• Asking for your feedback on Dr. recommended treatment

    Asked by Stew on Tuesday, January 8, 2019

    Asking for your feedback on Dr. recommended treatment

    As a result of the last two CT scans on my lungs coming back clear after chemo treatment, my Dr is recommending radiation treatment on my brain (Prophylactic Cranial Irradiation) as a preventive treatment since small cell lung cancer frequently metastasizes to the brain.

    I would greatly appreciate feedback from anyone who has knowledge of; or has received this treatment.

    Thanking you in advance for your help.

    12 Answers from the Community

    12 answers
    • Stew's Avatar
      Stew

      Your replies are appreciated greatly.
      Like Pmcvdl, I have chosen to have the brain MRI every 3 months rather than have the radiation.

      As you know, this journey is sometimes scary, so communicating with others who are going through the same thing is really helpful.

      Thanks again.

      4 months ago
    • starshine2006's Avatar
      starshine2006

      I also was recommended by my chemo doctor to have PCI done. I am extremely hesitant to have it done. I used to be in immunology/microbiology basic research, so understand how to read technical research papers. PIC showed some promise in many of the papers, however, it was also noted that side effects can be permanent.. Then I went to the cancer blog sites such as this one. What I read there horrified me. Dementia, tremors, loss of balance, loss of appetite, permanent loss of hair. There were a few positive remarks, however, for the most part those were from people much younger than myself. I am approaching 70 years old, and the thought of getting dementia (my mother at 94 has beginning stages) simply horrifies me. I would love to know if you went ahead and did the PCI and if you had any side effects, permanent or otherwise.

      2 months ago
    • starshine2006's Avatar
      starshine2006

      sorry, did not see your post where you said you opted for MRI. Thank you

      2 months ago

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