• Astrocytoma

    Asked by Oh2btan on Wednesday, April 17, 2013

    Astrocytoma

    My wife had a seizure last July and after 9 months I found her seizing in the middle of the night again. It was due to not enough Keppra in her system.
    Anyway, I don't sleep in the same room as her since she gets up a lot due to the steroid use and the foot and hand cramping, but I wake up all times of the night and go check on if she's breathing and is seizing. I know that's not good for me I just don't know how to break it. I hate nights since they both happened in the night. I am scared all the time now. Has anyone else gone through this?

    10 Answers from the Community

    10 answers
    • carm's Avatar
      carm

      Oh2btan,
      Wow, I can sympathize with your plight. I am an oncology nurse and have had more than my share of GBMs and AAAs so I do understand that the seizure activity is off the charts at times. I am wondering if your wife has a prescription for lorazepam (Ativan)? As an anti-anxiety, it has been most effective in controlling those outbursts when used with an anti-covulsant and can help with the cramping. I understand the Decadron is probably keeping her awake at night but it is so necessary with brain tumors. Most people do not realize that the number one reason for seizures is scar tissue and not the disease itself. Let me direct you to a very important website for you. it is the American Brain Tumor Association at abta.org. and I am also attaching a link that is for patients and caregivers on brain tumors that they publish. It not only addresses Astrocytomas but will also address the seizure issues. Best of luck to you and should you have any other issues or concerns, I am always around. Carm RN

      http://www.abta.org/secure/about-brain-tumors-a-primer.pdf

      over 4 years ago
    • Oh2btan's Avatar
      Oh2btan

      Thank you Carm for the quick response and the links. She did get a scrip for Ativan to be used when she feels it coming on, which she has not the last two times. Or I am to administer if she is able to swallow. I am looking for any support anyone can give to help me cope with it. Good thing her last MRI was good so we are very optimistic in her recovery. Thanks again for the links Carm I will definitely get reading on those.

      over 4 years ago
    • reginak's Avatar
      reginak

      Is she taking Dilantin or any other anti-seizure drug? Can you get a friend or home health aid to sit with her at night so you can rest?
      Thank you for the link Carm. I have had 2 seizures that I know of and am terrified of having another since I live alone. I had no idea that Ativan could also help with seizures.
      Best of luck to you Oh2btan!

      over 4 years ago
    • carm's Avatar
      carm

      Oh2btan,
      I assume that your wife has the Ativan in pill form from what you wrote. If this is true, ask your doctor for the it in an intensol form. This is a liquid that she does NOT swallow. Instead you can squirt it into the pocket of her cheek if she is sleeping and it is absorbed by the layer of skin in the mouth called the buccal mucosa. I am going to send you my email address so that you can reach me at anytime, Carm RN.

      over 4 years ago
    • carm's Avatar
      carm

      Oh2btan,
      I do not see a link to connect with you off the site on your homepage but I have one on mine so it you want to correspond off line, just send me a link to exchange emails with you. Carm RN.

      over 4 years ago
    • Oh2btan's Avatar
      Oh2btan

      Reginak
      Right now just on Keppra and steroids. We don't really have the room in the house for someone to live with us, but it definitely a choice.
      Sorry to hear about your seizures. I imagine my wife is also scared to have another. Good luck to you as well.

      over 4 years ago
    • msfullofhope's Avatar
      msfullofhope

      You may want to consider lookimg into getting a "seizure dog" They are amazing animals and sense the seizures before they happen. Here is a link
      http://www.epilepsyfoundation.org/livingwithepilepsy/healthandwellness/Seizure-Dogs.cfm
      Mary

      over 4 years ago
    • Oh2btan's Avatar
      Oh2btan

      Thank you Mary I never heard of a seizure dog. Thank you for the link.

      over 4 years ago
    • msfullofhope's Avatar
      msfullofhope

      Oh2btan
      Let me know if you need more info on getting a seizure dog. I am not only a brain tumor survivor but also a social worker for persons with speical needs and amy be able to help you get funding.

      Mary

      over 4 years ago
    • Oh2btan's Avatar
      Oh2btan

      Thank you Mary will do.

      over 4 years ago

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