivor.) If you’ve never had a brain MRI, you should, and continue to get one every six months. (My experience.) If you ever do end up with brain mets, they can do pinpoint radiation on those spots. I’ve always been told that whole brain radiation is not acceptable as there can be many cognitive side effects. If you have a targeted mutation, often switching medications can shrink brain mets. But again, I have to emphasize that prophylactic brain radiation is not part of any protocol I’ve ever heard of!

      4 days ago
    • Stew's Avatar

      Thanks to each of you for your replies. I sincerely appreciate your taking an interest and responding.

      My small cell lung cancer is extensive, stage 4, and so far I have had two MRI’s (the last one in Dec.) of my brain since it is one of the places this cancer migrates to, and both have been clear.

      4 days ago
    • Paperpusher's Avatar

      Stew for what it's worth, my husband's sclc is also one that likes to go to the brain. He was diagnosed December 2013 and hasn't had a brain MRI yet. No one has suggested it so this time I'm asking for it since I've seen changes in his cognitive abilities-pushing the wrong button on the remote, hesitancy to drive as far as he used to, more frustration with tech stuff, etc. I'm glad your doctor has been on top of it.

      3 days ago

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