• Battling rare form of cancer called Hemangiopericytoma and it has progressed past the point of treatment. Unable to work and receiving SSDI.

    Asked by mitchell1159 on Thursday, July 19, 2012

    Battling rare form of cancer called Hemangiopericytoma and it has progressed past the point of treatment. Unable to work and receiving SSDI.

    How do I tell my 4 & 10 year old that I will not be around and unable to get life insurance with a pre-existing condition, how can I leave my family with the end-of-life expenses? I am over the requirements for any State or local financial assistance and we are in financial turmoil. I created a video page telling my story and offer a plea to compassionate people whom may be willing to help but how do I get it to the masses? I do not want to leave my family with more financial burdens then we currently have and my fear is so overpowering to the point of incapacitation at times. I am at a loss and feel so helpless to do anything. So much for all that time spent getting my Masters degree and not being able to put it to good use.

    4 Answers from the Community

    4 answers
    • FreeBird's Avatar

      Hi Craig. Best wishes for the alleviation of your suffering-- physical, emotional, with your worries and fears for your family, and with facing your mortality. If you were hit by a bus, or had an aneurysm that killed you instantly, you wouldn't have time to sit back, think and worry about all these things. Cancer leaves time for these things to cause distress. Unfortunately, many people here on this website, at the cancer center where my father receives treatment, and my own family, also have similar worries and concerns about resources. My dad worries about the money thing. I wish I had a better answer for everyone. If you have specific needs, it's one thing. But if you have existing bills, what I tell my dad and myself is that it's only money. No one can come take what you don't have. We'll figure it out one day at a time, and there's no point in worrying about it. There are enough other things to deal with. He has been fighting two different cancers for 2 or 3 years, not including skin cancer he had earlier which was very easy to handle, as well as other existing chronic health issues.

      For end-of-life expenses, when you're ready for it, Hospice can be a great help with end-of-life issues for you and your family, before during and after death. At some point down the road, that's probably where we're headed too.

      For your video, maybe try looking up the top 10 internet searches, most-viewed videos, most-viewed news headlines, viral videos, and incorporate that into your message-- as well as the title of your video. Maybe you'll get more eyeballs onto a creative video.

      over 8 years ago
    • packerbacker's Avatar

      I'm so sorry for your situation. I hope you are not suffering. In reading different responses to different questions, some websites came up that may help: The Cancer Card Xchange and GiveForward. I'm just starting to look at these sites, but maybe they can offer you some assistance. Best wishes to you!

      over 8 years ago
    • mitchell1159's Avatar

      thank you for your responses and we plan to use those agencies for the assistance that they offer. Unfortunately many everyday expenses are not covered by these organizations and my meager SSDI payment hardly covers the costs associated with battling a rare cancer. We created a cause/donation page in the hopes of reaching compassionate people willing to help but have no clue how to reach the masses.

      over 8 years ago
    • FreeBird's Avatar

      My dad has battled two different cancers in a row, and we're all familiar with all the expenses and worries that add up. It's not much compared to cost of care and everything associated with that, but if you haven't tried it, the Cancer Card Xchange http://www.cancercardxchange.org/ tries go gift $100. in donated and unused gift cards to individuals battling cancer, if their supply allows it. It's generous because the donations come from ordinary people who just want to help out a bit. Click on the referrals tab on that website, make your request to the email address provided, with your name, address, the type of cancer you have, explain your situation and verify your cancer treatment. List any gift cards you may be able to use to help you and your family. Pharmacy gift cards can be helpful with prescriptions and over-the-counter medications.

      over 8 years ago

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