• Baroreflex failure years after radiation

    Asked by Criswell on Saturday, January 11, 2020

    Baroreflex failure years after radiation

    I had tongue cancer 6 years ago and went through chemo (cisplatin) and radiation (36 treatments). Now, after being cancer-free for 6 years, My blood pressure has gone off the rails. I have been hospitalized twice in the past two months and the doctors have diagnosed my condition as being "baroreflex failure", caused by the radiation treatments. When I was taken to the ER on New Years Day, my BP reading was 258/140. All the doctors were scrambling to figure out how to handle the situation and within 2 hours my BP had dropped to 58/40 without the administration of any meds. No one at the hospital had ever seen a spread of readings like that and no one had ever dealt with Baroreflex Failure before. I am going to the Cleveland Clinic at the end of the month, but from what I am told it is untreatable. I am quite fearful that I will have a stroke at any moment since there is no discernable cause/effect with the crazy BP readings. Has anyone here heard of or experienced this??

    10 Answers from the Community

    10 answers
    • Dkatsmeow's Avatar
      Dkatsmeow

      I read about that online also. Actually my PCP had doubled my prescription back in June. The mail order company got right in June, but after that sent me 25 mcg. I definitely was having issues from that. PCP & I correct that to 50 mcg in December & I am doing much better. but I will still watch my BP, just in case. So you may be onto something Meyati.

      2 days ago
    • Criswell's Avatar
      Criswell

      Thank you all for your helpful input. I get my thyroid checked every few months (TSH) and have been on Synthroid since 1996. My issue is weird because there is no cause/effect at work. Last night my systolic reading went from 226 to 104 in 45 minutes, with no meds. I have had days where it can go as low as 70 and an hour later go to 195 or 200, then back down to 100 with no meds. I will post what I learn at the Cleveland Clinic later this month.

      1 day ago
    • Criswell's Avatar
      Criswell

      Thank you all for your helpful input. I get my thyroid checked every few months (TSH) and have been on Synthroid since 1996. My issue is weird because there is no cause/effect at work. Last night my systolic reading went from 226 to 104 in 45 minutes, with no meds. I have had days where it can go as low as 70 and an hour later go to 195 or 200, then back down to 100 with no meds. I will post what I learn at the Cleveland Clinic later this month.

      1 day ago

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