• Asking for your feedback on Dr. recommended treatment

    Asked by Stew on Tuesday, January 8, 2019

    Asking for your feedback on Dr. recommended treatment

    As a result of the last two CT scans on my lungs coming back clear after chemo treatment, my Dr is recommending radiation treatment on my brain (Prophylactic Cranial Irradiation) as a preventive treatment since small cell lung cancer frequently metastasizes to the brain.

    I would greatly appreciate feedback from anyone who has knowledge of; or has received this treatment.

    Thanking you in advance for your help.

    10 Answers from the Community

    10 answers
    • Paperpusher's Avatar
      Paperpusher

      Stew for what it's worth, my husband's sclc is also one that likes to go to the brain. He was diagnosed December 2013 and hasn't had a brain MRI yet. No one has suggested it so this time I'm asking for it since I've seen changes in his cognitive abilities-pushing the wrong button on the remote, hesitancy to drive as far as he used to, more frustration with tech stuff, etc. I'm glad your doctor has been on top of it.

      2 months ago
    • Pmcvdl's Avatar
      Pmcvdl

      I also had SMLC but no brain mets. I also had 2 clean scans after only chemotherapy. I have never had radiation and had one clear brain MRI. My radiation oncologist said that having radiation on the brain after clean scans is indeed done, citing several studies, but he gives patients a choice: the radiation OR a brain MRI every 3 months ... I have chosen the MRI, of course. I am quite surprised by the people who actually CHOOSE the radiation, especially if no mets have been in the brain before.

      27 days ago
    • Stew's Avatar
      Stew

      Your replies are appreciated greatly.
      Like Pmcvdl, I have chosen to have the brain MRI every 3 months rather than have the radiation.

      As you know, this journey is sometimes scary, so communicating with others who are going through the same thing is really helpful.

      Thanks again.

      27 days ago

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